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  1. NelliePledge

    Diagnostic labels in functional disorders 2026 Novak

    It’s not the name it’s the concept :rolleyes:
  2. NelliePledge

    UK Government Delivery Plan for ME/CFS, published 22nd July 2025

    I think it committed to NHS reviewing the situation for very severe I don’t think there was anything specific.
  3. NelliePledge

    UK Action for ME Big Survey 2025 - closes 27/1/26 (UK residents only)

    I would be surprised if any did
  4. NelliePledge

    Alcohol Intolerance poll. Please do the poll even if your answer is no.

    That’s a decent wine. Pinot noir is a lighter red. Maybe regift it. You could use it to make a casserole if you eat chicken or beef.
  5. NelliePledge

    Action for ME: "How can we manage our wellbeing when interacting with others online"

    it’s worth everyone bearing in mind that anyone, especially here, can be having a worse than usual day. I know from my own experience that I can be grumpy at times and this makes my filter less effective. Probably most of us have had rants Thank goodness we do have functioning rules and...
  6. NelliePledge

    Why some people with ME/CFS react more strongly to medications

    Some medications we get prescribed have common side effects eg I’ve posted before about pregabalin, I found it very sedating but it also gave me internal tremor which was so scary I stopped taking it. Some years later chatting with a sibling who doesn’t have ME but had also been prescribed...
  7. NelliePledge

    Trial By Error: 'An Essay on Living with Severe ME'

    and is a lesson people with moderate ME can definitely take from severer people
  8. NelliePledge

    Why ME/CFS and Long COVID Activism in Germany Has Been Relatively Successful - blog, 2026, Strottman

    There were beds used in Millions Missing we had a couple of people in Nottingham in 2019. We hadn’t heard anything from any MPs in our local Facebook group but one actually turned up on the day as he’d been contacted about it. I definitely support well organised protest as well as meeting type...
  9. NelliePledge

    Post-COVID Rehabilitation Outcomes: A Comparative Cohort Study, 2025, Prüfer et al.

    I don’t need someone to tell me to do strength training I empty my shopping into the cupboards I fill up my log basket from the log pile in the garage, I fill and empty the dishwasher I do all my own laundry moving stuff up and down stairs. Not every day but regularly. If I have more capacity...
  10. NelliePledge

    Why ME/CFS and Long COVID Activism in Germany Has Been Relatively Successful - blog, 2026, Strottman

    My impression from what I’ve seen posted on the forum is that psychosomatic thinking has plenty of proponents in Germany in hospitals and research. it seems is a bit more blatant even having psychosomatic departments, than in the UK who are into euphemisms and hiding things behind Persistent...
  11. NelliePledge

    Aripiprazole - Abilify

    So you’re still having side effects six years after stopping. I’m sorry that you’re still experiencing that.
  12. NelliePledge

    2025-2026 Norwegian chronic fatigue guidelines - draft published

    Well as @Sly Saint said up thread Deja vu
  13. NelliePledge

    Stigma in functional neurological disorder; a longitudinal study 2026 Mcloughlin et al

    Does anyone other than Stone (and his et al) publish papers on FND?
  14. NelliePledge

    There aren’t any answers, we are looking for them and will support you until we find them

    support can include help with daily living basics which I don’t think medical care covers
  15. NelliePledge

    Demarcation between science and pseudoscience: Still a Problem?

    Tripe used to be used regularly on the forum maybe time to bring it back ;)
  16. NelliePledge

    Why Chronic Illness Patients Feel Safer Talking to AI Than to Doctors

    From this I take that AI removes the tone of voice, eye rolling, laughing at suggestion I’ve received from in person GP interaction. The misleading of saying to your face we don’t do GET by CFS clinic staff. It wouldn’t remove the dismissal or downplaying inherent in the wording eg churning...
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