Abstract
Previous studies have shown that health‐related quality of life (HRQoL) in adolescents living with chronic fatigue syndrome (CFS/ME) is low if compared with healthy adolescents and adolescents living with other chronic diseases. Effective strategies to improve HRQoL in this group are...
Journal of Adolescence
Volume 75, August 2019, Pages 123-129
https://www.sciencedirect.com/science/article/pii/S0140197119301289
again using this proxy CDF (chronic disabling fatigue).
Is this now a formal diagnosis?
Or are they maybe, finally, realising that CDF does not equate to ME or CFS...
A study published as a letter, I'm confused.
Paywall, https://adc.bmj.com/content/early/2019/06/13/archdischild-2018-316720
Sci hub, https://sci-hub.se/10.1136/archdischild-2018-316720
They take the LP study seriously and the authors are from UCL and Great Ormond Street Hospital - this was enough for me to post in Psychosocial Research sub-forum rather than Biomedical.
Paywall...
Might be more appropriate in Other Health News and Research sub-forum, especially considering who the authors are, but thought it could start here.
https://www.sciencedirect.com/science/article/pii/S0889159119301333
Can't actually find this paper, but the abstract has been posted at Bath and I thought it might be of interest, even though they don't really say much:
https://researchportal.bath.ac.uk/en/publications/physical-activity-patterns-among-children-and-adolescents-with-mi
(Edit: Open access...
Paywalled at https://journals.sagepub.com/doi/abs/10.1177/1359104519835583?journalCode=ccpa
Alt at https://sci-hub.se/https://journals.sagepub.com/doi/abs/10.1177/1359104519835583?journalCode=ccpa
Psychology & Health: Perfectionism and beliefs about emotions in adolescents with chronic fatigue syndrome and their parents: a preliminary investigation in a case control study nested within a cohort
Maria E. Loades, Katharine A. Rimes, Kate Lievesley, Sheila Ali & Trudie Chalder
Received 18...
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