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  1. Justy
    Post

    Wider collateral damage to children in the UK because of the social distancing [...] COVID-19, 2020, Crawley et al. And other papers by Crawley et al

    Yep!
    Post by: Justy, May 6, 2020 in forum: Epidemics (including Covid-19, not Long Covid)
  2. Justy
    Post

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Hi! i'm in that slack - just joined the autoimmune section because i was bored of people waiting to return to 'normal' when we never will. Hope to...
    Post by: Justy, May 6, 2020 in forum: Long Covid news
  3. Justy
    Post

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    ive not read further through the posts than your post but as a (highly suspected) covid patient myself who is struggling to recover i want to...
    Post by: Justy, May 6, 2020 in forum: Long Covid news
  4. Justy
    Post

    Wider collateral damage to children in the UK because of the social distancing [...] COVID-19, 2020, Crawley et al. And other papers by Crawley et al

    A study out of Germany recently seemed to suggest that children can carry the virus and transmit it at the same rate as adults they are generally...
    Post by: Justy, May 6, 2020 in forum: Epidemics (including Covid-19, not Long Covid)
  5. Justy
    Post

    does anyone get these symptoms? (mainly skin-based!)

    It does sound, like MCAS from your symptoms. Going to the GP would most likely be completely pointless, as explained by others. I have to trvel to...
    Post by: Justy, Mar 16, 2018 in forum: General and other signs and symptoms
  6. Justy
    Post

    PINEAPPLE FUND INCREASES DONATION TO OMF to $5 MILLION

    Oh wow - amazing news!
    Post by: Justy, Feb 2, 2018 in forum: General ME/CFS news
  7. Justy
    Post

    Researcher Interactions Video: Science for ME Q&A with Dr José G. Montoya, 16th January 2018

    Thanks Andy and Ron, and most of all Dr Montoya - A very interesting and heartwarming interview. Shame there was no time for my question, but i...
    Post by: Justy, Feb 1, 2018 in forum: ME/CFS research news
  8. Justy
    Post

    Entire issue of Post Graduate Medical Journal (11/1978) devoted to ME

    Thanks! i didnt even know the Science Library was a thing - going to get lost in there for a few weeks now.
    Post by: Justy, Feb 1, 2018 in forum: General ME/CFS news
  9. Justy
    Post

    Entire issue of Post Graduate Medical Journal (11/1978) devoted to ME

    A place on the site or a sticky with ll these links could be a useful resource @Andy ? otherwise they just get lost in the middle of threads.
    Post by: Justy, Jan 31, 2018 in forum: General ME/CFS news
  10. Justy
    Post

    Entire issue of Post Graduate Medical Journal (11/1978) devoted to ME

    40 years and we are only just getting back to this?! I'm enjoying the delve into the past and the desire for patients now to understand the...
    Post by: Justy, Jan 31, 2018 in forum: General ME/CFS news
  11. Justy
    Post

    EDS and ME - is there a connection?

    sorry this quote looks too out of context now, and too unwell to go back and retrieve the full quote, but it was in relation to MCAS. The fact...
    Post by: Justy, Jan 24, 2018 in forum: Fibromyalgia and Connective Tissue Disorders
  12. Justy
    Post

    EDS and ME - is there a connection?

    Totally off the wall question - anyone have any idea if MVP is related to other heart valve issues? i have a MVP with a mild regurgitation, but...
    Post by: Justy, Jan 24, 2018 in forum: Fibromyalgia and Connective Tissue Disorders
  13. Justy
    Post

    EDS and ME - is there a connection?

    Yes, i am aware there are currently no known genetics for EDSlll. The guidelines I quoted are up to date clinical guidelines, presumably compiled...
    Post by: Justy, Jan 23, 2018 in forum: Fibromyalgia and Connective Tissue Disorders
  14. Justy
    Post

    EDS and ME - is there a connection?

    I would like to discuss further your use of lax joints and repeated references to pain. Many people with EDSlll do not merely experience lax...
    Post by: Justy, Jan 22, 2018 in forum: Fibromyalgia and Connective Tissue Disorders
  15. Justy
    Post

    Feedback from Stakeholder Engagement Workshop for the NICE guidelines on ME, Jan 2018

    Anecdotally more than one M.E Dr reports up to a 1/3 of patients have co morbid hypermobility or EDS3. I know its not a study, but these need to...
    Post by: Justy, Jan 20, 2018 in forum: Advocacy Projects and Campaigns
  16. Justy
    Post

    Petition: Create a virtual school for children too unwell to attend school

    This is a fantastic idea. I hope they have an effective campaign as well, not just a petition. My daughter missed her final year of school due to...
    Post by: Justy, Jan 20, 2018 in forum: Petitions
  17. Justy
    Post

    Guardian: "Don’t listen to Gwyneth Paltrow: keep your coffee well away from your rectum"

    King Coffey and the Butthole surfers Butthole theme song come to mind [MEDIA]
    Post by: Justy, Jan 12, 2018 in forum: Other health news and research
  18. Justy
    Post

    Pain poll

    I have ticked a number of the different types pf pain, joints, stabbing, background ache, painful skin lymph nodes, not sure if any else, but the...
    Post by: Justy, Jan 5, 2018 in forum: Pain and Inflammation
  19. Justy
    Post

    Webinar: M.E./CFS: Management principles for health professionals, Jan 16th

    I didn't like to say...
    Post by: Justy, Jan 5, 2018 in forum: General ME/CFS news
  20. Justy
    Post

    What blood tests would you get?

    Yes, here it is, the Lipkin study...
    Post by: Justy, Jan 4, 2018 in forum: Laboratory and genetic testing, medical imaging
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