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  1. NelliePledge
    Post

    Open impact of chronic fatigue syndrome CFS/ ME on identity construction among young adults

    Is there a protocol document
    Post by: NelliePledge, Apr 19, 2024 at 12:29 AM in forum: Recruitment into current ME/CFS research studies
  2. NelliePledge
    Post

    Opinion: ‘You don’t want to get better’: the outdated treatment of ME/CFS patients is a national scandal - George Monbiot

    Yes excellent stuff @dave30th That SMC angle could be useful. I wonder if private eye would pick up on it. Obviously their medical person is an...
    Post by: NelliePledge, Apr 18, 2024 at 3:49 PM in forum: General ME/CFS news
  3. NelliePledge
    Post

    Sense about Science: Join our talks on science, scepticism and free speech (Garner et al)

    I wonder if those attending will be able to ask questions?
    Post by: NelliePledge, Apr 17, 2024 at 5:39 PM in forum: Other psychosomatic news and research
  4. NelliePledge
    Post

    News from France

    Paris Match covering behind paywall the case of a 9 year old girl with ME/CFSwhi is subject to a legal case to be placed in a foster home...
    Post by: NelliePledge, Apr 17, 2024 at 4:51 PM in forum: Regional news
  5. NelliePledge
    Post

    Wellness Recovery Action Plan, as recommended by BACME, UK

    I can add that area has no service commissioned for me/cfs so the “wellness recover” plan is not based on any use with PWME
    Post by: NelliePledge, Apr 16, 2024 at 12:41 AM in forum: Psychosomatic theories and treatments discussions
  6. NelliePledge
    Post

    Somatic symptom distress is not related to cardioceptive accuracy 2024 Petzke et al

    I guess it’s useful for quoting
    Post by: NelliePledge, Apr 15, 2024 at 1:46 PM in forum: Other psychosomatic news and research
  7. NelliePledge
    Post

    Neurology Update Meeting 2023 – FND in focus (Ireland with international speakers)

    Oh dear the tentacles reach far and wide
    Post by: NelliePledge, Apr 15, 2024 at 1:45 PM in forum: Other psychosomatic news and research
  8. NelliePledge
    Post

    United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

    Re-educating the body and increasing tolerance for activities It is not fear of activity...
    Post by: NelliePledge, Apr 15, 2024 at 1:43 PM in forum: News from organisations
  9. NelliePledge
    Post

    United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media

    Seconded, strength to your arm
    Post by: NelliePledge, Apr 14, 2024 at 5:49 PM in forum: General ME/CFS news
  10. NelliePledge
    Post

    United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

    How to be perceived as delivering NICE 21
    Post by: NelliePledge, Apr 14, 2024 at 3:36 PM in forum: News from organisations
  11. NelliePledge
    Post

    Psychological flexibility in somatic symptom and related disorders: A case control study 2024 Selker et al

    :banghead:
    Post by: NelliePledge, Apr 12, 2024 in forum: Psychosomatic research - ME/CFS and Long Covid
  12. NelliePledge
    Post

    MEA are updating their Disability Rating Scale - they are asking for comments on current version

    I think there’s something wrong with the pdf formatting the headings and sub headings don’t work properly when text is split by a page break
    Post by: NelliePledge, Apr 11, 2024 in forum: General ME/CFS news
  13. NelliePledge
    Post

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    I was working part time and had to reduce work by 1/3 to keep going to the cfs clinic group I couldn’t manage it as an additional active day.
    Post by: NelliePledge, Apr 10, 2024 in forum: ME/CFS research news
  14. NelliePledge
    Post

    Monitoring app - Visible - a platform "designed for any invisible illness that benefits from resting and pacing - including ME/CFS & Long Covid."

    I haven’t got an allowance. But I have reduced the activity that I do on a minimum day. Washing using wet wipes or flannel rather than a shower....
    Post by: NelliePledge, Apr 10, 2024 in forum: Monitoring and pacing
  15. NelliePledge
    Post

    Post-Exertional Malaise - a discussion including defining and measuring PEM

    Ok thanks I imagine that’s not one many are familiar with
    Post by: NelliePledge, Apr 10, 2024 in forum: Post-Exertional malaise and fatigue
  16. NelliePledge
    Post

    Post-Exertional Malaise - a discussion including defining and measuring PEM

    Not familiar with the acronym MET
    Post by: NelliePledge, Apr 9, 2024 in forum: Post-Exertional malaise and fatigue
  17. NelliePledge
    Post

    Monitoring app - Visible - a platform "designed for any invisible illness that benefits from resting and pacing - including ME/CFS & Long Covid."

    Hi @MrMagoo I’ve only got the free version so don’t know about the daily allowance and how that’s calculated are you cutting out some activities...
    Post by: NelliePledge, Apr 9, 2024 in forum: Monitoring and pacing
  18. NelliePledge
    Post

    Opinion 'Long covid' and how medical information is causing illness: A philosophical issue affecting public health, 2023, Garner, Vogt

    He should try taking a look at the wolf in sheep’s clothing psychosomatic philosophy of medicine.
    Post by: NelliePledge, Apr 9, 2024 in forum: Psychosomatic research - ME/CFS and Long Covid
  19. NelliePledge
    Post

    United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media

    I think that change only happens when a range of pressures are put onto the decision makers. I think the Millions Missing protests made a big...
    Post by: NelliePledge, Apr 9, 2024 in forum: General ME/CFS news
  20. NelliePledge
    Post

    Trial Report Exploring the content validity of the Chalder Fatigue Scale using cognitive interviewing in an ME/CFS population, 2024, Gladwell

    This questionnaire has been in use by these people for decades yet only now they are seeing any problems or challenging it. If this paper had...
    Post by: NelliePledge, Apr 7, 2024 in forum: ME/CFS research
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