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It's tempting to think they may have selected out professional participants with a known link to non-professional interested parties. Behaving in the way they do sadly lays them open to suspicion and conspiracy theories.

My friend, a professional, also not allowed in. It would be interesting to know who was.

I'm signed up for the Wed ME & Thurs LC sessions. A friend is signed up for today's professionals session. She received an e-mail around 2pm today saying participants can't share the recording of today's session without permission.

Presumably the authors would also state that we need trials of ingestion of bleach as a potential treatment for Covid. And in the meantime, let us not discourage patients from accessing what may be a helpful treatment.

The BBC article: Mental health problems including depression, anxiety and struggling to think clearly, have also been reported. Brain fog is not a mental health problem. It is listed as a neurological symptom in the Long Covid NICE Guidelines while depression & anxiety are listed as...

This post and the ensuing discussion has been moved from this thread: Possibility of ME or PVFS after COVID-19, Long Covid Long Covid: ‘Is this now me forever?’ Article in the Guardian today OK at first, becomes depressing, distressing, awful.

She's trying some oral re-hydration solution (water, sugar & salt) which I made from an internet recipe, & she's just had some rice which she seemed to tolerate quite well earlier in this illness. I've also just talked to her about going to a&e if the rice goes straight through her.

My partner has had ME 4.5 years, beginning with shingles. It's always been mild, she gave up work but managed a restricted life. She's never had any indication of gut issues (all test results indicated very good gut function) but she lost a lot of weight in a slow slide over about 18 months to...

This may have been considered and rejected, but it would be possible to raise funds in pounds from UK supporters through a JustGiving crowdfunding page. The page needs to be set up by a UK resident who has a UK current account to receive the funds. More info here...

MillionsMissing London Portland Place - Outside the BBC 12th May 2018 2pm - 5pm Keep in touch with the event at the MillionsMissing London 2018 Facebook page. We made a little video to publicise our event & it's been shared around the world:

Does anyone know why PACE, which has had such terrible repercussions for huge numbers of people in the UK & across the world, only gets 1/2 hour, while Recruitment and retention of NHS staff in Oxfordshire gets three times as long? Is it the luck of the draw? 9.30am Westminster Hall debate The...

@Esther12 Why? As in, why do we need to understand self-serving willful misunderstanding of simple things as anything more than what it is?