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    News from Canada

    I think Governments should be up front with long haulers that many are not more likely to achieve recovery than those with cfs and save them going to 50 or more health professionals. Resources should be redirected to autoimmune research if it appears it is autoimmune. They have been researching...
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    Millions Missing Canada advocacy, letter to political leaders during Federal Election 2021

    I thought there were 600,000 cfsers not counting the COVID long haulers which would increase that number by quite a bit. We must continue to approach it from any angle. Remember Ron Davis said many other illnesses seem to also have cfs and he thinks when the biomarker test comes out there will...
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    News from Canada

    You can sign up for drug trial with Dr. Moreau's assistant. Sophie he wrote this: We could invite your daughter to participate to our clinical study. My clinical research nurse, Ms. Sophie Perreault (cc’d on this email) will do a follow-up with you regarding the participation of your daughter...
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    Profile of circulating microRNAs in Myalgic Encephalomyelitis......(2020), Nepotchatykh, Moreau et al

    I emailed the federal government to provide increased funding to their small group because clearly they did a lot with such a tiny budget.
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    Aripiprazole - Abilify

    Multiple anecdotes is better than nothing. iT'S TERRIFIC. If they received funding then you might have reason to criticize for not getting answers. They don't have the funds and no one should have a sense of entitlement when they are not given the resources. I am thrilled about all their work...
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    Personal experience of using cumin to treat PEM

    Was there a particular brand of ground cumin you used. Did you take it after food? Thanks.
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    Whitney Dafoe Updates

    This is great to hear! I don't care if it is Whitney's mom, sister, tom cat, or whoever helping to write this. It is fun! I am sure it is accurate! I don't want this superman taken away from his research and we want him protected from covid too. Thanks for the update. I really appreciate it.
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    Dr Ron Davis - Updates on ME/CFS research - September 2019 onwards

    Something totally dysfunctional is going on here to turn money for a diagnostic test down. It is unbelievable. Could another government recognize this is a great opportunity to move this forward. How to find a way forward?
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    A Unifying Hypothesis of the Pathophysiology of (ME/CFS): Recognitions from the finding of autoantibodies against ß2-adrenergic receptors: Wirth 2020

    I don't understand this, but perhaps it has something to do with the fact that the two people in the family who happen to have pseudocholinesterase deficiency (meaning they do not have the enzyme to metabolize anesthetics to wake up afterwards) happen to have both gotten mono decades ago in high...
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    The Prevalence of Pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in a Community-Based Sample (2020) Jason et al.

    Merged thread https://www.sciencedaily.com/releases/2020/01/200123152453.htm
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    Well known, famous people reported to have Lyme Disease.

    If the metabolic trap hypothesis is correct, then my guess is that that shift happened. I also think that due to the cfs immune system they are more likely to have it reactivate again than a healthy person and they should be on guard, testing periodically with standard herbals such as the ones...
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    Well known, famous people reported to have Lyme Disease.

    Our loved one and some of her friends have travelled to many corners of North America getting years of antibiotics and every other treatment going for her chronic lyme disease and has not cured it. She is left with cfs or at least mainly cfs. She had mono a decade before that she never fully...
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    Well known, famous people reported to have Lyme Disease.

    It may be my imagination but there seems to be a connection between cfs and lyme. If your immune system is working properly you may never have symptoms from having lyme disease. Also, with a healthy immune system you can take antibiotics and that is the end of lyme disease. Ron Davis or the...
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    Well known, famous people reported to have Lyme Disease.

    The cnn web site also said he is recovering from mono. Sound familiar?
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    Dr Ron Davis - Updates on ME/CFS research - September 2019 onwards

    Well, I would like to see the nanoneedle test Bravo probiotic. In our case, it helps with neurological pain, mcs, sleep. It is not a definite answer but it provides help. It is the only thing we have stuck with when everything else stopped, including vitamins except vitamin c and magnesium...
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    Dr Byron Hyde - Canada

    I heard Dr. Byron Hyde was very successful at helping patients get disability. They are sending a message to other doctors who are not part of mainstream medicine. I doubt that it is that he suddenly became incompetent.
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    Incomplete Healing as a Cause of Aging: The Role of Mitochondria and the Cell Danger Response (2019) Naviaux

    Somewhere on the internet i read that the telomeres of people with cfs age faster.
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    Erythrocyte Deformability As a Potential Biomarker for Chronic Fatigue Syndrome, Davis et al (2018)

    Someone posted on Phoenix Rising that the paper has been accepted for publication but is not yet online.
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    Top reasons ME research is an opportunity

    It is an opportunity because of the rare team of people leading this. The stars are aligned for so long. We really need one billionaire willing to step forward and plant both feet in this - somebody who gets this is an opportunity to move quickly for good returns. Funding from the Canadian...
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