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  1. Dolphin
    Post

    USA: News from the Bateman Horne Center

    Thursday June 15 Lunch & Learn – Virtual Event https://batemanhornecenter.org/event/lunch-learn-virtual-event-40/ 1:30 PM ET/6:30 PM in Great...
    Post by: Dolphin, Jun 9, 2023 in forum: News from organisations
  2. Dolphin
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    Post by: Dolphin, Jun 9, 2023 in forum: Recruitment into current ME/CFS research studies
  3. Dolphin
    Post

    USA Centers for Disease Control (CDC) news (including ME/CFS Stakeholder Engagement and Communication Calls) - next call 4 Dec 2024

    A CDC random digit prevalence study in the 2000s found only 16% had been diagnosed. A Jason et al random digit prevalence study published in 1999...
    Post by: Dolphin, Jun 9, 2023 in forum: News from organisations
  4. Dolphin
    Post

    USA: News from the Bateman Horne Center

    Free, professionally-facilitated online support group on Tuesday, June 20 Topic: When the Patient is the Caregiver...
    Post by: Dolphin, Jun 9, 2023 in forum: News from organisations
  5. Dolphin
    Post

    Monitoring app - Visible - a platform "designed for any invisible illness that benefits from resting and pacing - including ME/CFS & Long Covid."

    [MEDIA] Sunday Conversations May 2023 - Wearable technology with Harry Leeming of Visible Mass MECFS & FM Association 65 views 24 May 2023 A...
    Post by: Dolphin, Jun 8, 2023 in forum: Monitoring and pacing
  6. Dolphin
    Post

    USA: News from the Bateman Horne Center

    Tuesday, June 13 Online Support Group Free, professionally-facilitated online support group...
    Post by: Dolphin, Jun 7, 2023 in forum: News from organisations
  7. Dolphin
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    Post by: Dolphin, Jun 6, 2023 in forum: Recruitment into current ME/CFS research studies
  8. Dolphin
    Post

    United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media

    I noticed this quote tweet: It makes me wonder whether he [Dr Strain] was consulted regarding the case at some point.
    Post by: Dolphin, Jun 5, 2023 in forum: General ME/CFS news
  9. Dolphin
    Post

    United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media

    A life cut short by medical neglect: interview with Sarah Boothby, whose daughter Maeve died at 27 of severe ME/CFS 31st May 2023...
    Post by: Dolphin, Jun 5, 2023 in forum: General ME/CFS news
  10. Dolphin
    Post

    USA: News from #MEAction

    Saturday, June 17 "CAREGIVER SUPPORT CALL (for caregivers of people with ME (mylagic encephalomeylitis), Long COVID and associated conditions)"...
    Post by: Dolphin, Jun 4, 2023 in forum: News from organisations
  11. Dolphin
    Post

    USA: News from #MEAction

    Thursday June 15 #MEACTION GEORGIA SUPPORT CALL https://www.meaction.net/event/meaction-georgia/2023-06-15/ People from around the world are...
    Post by: Dolphin, Jun 4, 2023 in forum: News from organisations
  12. Dolphin
    Post

    Implementation of the NICE Guideline [NG206] on [ME/CFS] in England - Freedom of Information Findings Report - Action for ME, May 2023

    I agree that a big question mark exists over much of the data in this survey. But surveys like this can have a value in terms of getting media...
    Post by: Dolphin, May 30, 2023 in forum: UK clinics and doctors
  13. Dolphin
    Thread

    Thesis Identifying demographic trends in ME/CFS patients presenting with Fibromyalgia as a comorbidity in the nationwide inpatient sample database, Murali

    From: Dr. Marc-Alexander Fluks Source: Icahn School of Medicine at Mount Sinai Date May 15, 2023 URL:...
    Thread by: Dolphin, May 30, 2023, 0 replies, in forum: ME/CFS research
  14. Dolphin
    Post

    Implementation of the NICE Guideline [NG206] on [ME/CFS] in England - Freedom of Information Findings Report - Action for ME, May 2023

    The part in bold seems quite high but I'm no expert. I wonder does it relate to 21,927 rather than a much larger group?
    Post by: Dolphin, May 29, 2023 in forum: UK clinics and doctors
  15. Dolphin
    Post

    Updates on status of ICD-11 and changes to other classification and terminology systems

    No idea whether anything new or noteworthy in this: ---------- Forwarded message --------- From: Dr. Marc-Alexander Fluks Date: Mon 29 May 2023...
    Post by: Dolphin, May 29, 2023 in forum: Disease coding
  16. Dolphin
    Post

    NZ: ANZMES research grants & scholarships (starting 2023)

    Thanks very much to this individual for remembering the ME/CFS cause in their will (I vaguely recall talk that someone had left a very significant...
    Post by: Dolphin, May 29, 2023 in forum: ME/CFS research news
  17. Dolphin
    Post

    NZ: ANZMES research grants & scholarships (starting 2023)

    I wonder whether the bequest had the requirement that the research has to take place in New Zealand. In such a relatively small country, there...
    Post by: Dolphin, May 29, 2023 in forum: ME/CFS research news
  18. Dolphin
    Post

    News from Aotearoa/New Zealand and the Pacific Islands

    Support for Long Covid and ME/CFS Presentation by Client Support Coordinators - Natalie Newall and Maddie Finnigan-Degarnham ME Support...
    Post by: Dolphin, May 28, 2023 in forum: Regional news
  19. Dolphin
    Thread

    (RGA) Global Claims Views: COVID-19/SARS-CoV-2 and the Impact on Disability - A Focus on Fatigue PART 1: Medical Aspects, Dr. Paul Davis

    Article on a re-insurance company website. Looks like it references quite a number of biopsychosocial school studies on ME/CFS and similar Global...
    Thread by: Dolphin, May 28, 2023, 1 replies, in forum: Long Covid news
  20. Dolphin
    Post

    Detecting Orthostatic Intolerance in Long COVID in a Clinic Setting, 2023, Isaac et al.

    Yes. One study showing this: Cerebral blood flow is reduced in ME/CFS during head-up tilt testing even in the absence of hypotension or...
    Post by: Dolphin, May 28, 2023 in forum: Long Covid research
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