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  1. NelliePledge

    George Monbiot on ME/CFS, PACE, BPS and Long Covid

    Just to say if anyone doesn’t normally do social media there are many positive comments in response to George Monbiot’s posts. but also as ever the usual mix of people who are advocating various “approaches” to ME including Lightning Process GET and so on. And the cynics and nasty people as...
  2. NelliePledge

    “it’s a medical condition … you need to support as much as possible”: a qualitative analysis of teachers’ experiences of CFS/ME, Brigden et al, 2021

    Is there a link for the paper @John Mac Based on the extract It’s positive that most of these 11 teachers were able to recognise the impact of ME on their pupils. Concluding that Clinical services should consider collaborating with teachers is hardly cutting edge thinking.
  3. NelliePledge

    The Cambridge Lectures: Demystifying ME/CFS, March 2020, deferred to January 2021 on Zoom

    This looks like a positive development. Hopefully similar local GP groups across the U.K. will also engage with the CMRC medical education group.
  4. NelliePledge

    Open Medicine Foundation (OMF)

    But in reality any conclusions we’d be attempting to draw are speculative and I’m sceptical that there’s any benefit from discussion of other people’s symptoms based on articles.
  5. NelliePledge

    Open Medicine Foundation (OMF)

    https://www.webmd.com/schizophrenia/side-effects-aripiprazole#3-7 insomnia is a very common side effect We would only be speculating on whether that is the case for Whitney.
  6. NelliePledge

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Professor Christopher Norton, York Uni History of Art https://www.york.ac.uk/history-of-art/staff/norton/
  7. NelliePledge

    The use of the labels ME, CFS, ME/CFS

    https://www.me-international.org/international-meicc-orgs.html
  8. NelliePledge

    Investigating reduced tolerance to alcohol in ME?

    It’s useful to know that a symptom is not a one off so it’s a step up from an individual account. Obviously large scale surveys such as Action for ME/ME Association in the U.K. with thousands of participants have more use as evidence of issues being widespread.
  9. NelliePledge

    Investigating reduced tolerance to alcohol in ME?

    Looks like the total respondents = 41
  10. NelliePledge

    Sensations of fizzing or buzzing, or paraesthesia in limbs

    I know some people have these tremors regularly. I have only had them a handful of times. I had a realisation that I was visiting friends in Provence my neuropathic pain was aggravated by heat so I took pregabalin for a couple of weeks which I don’t normally take. I checked the side effects...
  11. NelliePledge

    What is an engaging, informative, short, accurate description for ME/CFS?

    Yes a lot to be said for trying to tailor your message to the audience @Colin
  12. NelliePledge

    What is an engaging, informative, short, accurate description for ME/CFS?

    Yes I was asked about this at a family do by someone 80 a couple of years ago. And I said a more colloquial version of this. When I mentioned it’s like having the flu a lot it really hit home
  13. NelliePledge

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I hope Carol Monaghan and/or one of the others from the APPG on ME will speak
  14. NelliePledge

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I think the inventors Lightning, Reverse, Mikel, Gupta, and the other multi level scam “therapies” best you to it as some of those they hook into their marketing scams are supposedly people who had ME
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