Interesting to see if it picks up whether participants are affected by orthostatic intolerance.
We know the APPG on ME is planning to do a report on severe/very severe this year. Probably a good question for this meeting would be to ask...
Cheers for your help like many here I only ever experience Reddit through posts here and even then I don’t go beyond the actual post. I’m not a...
Ok thanks I have never heard of that before
YMMV?
Genius
The only value is these people with Long Covid are coming up with exactly the same issues people with ME/CFS have been highlighting for years....
Impressed they are actually doing this and it should be done next year
:broken_heart:
That is a weird question from Chris Ward
Strong coffee kept me going through several years of undiagnosed mild ME/CFS I ended up with significant sleep issues and worsening of symptoms to...
I seem to remember the previous Brighton MP was connected to the Sussex C Barton group so presumably that’s the case with this MP
If you’re on any social media you could just share stuff like this without adding any message.
I can’t take nsaids because I’m on anti hypertension meds. I rely on paracetamol for pain relief I take it every day and it doesn’t have any...
Thread here...
Alcohol intolerance is definitely beneficial
Yes. This has been a factor in a rubbish week for me.
Yes the Manchester Evening News did a better job with their article than the Liverpool Post 2 years ago
Just to note here that even though I’m taking semaglutide jabs for weight loss and my appetite is reduced I still get carb cravings cutting...
What is your current severity? Moderate. My score on FUNCAP is 3.4 -3.6 usually with varying levels in the different areas What triggers PEM?...
Separate names with a comma.
