The issue with the email has been fixed. As for replies, I think they’re being flooded with emails and things, which is slowing down responses.
Thanks for highlighting the issue with the email account. I’ll provide NHMRC with the feedback that there’s an incorrect email address on some of...
Merged As most of you are aware, the Australian government has funded the development of new Australian clinical guidelines for ME/CFS. This...
A Parliamentary Friends of ME/CFS meeting was held in Canberra yesterday. The Federal Minister for Health and Aged Care, Mark Butler, spoke, along...
Thanks! I’ll have a look for those
Hi everyone, Emerge Australia is looking at revamping some of our resources (including our online forum) to make them more friendly for people...
We’ve been sitting on this information, itching to be able to share it! This is a huge win for us! Finally, Australians with ME/CFS will get...
Good question. I’m not sure. I’m not aware of him having run a clinic or anything. His bio consistently says he worked as a part time GP for...
Sadly, they have all the evidence. A year ago, we got wind that the committee was considering whether to update the guide, so Emerge and other...
Thanks, Hutan. We are definitely working on this behind the scenes.
Worse than stuck in the dark ages. It’s sneakily trying to entrench the dark ages. There are so many bad bits here (like they just rename GET as...
Emerge Australia hosted an event at Parliament House in Canberra today. There were a wide range of speakers (including little old me). Details of...
Does anyone have a PDF of the updated Best Practice page?
Great questions! I’ll try to address them as best I can (I’m not working on the registry): - Building on the registry: expanding on the...
Unfortunately (or fortunately, depending on how you look at it) this story is not true, and based on misinformation. Annika Wells has made...
Thanks, Trish. It’s unfortunate that the episode is so long (both for me recording it, and for everyone listening).
Thanks, Ravn. I’m glad you liked it. The interview was recorded a few weeks ago, so I’ve recovered now. :) I included the PEM voice addendum...
Recently I was interviewed for Emerge’s new podcast series. I was asked about my life with ME/CFS, what I’ve learned, and how I cope. I did my...
The first round of the Medical Research Future Fund grants for Long COVID were opened today. This is $14m of the allocated $50m for Long COVID....
Not to mention the fact that they still refuse to acknowledge any possible risk of harm.
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