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  1. Emsho
    Post

    Scotland - National Action Plan on Neurological Conditions (Draft for consultation) 2019-2024

    Yes, will try and remember to post here when published.
    Post by: Emsho, Jan 16, 2019 in forum: Advocacy Action Alerts
  2. Emsho
    Post

    First Uk party policy on ME?

    I can't take credit! All down to the Emma Walker and her friend, we (MEAction Scotland) just advised/worked with them on it. @Goldfinch pretty...
    Post by: Emsho, Sep 10, 2018 in forum: Advocacy Projects and Campaigns
  3. Emsho
    Thread

    First Uk party policy on ME?

    At #MEAction Scotland one of our projects is getting political parties to adopt party policies on ME. This means if they get into power, they...
    Thread by: Emsho, Sep 8, 2018, 16 replies, in forum: Advocacy Projects and Campaigns
  4. Emsho
    Post

    Anyone From Around the World Can Submit EVIDENCE OF HARM Caused by CBT/GET to Scottish Parliament

    We’ve asked Dr Tuller to submit evidence, this call out is for people to submit their personal stories of harm of GET/CBT, to back up the...
    Post by: Emsho, Jul 29, 2018 in forum: Petitions
  5. Emsho
    Post

    Symptom diary

    Thanks @Amw66 and @arewenearlythereyet will check them out :)
    Post by: Emsho, Jul 29, 2018 in forum: Home adaptations, mobility and personal care
  6. Emsho
    Post

    Symptom diary

    Hadn't realised there might be apps for this sort of thing, thank you for the recommendation! Oops! Have edited :laugh:.
    Post by: Emsho, Jul 28, 2018 in forum: Home adaptations, mobility and personal care
  7. Emsho
    Thread

    Symptom diary

    Any ideas on the best format/method for keeping track of symptoms? Inspired by a post by @JaimeS about the need to keep a symptom diary, realise...
    Thread by: Emsho, Jul 28, 2018, 10 replies, in forum: Home adaptations, mobility and personal care
  8. Emsho
    Post

    Submission to the Scottish Parliament by Jonathan Edwards

    Thank you both! @Amw66 and @Dx Revision Watch
    Post by: Emsho, Jul 19, 2018 in forum: Open Letters and Replies
  9. Emsho
    Post

    Submission to the Scottish Parliament by Jonathan Edwards

    Not yet! Still expecting a lot more submissions and want to see what others says before we decide how to phrase our response. Problems with PACE...
    Post by: Emsho, Jul 15, 2018 in forum: Open Letters and Replies
  10. Emsho
    Post

    Submission to the Scottish Parliament by Jonathan Edwards

    David Wilks was a centre leader during PACE, he was seen as the "ME specialist" in Lothians, and Sheena Spence (physiotherapist) was also involved...
    Post by: Emsho, Jul 15, 2018 in forum: Open Letters and Replies
  11. Emsho
    Post

    Simon Wessely Didn't Want His e-Mail On A Blog - Here It Is on Hole Ousia

    I think this might be related to the following, i.e the problems people with depression have with Wessely and co I was contacted by a patient...
    Post by: Emsho, Jul 14, 2018 in forum: Other health news and research
  12. Emsho
    Post

    Submission to the Scottish Parliament by Jonathan Edwards

    Fantastic to have your support @JonathonEdwards and thanks again for writing such a great submission. I thought people interested in this topic...
    Post by: Emsho, Jul 14, 2018 in forum: Open Letters and Replies
  13. Emsho
    Post

    #MEAction: Volunteer of the Month: a Scottish Trio

    Thanks @Andy and @Melanie ironically come during a quieter month! :asleep::asleep:
    Post by: Emsho, Jun 30, 2018 in forum: General ME/CFS news
  14. Emsho
    Post

    UK 7 June 2018 | MSPs discuss ME treatment on Holyrood Live

    I’m not sure how to do that! Although might wait til we have deadline confirmed. Provisional time frame we’ve been given is approx 4-6 weeks @Andy
    Post by: Emsho, Jun 7, 2018 in forum: General ME/CFS news
  15. Emsho
    Post

    UK 7 June 2018 | MSPs discuss ME treatment on Holyrood Live

    Yes, managed to get contact details yesterday, so have sent him a message. And fab thank you :)
    Post by: Emsho, Jun 7, 2018 in forum: General ME/CFS news
  16. Emsho
    Post

    UK 7 June 2018 | MSPs discuss ME treatment on Holyrood Live

    Thanks for the comments @Trish @Sean @Amw66 and @Sasha :) and @Andy for posting all the updates. Inevitably I forgot to mention things I really...
    Post by: Emsho, Jun 7, 2018 in forum: General ME/CFS news
  17. Emsho
    Post

    Science for ME PACE Briefing document

    Thanks for making a brilliant PACE briefing! I've asked a S4ME committee member if I can give it to Scottish Parliament MSPs, so will be taking it...
    Post by: Emsho, Jun 6, 2018 in forum: Psychosomatic news - ME/CFS and Long Covid
  18. Emsho
    Post

    UK 7 June 2018 | MSPs discuss ME treatment on Holyrood Live

    @Sasha thanks for posting! It's being recorded live by the BBC for Holyrood live, so folks should be able to watch it from the link in first...
    Post by: Emsho, Jun 6, 2018 in forum: General ME/CFS news
  19. Emsho
    Post

    Petition: Review treatment of people with ME in Scotland

    Next Action (not sure if should be new thread or not!) Scottish people, please contact your MSP,especially if your MSP is on the petitions...
    Post by: Emsho, Jun 1, 2018 in forum: Petitions
  20. Emsho
    Post

    Petition: Review treatment of people with ME in Scotland

    We made it! 7,036 :)
    Post by: Emsho, Jun 1, 2018 in forum: Petitions
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