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  1. MyalgicE
    Post

    Goodfellow Medcases CPD - Managing CFS/ME in general practice: new ideas, 2019, Mount and Vallings

    Plenty, but I need to get over the ‘bedtime carbohydrate snack’ first...
    Post by: MyalgicE, Dec 4, 2019 in forum: General ME/CFS news
  2. MyalgicE
    Post

    Parasympathetic activity is reduced during slow-wave sleep, but not resting wakefulness, in patients with chronic fatigue syndrome, 2019, Fatt et al

    Of course we should evaluate this paper on its merits, while being aware this is ‘Fitspiration’ Fatt who co-authored a paper on the need for more...
    Post by: MyalgicE, Dec 1, 2019 in forum: ME/CFS research
  3. MyalgicE
    Post

    ME Advocacy Network Australia (formerly MEAction Australia)

    Yes. They are...not great. They receive government funding for staffing but only do support not advocacy. The support is only for mild and...
    Post by: MyalgicE, Nov 29, 2019 in forum: General ME/CFS news
  4. MyalgicE
    Thread

    Australia due to get ICC guidelines by 2014

    From Clinicalguidelines.gov.au: Myalgic Encephalomyelitis - Adult & Paediatric: International Consensus Primer for Medical Practitioners 2012...
    Thread by: MyalgicE, Nov 29, 2019, 0 replies, in forum: Other guidelines
  5. MyalgicE
    Thread

    Mitochondrial stress causes neuronal dysfunction via an ATF4-dependent increase in L-2-hydroxyglutarate (2019) Hunt et al

    Abstract Mitochondrial stress contributes to a range of neurological diseases. Mitonuclear signaling pathways triggered by mitochondrial stress...
    Thread by: MyalgicE, Nov 23, 2019, 1 replies, in forum: Other health news and research
  6. MyalgicE
    Post

    Action for ME: GP home visits under threat

    If I hadn’t found a GP that did home visits, I wouldn’t receive any medical care at all.
    Post by: MyalgicE, Nov 21, 2019 in forum: General disability topics and advocacy
  7. MyalgicE
    Post

    News from Aotearoa/New Zealand and the Pacific Islands

    So impressed with ME Awareness NZ’s work. The latest Stuff article from Carrie Coddington is especially good: powerful and resonating with a lot...
    Post by: MyalgicE, Nov 21, 2019 in forum: Regional news
  8. MyalgicE
    Post

    Request for comments: NDIS (Australian National Disability Insurance Scheme): evidence of permanency of ME/CFS with NHMRC interim guidelines

    Hi @carbonis.dentes Would you like me to send you the information ME Australia provided to the NDIS about permanency that we sent after our...
    Post by: MyalgicE, Oct 25, 2019 in forum: General disability topics and advocacy
  9. MyalgicE
    Post

    Australia’s National Health & Medical Research Council’s ME/CFS Advisory Committee’s final report released

    The NHMRC CEO has just released her response to the report. I’ve provided context and history on her main points:...
    Post by: MyalgicE, Oct 24, 2019 in forum: General ME/CFS news
  10. MyalgicE
    Post

    Intra brainstem connectivity is impaired in chronic fatigue syndrome, Barnden et al., 2019

    I might not be up to it but I certainly intent to try!
    Post by: MyalgicE, Oct 23, 2019 in forum: ME/CFS research
  11. MyalgicE
    Post

    Intra brainstem connectivity is impaired in chronic fatigue syndrome, Barnden et al., 2019

    Will definitely ask why as I’m interested to know. Might be patronising of me to explain that to the authors of the ICC and CCC and their colleagues!
    Post by: MyalgicE, Oct 23, 2019 in forum: ME/CFS research
  12. MyalgicE
    Post

    Applications open for Australian government’s $3m ME/CFS grant

    Moderator note: merged thread In a hearing today, Senator Steele-John asked NHMRC CEO how they would screen out studies that look for...
    Post by: MyalgicE, Oct 23, 2019 in forum: ME/CFS research news
  13. MyalgicE
    Post

    Intra brainstem connectivity is impaired in chronic fatigue syndrome, Barnden et al., 2019

    Surprised that they selected cohort using Fukuda criteria rather than CCC or ICC.
    Post by: MyalgicE, Oct 23, 2019 in forum: ME/CFS research
  14. MyalgicE
    Post

    Solve ME/CFS Initiative Community Advisory Council

    Bit different: short-term government-appointed committee and was only about developing a report for government. Had a few CBT/GET proponents on it...
    Post by: MyalgicE, Oct 22, 2019 in forum: Advocacy Projects and Campaigns
  15. MyalgicE
    Post

    Australia: News from the Mason Foundation

    Unless Lloyd et al change their current view that MECFS = spectrum of fatigue... https://www.ncbi.nlm.nih.gov/pubmed/30741357/
    Post by: MyalgicE, Oct 21, 2019 in forum: News from organisations
  16. MyalgicE
    Thread

    Anyone else’s submission to NHMRC (Australia) missing from website?

    A few people have reported that they made submissions to the NHMRC (Australia) on the draft advisory committee report, but their submission is...
    Thread by: MyalgicE, Oct 21, 2019, 1 replies, in forum: General Advocacy Discussions
  17. MyalgicE
    Post

    Australia - Mason Foundation to investigate viability of ME/CFS Biobank - update - funding awarded for biobank

    I asked Prof Fisher about this and he said people can self-diagnose then they will be looking for those who meet CCC:...
    Post by: MyalgicE, Oct 21, 2019 in forum: ME/CFS research news
  18. MyalgicE
    Post

    Australia: News from the Mason Foundation

    So good to see them asking for CCC or ICC criteria, especially after we were petitioning them back in 2016 about funding Lloyd’s CBT/GET training...
    Post by: MyalgicE, Oct 21, 2019 in forum: News from organisations
  19. MyalgicE
    Thread

    Food tastes too sweet?

    Recently food is tasting too sweet. Vegetables taste like they’ve been coated in sugar. Making eating more difficult. My basic research hasn’t...
    Thread by: MyalgicE, Oct 12, 2019, 3 replies, in forum: General and other signs and symptoms
  20. MyalgicE
    Post

    News from Aotearoa/New Zealand and the Pacific Islands

    It’s good. I’d suggest taking out ‘and around the world’ out of the first line. Giving the impression NZ is lagging might be more effective than...
    Post by: MyalgicE, Oct 7, 2019 in forum: Regional news
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