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Lovely to hear of the Forget ME Not idea. My new garden has lots and I was thinking of creating an area with blue flowers, designated to ME patients and those who have passed. As I left my old garden they were the flower I noticed growing at the front door and my thoughts were exactly that...

I would like to add that when I started with symptoms, I had terrible facial pain and burning mouth. My GP said the nerve endings in my face were inflamed. This settles but is still there. I have all the symptoms of ME but infections cause me to become confused if not dealt with immediately. I...

A very tragic death for this poor girl and at such a young age. Her family must be devastated but relieved to have Merryn's death attributed directly to ME. I'm so sorry for them all but I too appreciate their story being told. I'm very grateful to hear that she will live in our minds as a...

Hi thanks to all for the information. I'll read up when able. Yesterday I caught the back half of a programme, 'Health Truth or Scare' (I think it was called), which happened to be discussing Antacids PPIs. Apparently all GPs in the UK are now reviewing anyone who has been on them for a long...

Just one more issue. Health care is being removed from the hands of doctors and placed into IAPTS in conjunction with new recording systems, gathering our health information for sharing with the IAPTS and outsourced private companies. I don't have the links in previous conversations on this...

I think the only way I can summarise is to say the UK are adopting the US style health service. I'm not fully aware of what that involves but don't like the sound of health insurance at all. I know that clinics providing multidisciplinary treatments are becoming established and the strong push...

Thanks everyone, I have not been well lately so difficult to keep posting but often want to try. It's good to read all your posts and keep up with what is happening. Thank you all for your insights and generally keeping us all informed.

Hedgehog sorry for delay, I've not been too well. It's best if you read up un probiotics from many former discussions as not all can help or help different people. As far as esomeprazole goes, I have hiatus hernia and therefore it helps me. It was long after I started on it that I was waking...

Is there a list of MUTs i.e. Medically Unexplained Trials? Just a suggestion. I've heard of a young person going through all the treatments to prepare for stem cell treatment and then refusing, as they had been convinced that complementary treatments would cure them. Even though all the...

Apologies. It should have been CMO for Swiss Re. Eyes and brain don't always connect, but I wonder if there is still influence there. I hope AfME are now doing the right thing. Worries me that other charities are not available to view or have comments.

I have never been diagnosed with gastroparesis but was told the Esomeprazole was to move things through my stomach, after 2 other antacids didn't work. Taking at night has helped a great deal, but I find carbohydrates very difficult to digest and try to avoid as much as possible. Sweetcorn...

Is it anything to do with CEO of Swiss Health Insurance Company Michael Sharpe? Please correct me if I'm wrong but have read that is the position he now holds. I'm now wondering if it was Peter White after he retired. Does anyone know and what significance it may have please?