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  1. theJOYdecision
    Post

    Efficacy, side effects and withdrawal effects of carnitine

    Exactly! You absolutely understand my concern. I might see how functional I am over the next week without it, compare my sympathetic nervous...
    Post by: theJOYdecision, Jan 28, 2020 in forum: Drug and supplement treatments
  2. theJOYdecision
    Post

    Efficacy, side effects and withdrawal effects of carnitine

    I’m gradually experimenting with acetyl l carnitine capsules. I am feeling better. More mental clarity. More ability to sit down and focus on a...
    Post by: theJOYdecision, Jan 27, 2020 in forum: Drug and supplement treatments
  3. theJOYdecision
    Post

    "The motivations behind science denial", 2019, McLintic (CFS mentioned)

    Would a quiet email to the corresponding author be appropriate? To ask what science denial they are referring to in regards the CFS and perhaps...
    Post by: theJOYdecision, Oct 28, 2019 in forum: General ME/CFS news
  4. theJOYdecision
    Thread

    Paradigm shift to disequilibrium in the genesis of orthostatic intolerance in patients with chronic fatigue syndrome (2019) Miwa

    Paradigme shift to disequilibrium in the genesis of orthostatic intolerance in patients with chronic fatigue syndrome K Miwa European Heart...
    Thread by: theJOYdecision, Oct 27, 2019, 13 replies, in forum: ME/CFS research
  5. theJOYdecision
    Post

    A potential S4ME project: What are the basic science facts that ME advocates need to know and understand?

    It’s my opinion that one of the best things an advocacy agency can do when approaching the science is to be very clear about the category of...
    Post by: theJOYdecision, Oct 7, 2019 in forum: Advocacy Projects and Campaigns
  6. theJOYdecision
    Post

    A potential S4ME project: What are the basic science facts that ME advocates need to know and understand?

    Would this resource be available to international ME advocacy groups? ME Awareness NZ would almost certainly make use of such a resource. And with...
    Post by: theJOYdecision, Oct 6, 2019 in forum: Advocacy Projects and Campaigns
  7. theJOYdecision
    Post

    Calling all physicists/science people

    Hehehe! Such a way with words. :emoji_laughing:
    Post by: theJOYdecision, Sep 6, 2019 in forum: Other treatments
  8. theJOYdecision
    Post

    A study I want someone to do

    That would be interesting. I am very aware that cognition burns a lot of energy. Study often left me tired when I was healthy. Now it’s even more...
    Post by: theJOYdecision, Sep 6, 2019 in forum: ME/CFS research
  9. theJOYdecision
    Post

    Feeling of lacking air.?

    Air hunger is a symptom I experience with ME. I don’t associate it with winter tho. Some days I’m having a good reasonably PEM-free day, just...
    Post by: theJOYdecision, Sep 6, 2019 in forum: General and other signs and symptoms
  10. theJOYdecision
    Post

    US ME/CFS Clinician Coalition: Guideline - Diagnosing and Treating ME/CFS, 2019, and new website 2020

    @Medfeb :party::emoji_clap: I affirm the feedback @Ravn has given. The main issue for me is the possibility of missing mild cases when there is...
    Post by: theJOYdecision, Sep 5, 2019 in forum: Resources
  11. theJOYdecision
    Post

    US ME/CFS Clinician Coalition: Guideline - Diagnosing and Treating ME/CFS, 2019, and new website 2020

    I think you have to take into account what the document is and what it isn’t. The document is an extremely brief diagnostic assist for clinicians....
    Post by: theJOYdecision, Sep 3, 2019 in forum: Resources
  12. theJOYdecision
    Post

    M.E. Awareness NZ launches website

    If anyone is willing, we wouldn’t mind a few eyes reading the following page currently being edited. Looking out for obvious errors or...
    Post by: theJOYdecision, Aug 20, 2019 in forum: Advocacy Projects and Campaigns
  13. theJOYdecision
    Post

    Changes in the transcriptome of circulating immune cells of a NZ cohort with ME/CFS (2019) Sweetman et al

    If anyone has any insight regarding how to explain this study to laypeople, I’m keen to hear suggestions. It is for this page currently being...
    Post by: theJOYdecision, Aug 20, 2019 in forum: ME/CFS research
  14. theJOYdecision
    Post

    Michigan State Medical Society CMEs

    M.E. Awareness NZ is investigating whether New Zealand GPs can do these CME. If anyone has any thoughts about them, recommendations, or even...
    Post by: theJOYdecision, Aug 4, 2019 in forum: ME/CFS research news
  15. theJOYdecision
    Post

    New poor Guardian article "ME and the perils of internet activism" 28th July 2019

    Yay that’s awesome! I made another more serious one. Didn’t know how to emphasis the humour without getting wordy so worded it for impact instead....
    Post by: theJOYdecision, Jul 29, 2019 in forum: General Advocacy Discussions
  16. theJOYdecision
    Post

    New poor Guardian article "ME and the perils of internet activism" 28th July 2019

    Throw that into the Member Only discussion over here...
    Post by: theJOYdecision, Jul 29, 2019 in forum: General Advocacy Discussions
  17. theJOYdecision
    Post

    New poor Guardian article "ME and the perils of internet activism" 28th July 2019

    My mum made her first MEME... or at least we killed ourselves laughing when she described it and I made it for her. Original images are royalty...
    Post by: theJOYdecision, Jul 29, 2019 in forum: General Advocacy Discussions
  18. theJOYdecision
    Post

    Psychology Today blog - The Dark Side of Social Media Activism in Science, 2019, S. Camarata

    I have recently made a resource to be edited and added to regarding Professional Codes of Conduct/Ethics for relevant fields....
    Post by: theJOYdecision, Jul 29, 2019 in forum: Psychosomatic news - ME/CFS and Long Covid
  19. theJOYdecision
    Post

    New poor Guardian article "ME and the perils of internet activism" 28th July 2019

    I have recently made a resource to be edited and added to regarding Professional Codes of Conduct/Ethics for relevant fields....
    Post by: theJOYdecision, Jul 29, 2019 in forum: General Advocacy Discussions
  20. theJOYdecision
    Post

    The IDO Metabolic Trap Hypothesis for the Etiology of ME/CFS 2019 Kashi, Davis, Phair.

    This is a question I also have and would love to know more about. The only chemistry I studied in my undergraduate was when cognitive psych was...
    Post by: theJOYdecision, Jul 27, 2019 in forum: ME/CFS research
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