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  1. Philipp
    Post

    German federal agencies (BMG and BMBF) taking initiatives for ME/CFS

    I cannot answer any question regarding how those grants work, but I wanted to mention that I would not be inherently concerned by the sentence...
    Post by: Philipp, Oct 14, 2020 in forum: General ME/CFS news
  2. Philipp
    Post

    Three principles/innate health: The efficacy of psycho-spiritual mental health education for people with CFS, 2020, El-Mokadem et al

    At least they make it clear they are all about the psycho-spiritual aspect of mental health offering education, not the somatopsychological aspect...
    Post by: Philipp, Oct 13, 2020 in forum: Psychosomatic research - ME/CFS and Long Covid
  3. Philipp
    Post

    BMJ letter from LongCovid doctors.

    It is incredibly telling that he: a) Seems to think anybody knows their daily PEM threshold on any given day (as if that wouldn't fluctuate...
    Post by: Philipp, Oct 1, 2020 in forum: Long Covid news
  4. Philipp
    Post

    Does your ME feel like your initial infection?

    For roughly the first decade I would've said yes (same exact thing as in the OP, my GP actually did call it chronic mononucleosis - but then...
    Post by: Philipp, Sep 30, 2020 in forum: General and other signs and symptoms
  5. Philipp
    Post

    Fatigatio digital symposium in Hannover, 19 September 2020

    Does anybody know why Prusty's talk is unavailable on youtube? It was the one I really wanted to rewatch because It was way over my head... Both...
    Post by: Philipp, Sep 28, 2020 in forum: General Advocacy Discussions
  6. Philipp
    Post

    News from Germany

    Probably? English is hard nowadays... I meant to say something along the lines of 'taking it apart on an intellectual level'. Sorry if what I...
    Post by: Philipp, Sep 2, 2020 in forum: Regional news
  7. Philipp
    Post

    News from Germany

    I've actually gotten around to really reading the first bits instead of using it to look up references and I must admit I do feel compelled to...
    Post by: Philipp, Sep 2, 2020 in forum: Regional news
  8. Philipp
    Post

    Research underway related to Long Covid

    I hate that we apparently have to add 'personalized' to the long list of words that now mean something in between 'making it up as we go' and...
    Post by: Philipp, Sep 2, 2020 in forum: Long Covid news
  9. Philipp
    Post

    Signs of Intracranial Hypertension, Hypermobility and Craniocervical Obstructions in patients with ME/CFS (Pre-print 2019/published 2020) Bragée et al

    I just don't... get Jen & Julie here. JE's position, as far as I have understood, is basically that the bias in selecting patients for the...
    Post by: Philipp, Aug 31, 2020 in forum: ME/CFS research
  10. Philipp
    Post

    Graded exercise therapy doesn’t restore the ability to work in ME/CFS. Rethinking of a Cochrane review, 2020, Vink & Vink-Niese

    Isn't it actually impossible to create reliable evidence that treatments cause harm (at least intentionally) because it would be unethical by...
    Post by: Philipp, Jul 22, 2020 in forum: Psychosomatic research - ME/CFS and Long Covid
  11. Philipp
    Post

    Normal muscle strength and fatiguability in patients with effort syndromes, 1988, Stokes at al

    Holy nonsequitur batman, I realize people who are not exercise physiologists tend to occasionally oversimplify things from that are but this is on...
    Post by: Philipp, Jul 9, 2020 in forum: Historical Documents
  12. Philipp
    Post

    Who is Simon Wessely?

    I think this actually makes for an interesting talking point that is a bit... well, meta on where and when opinions and the way different people...
    Post by: Philipp, Jun 30, 2020 in forum: Psychosomatic news - ME/CFS and Long Covid
  13. Philipp
    Post

    The Times: Chronic fatigue syndrome: ME families accused of child abuse

    The point that FII needs to be taken serious is a valid one in general, and it is valid to potentially over-react to every suspected case of FII...
    Post by: Philipp, Jun 24, 2020 in forum: General ME/CFS news
  14. Philipp
    Post

    News from Germany

    Personal: Thank god you can speed up to 2x on youtube vids so you can get triggered by her saying 'CFS syndrome' without investing more than 10...
    Post by: Philipp, May 5, 2020 in forum: Regional news
  15. Philipp
    Post

    Intravenous Cyclophosphamide in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. An Open-Label Phase II Study - 2020 - Rekeland, Mella, Fluge et al

    What @Trish suggested sounds like a really good idea to me. I hope someone is up to that! Thank you again for your insight! It is quite frankly...
    Post by: Philipp, Apr 30, 2020 in forum: ME/CFS research
  16. Philipp
    Post

    Intravenous Cyclophosphamide in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. An Open-Label Phase II Study - 2020 - Rekeland, Mella, Fluge et al

    This seems pretty interesting, especially with the 70% still in remission after 4 years. I guess we should keep in mind that the unblinded Ritux...
    Post by: Philipp, Apr 30, 2020 in forum: ME/CFS research
  17. Philipp
    Post

    Human Herpesvirus-6 Reactivation, Mitochondrial Fragmentation, and the Coordination of Antiviral and Metabolic Phenotypes in ME/CFS - 2020 - Schreiner

    Could you expand a bit on what makes you say that? Less for me personally (any explanation will go over my head anyway) but more to make your...
    Post by: Philipp, Apr 24, 2020 in forum: ME/CFS research
  18. Philipp
    Post

    Coronavirus - worldwide spread and control

    Well, we had Sir Simon explicitly tweet out that he doesn't have to self-isolate because he doesn't have symptoms after his wife got sick. And...
    Post by: Philipp, Mar 16, 2020 in forum: Epidemics (including Covid-19, not Long Covid)
  19. Philipp
    Post

    L-carnitine, tryptophane and d-ribose

    Sure, all the time. And by 'all the time' I mean I take LCF 'everyday'... I remember to take it so realistically every 2-3 days and Ribose on...
    Post by: Philipp, Mar 13, 2020 in forum: Drug and supplement treatments
  20. Philipp
    Post

    L-carnitine, tryptophane and d-ribose

    For what it is worth, L-Carnitine Fumarate is probably my one Supplement for the lonely island. 500mg+ on an empty stomach, makes the difference...
    Post by: Philipp, Mar 12, 2020 in forum: Drug and supplement treatments
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