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  1. K

    UK Parliamentary debate today - Thursday 24th January 2019

    Thank you @Jonathan Edwards, that's really useful. The Science and Technology committee are currently doing an inquiry into 'Balance and effectiveness of research and innovation spending' though it seems to have only 2 sittings and I'm not sure that it will be of any relevance. I agree it's very...
  2. K

    UK Parliamentary debate today - Thursday 24th January 2019

    Thank you @Sly Saint. I've seen the list of MRC/NIHR funded applications - I'm just wondering if there is a list anywhere of funding applications that were refused? It would be good to compare the list of funded applications to refused applications. Do you think that the MRC/DOH would have to...
  3. K

    Searching constituents of MPs sitting on Science and Technology Committee (UK)

    @MEMarge Did anyone ever meet with Sam Gyimah MP. i'm just asking because he is now on the Science and Technology Select Committee and I think it would be good to have a conservative on that committee who was up to speed on ME issues to support anything that Darren Jones MP and Carol Monaghan MP...
  4. K

    UK Parliamentary debate today - Thursday 24th January 2019

    This is the latest comment from Darren Jones MP - see below (who's my MP and who I and a couple of others have been liaising with to explore how he can help). My question is - do we have any breakdown of recent biomedical research funding applications to MRC/NIHR that have been turned down...
  5. K

    U.K. House of Commons Science committee public can propose topics by 29 Nov

    Darren Jones is also on the committee and he is onboard after myself and Natalie Boulton met with him in September. Graham Stringer is also a strong supporter of ME campaigns. There is real scope for this committee helping in some way. We just need to get one of the conservatives on the...
  6. K

    UK Parliament - Science and Technology Select Committee

    I am looking to target members of the Science and Technology Select Committee as there is a possibility that they may be able to do an inquiry into something ME related (possibly PACE). Myself and 2 others have met with Darren Jones (Bristol North West) and he is on board (he's also met with...
  7. K

    The Times - Call for review of ‘flawed’ ME research in Lancet letter

    Yes, I'll discuss it with ME Action Scotland.
  8. K

    The Times - Call for review of ‘flawed’ ME research in Lancet letter

    I agree, good to be more strategic and as you said MPs without safe majorities are also likely to be more receptive to constituent pressure. What we have been doing in the ME Action regional group is connecting constituents with other constituents for the same MP, so they can possibly, if well...
  9. K

    The Times - Call for review of ‘flawed’ ME research in Lancet letter

    I'm the admin for ME Action England South West and one of our members met with Thangham Debonnaire last week who said that because she was an opposition whip she would be unable to sign the letter to the Lancet (or sign up to MAIMES), so other PPSs/whips/ministers may say the same. A few other...
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