adolescents

Paywalled at https://journals.sagepub.com/doi/abs/10.1177/1359104519838584?journalCode=ccpa Sci Hub, https://sci-hub.se/10.1177/1359104519838584

Paywalled at https://journals.sagepub.com/doi/abs/10.1177/1359104519835583?journalCode=ccpa Alt at https://sci-hub.se/https://journals.sagepub.com/doi/abs/10.1177/1359104519835583?journalCode=ccpa

Psychology & Health: Perfectionism and beliefs about emotions in adolescents with chronic fatigue syndrome and their parents: a preliminary investigation in a case control study nested within a cohort Maria E. Loades, Katharine A. Rimes, Kate Lievesley, Sheila Ali & Trudie Chalder Received 18...

Open access at https://www.frontiersin.org/articles/10.3389/fped.2019.00021/full Web | DOI | PMC | PDF | Frontiers in Pediatrics | Open Access

http://myriadproject.org/myriad-project/ http://myriadproject.org/ The MYRIAD collaboration: Kings College London, University of Oxford, University of Exeter, MRC; Cognition and Brain sciences unit, University of Cambridge, UCL, Wellcome. see also: Mindfulness Training in UK Secondary Schools...

Source: Clinical Child Psychology and Psychiatry Preprint Date: February 15, 2019 URL: https://journals.sagepub.com/doi/full/10.1177/1359104519829796 Illness perceptions in adolescents with chronic fatigue syndrome and other physical health conditions: Application of the common sense model...

Open access at https://www.frontiersin.org/articles/10.3389/fped.2019.00026/full

https://inews.co.uk/news/real-life/schoolboy-14-struck-chronic-fatigue-syndrome-cfs-myalgic-encephalomyelitis-me-football-match/

Although it doesn't say it's about CFS, the funding and references might suggest otherwise, also talks about chronic fatigue. https://link.springer.com/article/10.1007/s10461-018-02384-6 full paper here sc-ihub: https://sci-hub.tw/10.1007/s10461-018-02384-6

https://www.nature.com/articles/s41562-018-0506-1 This twitter thread explains how data have been distorted to fit the preconceived views of the authors of the primary studies: A few tweets:

https://www.cochranelibrary.com/cdsr/doi/10.1002/14651858.CD012488.pub2/full (none on ME or CFS considered or included, 2 by Chalder rejected, one on Fibromyalgia included)

Source: Frontiers in Pediatrics Preprint Date: December 31, 2018 URL: https://www.frontiersin.org/articles/10.3389/fped.2018.00435/abstract The importance of accurate diagnosis of ME/CFS in children and adolescents: A commentary ----------------------------------------------------------...

This has come up as a reference in a new study, so I thought I'd create a separate thread for it. Open access at https://adc.bmj.com/content/102/1/35

Free full text: https://jamanetwork.com/journals/jamapsychiatry/fullarticle/2716981

New paper - has a number of red flags. Focuses on fatigue description and " payback" as a description for PEM without much definition. Questionnaire based, pre diagnosed Mild/ moderate but not housebound I don't know if any comorbidities (OI, EDS etc) have even been thought about I have not...

Sarah Jenette Knight1,2,3*, Jennifer Politis1,4, Christine Garnham1,4, Adam Scheinberg1,2,3,5 and Michelle Anne Tollit1,2,4,6 1Murdoch Children's Research Institute, Melbourne, VIC, Australia 2The Royal Children's Hospital, Melbourne, VIC, Australia 3Department of Pediatrics, The University of...

This is from Aug. 15th 2018 and as far as I know not shared here already. Not sure if studies on ME patients are included in the review, but thought it was of interest nevertheless. E-Health interventions for anxiety and depression in children and adolescents with long-term physical conditions...

More crap (Note highlighted bit): Source: Utrecht University Date: June 30, 2017 URL: https://dspace.library.uu.nl/bitstream/handle/1874/365826/Berkelbach van der Sprenkel, E.pdf Psychosocial Profiles of Adolescents with Chronic Fatigue Syndrome: Correlations with Fatigue Severity and...

Within many official websites and information leaflets there is a standard soundbite that most adolescents recover within 2 years. From the parents' forums of which i am a member this does not hold true. Most children who have ME seem to have a significant improvement ( but not always...