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  1. chicaguapa
    Post

    Post-Exertional Malaise - a discussion including defining and measuring PEM

    @Jonathan Edwards Are you saying that PEM is not what the CPET measures and PEM is something else, or more than, an abnormal physiological...
    Post by: chicaguapa, Jul 16, 2020 in forum: Post-Exertional malaise and fatigue
  2. chicaguapa
    Post

    Post-Exertional Malaise - a discussion including defining and measuring PEM

    I’ve probably addressed this in my follow up post below, but obviously if sometimes her PEM came on up to 3 days later, we wouldn’t think a test...
    Post by: chicaguapa, Jul 16, 2020 in forum: Post-Exertional malaise and fatigue
  3. chicaguapa
    Post

    Post-Exertional Malaise - a discussion including defining and measuring PEM

    Not sure about that. But it’s the increase in anaerobic threshold (AT) after exertion that I thought was most significant, when previously it had...
    Post by: chicaguapa, Jul 16, 2020 in forum: Post-Exertional malaise and fatigue
  4. chicaguapa
    Post

    Post-Exertional Malaise - a discussion including defining and measuring PEM

    Discussion split from DecodeME - UK ME/CFS DNA study underway Copied post This confirms that my daughter will likely not be eligible for the...
    Post by: chicaguapa, Jul 12, 2020 in forum: Post-Exertional malaise and fatigue
  5. chicaguapa
    Post

    DecodeME - UK ME/CFS DNA study underway

    This confirms that my daughter will likely not be eligible for the study then, as her CPET results in October showed that she now doesn’t...
    Post by: chicaguapa, Jul 12, 2020 in forum: ME/CFS research news
  6. chicaguapa
    Post

    UK: Locations that offer CPET/VO2max testing

    The Workwell Foundation in the US will write you a brief letter summarising the results for $300, but unfortunately won’t provide a detailed...
    Post by: chicaguapa, Nov 6, 2019 in forum: Laboratory and genetic testing, medical imaging
  7. chicaguapa
    Post

    UK: Locations that offer CPET/VO2max testing

    We did it because we wanted to objectively measure and understand the physiological response to exertion in order to inform our day-to-day...
    Post by: chicaguapa, Nov 6, 2019 in forum: Laboratory and genetic testing, medical imaging
  8. chicaguapa
    Post

    UK Teach Primary Magazine: 'A heavy weight to carry' by Claire Tripp, 2019

    Sounds fab! What council is that? Maybe I can do that with other councils.
    Post by: chicaguapa, Jul 22, 2019 in forum: General ME/CFS news
  9. chicaguapa
    Post

    UK Teach Primary Magazine: 'A heavy weight to carry' by Claire Tripp, 2019

    I sent it to the HT at my daughter’s school and she’s holding off circulating it until September. But she said she was impressed with the fact...
    Post by: chicaguapa, Jul 22, 2019 in forum: General ME/CFS news
  10. chicaguapa
    Post

    UK Teach Primary Magazine: 'A heavy weight to carry' by Claire Tripp, 2019

    Thanks for posting it @Andy.
    Post by: chicaguapa, Jul 21, 2019 in forum: General ME/CFS news
  11. chicaguapa
    Post

    Journalist looking to speak to people with ME/CFS for an article

    Yes, I did! I said almost exactly that. And that it would therefore be very welcome if her article was published in there.
    Post by: chicaguapa, May 30, 2019 in forum: General Advocacy Discussions
  12. chicaguapa
    Post

    Journalist looking to speak to people with ME/CFS for an article

    I spoke to Catherine today. She’s very much on the biological side and said she’s spoken to many medical professionals and none of them subscribe...
    Post by: chicaguapa, May 22, 2019 in forum: General Advocacy Discussions
  13. chicaguapa
    Post

    Journalist looking to speak to people with ME/CFS for an article

    She’s interviewing me on Wednesday and she seems to be doing her research. It sounds promising.
    Post by: chicaguapa, May 18, 2019 in forum: General Advocacy Discussions
  14. chicaguapa
    Post

    Request for help with possible TV documentary on ME

    I would pitch for a short series, with each episode focusing on one aspect of ME; eg. daily life, lack of research, wrong treatments leading to...
    Post by: chicaguapa, May 17, 2019 in forum: Advocacy Projects and Campaigns
  15. chicaguapa
    Post

    May 2019 - Awareness Week including Millions Missing

    Yup! I used it this morning on Radio Solent!
    Post by: chicaguapa, May 13, 2019 in forum: Advocacy Projects and Campaigns
  16. chicaguapa
    Post

    May 2019 - Awareness Week including Millions Missing

    [ATTACH] A few pics from Southampton today. We put down 378 pairs of shoes which grew to over 450 throughout the afternoon. Two city councillors...
    Post by: chicaguapa, May 12, 2019 in forum: Advocacy Projects and Campaigns
  17. chicaguapa
    Post

    May 2019 - Awareness Week including Millions Missing

    We submitted this to them as a completed article. They asked me for something last year after coming down on the day. A community journalist also...
    Post by: chicaguapa, May 11, 2019 in forum: Advocacy Projects and Campaigns
  18. chicaguapa
    Post

    UK Teach Primary Magazine: 'A heavy weight to carry' by Claire Tripp, 2019

    I’m pretty sure, having read the magazine, that it’s based around the English school system. That said, it’s worth me looking for a Scottish...
    Post by: chicaguapa, May 9, 2019 in forum: General ME/CFS news
  19. chicaguapa
    Post

    UK Teach Primary Magazine: 'A heavy weight to carry' by Claire Tripp, 2019

    Excellent! There’s another one coming out at the end of June aimed at Secondary school teachers. The message is broadly the same but has more...
    Post by: chicaguapa, May 9, 2019 in forum: General ME/CFS news
  20. chicaguapa
    Post

    UK Teach Primary Magazine: 'A heavy weight to carry' by Claire Tripp, 2019

    Thanks for posting it @Andy. I was hoping they’d put it online and now both the magazine and Teachwire have tweeted it as well. I’m sure this is...
    Post by: chicaguapa, May 9, 2019 in forum: General ME/CFS news
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