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Thursday June 15 Lunch & Learn – Virtual Event https://batemanhornecenter.org/event/lunch-learn-virtual-event-40/ 1:30 PM ET/6:30 PM in Great Britain & Ireland Find the time in your time zone here...

A CDC random digit prevalence study in the 2000s found only 16% had been diagnosed. A Jason et al random digit prevalence study published in 1999 found only 9% had been diagnosed.

Free, professionally-facilitated online support group on Tuesday, June 20 Topic: When the Patient is the Caregiver https://batemanhornecenter.org/event/online-support-group-49/ 3 PM EST/8 PM in Great Britain & Ireland Find the time in your time zone here...

Sunday Conversations May 2023 - Wearable technology with Harry Leeming of Visible Mass MECFS & FM Association 65 views 24 May 2023 A former engineer, Harry Leeming has worked at multiple early-stage start-ups in Silicon Valley as well as in Formula 1. Harry founded the company Visible...

Tuesday, June 13 Online Support Group Free, professionally-facilitated online support group https://batemanhornecenter.org/event/online-support-group-48/ Topic: Pain & Sleep Hacks 3 PM EST/8 PM in Great Britain & Ireland Find the time in your time zone here...

Saturday, June 17 "CAREGIVER SUPPORT CALL (for caregivers of people with ME (mylagic encephalomeylitis), Long COVID and associated conditions)" https://www.meaction.net/event/me-caregiver-support-call/2023-06-17/ 3:30 PM ET/8:30 PM in Great Britain & Ireland Find the time in your time zone...

Thursday June 15 #MEACTION GEORGIA SUPPORT CALL https://www.meaction.net/event/meaction-georgia/2023-06-15/ People from around the world are welcome. 1 PM EDT/6 PM in Great Britain & Ireland Find the time in your time zone here...

I agree that a big question mark exists over much of the data in this survey. But surveys like this can have a value in terms of getting media coverage, highlighting issues, etc. even if there are big problems with the specifics. Though a group can be risking some reputational damage.

From: Dr. Marc-Alexander Fluks Source: Icahn School of Medicine at Mount Sinai Date May 15, 2023 URL: https://www.proquest.com/openview/12cb80c96056a220f9e1d8bd7ea5fecc/1 Identifying demographic trends in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome patients presenting with...

The part in bold seems quite high but I'm no expert. I wonder does it relate to 21,927 rather than a much larger group?

No idea whether anything new or noteworthy in this: ---------- Forwarded message --------- From: Dr. Marc-Alexander Fluks Date: Mon 29 May 2023 at 13:51 Subject: WHO discussing PFS/CFS/ME, FM, and Lyme disease WHO discussing PFS/CFS/ME...

Thanks very much to this individual for remembering the ME/CFS cause in their will (I vaguely recall talk that someone had left a very significant bequest, worth in the region of maybe NZ$900,000 (??)). I get the impression not that many people with ME/CFS leave much if anything to ME/CFS in...

I wonder whether the bequest had the requirement that the research has to take place in New Zealand. In such a relatively small country, there might be few applications some years and poor research could end up getting funded. Edited to add: That’s good.

Support for Long Covid and ME/CFS Presentation by Client Support Coordinators - Natalie Newall and Maddie Finnigan-Degarnham ME Support https://waitakerehealthlink.org.nz/wp-content/uploads/2023/05/ME-Support-Presentation-May2023.pdf

Article on a re-insurance company website. Looks like it references quite a number of biopsychosocial school studies on ME/CFS and similar Global Claims Views: COVID-19/SARS-CoV-2 and the Impact on Disability - A Focus on Fatigue PART 1: Medical Aspects By Dr. Paul Davis...

Yes. One study showing this: Cerebral blood flow is reduced in ME/CFS during head-up tilt testing even in the absence of hypotension or tachycardia: A quantitative, controlled study using Doppler echography C Linda M C van Campen et al. Clin Neurophysiol Pract. 2020...

http://meadvocatesireland.blogspot.com/2023/05/myalgic-encephalomyelitis-me-diagnosis.html Also available as a pdf (64 pages):

This looks good based on a first read: Doctors with ME: ME/CFS: Top Tips Handout for Doctors https://www.s4me.info/threads/doctors-with-me-me-cfs-top-tips-handout-for-doctors.33254/