bedbound

I'm interested to know what people with severe (and very severe) ME/CFS and their carers have found useful with respect to preventing negative physical consequences of prolonged immobility. Some of the negative physical consequences I am thinking of, other than deconditioning/muscle wasting...

https://www.mdpi.com/2227-9032/9/2/106/htm

Free full text: http://www.diagnostyka.net.pl/An-automated-system-for-body-temperature-monitoring-of-children-people-with-disabilities,125314,0,2.html Mainly posting this paper because of this: I wonder on what basis they made this claim? Are there published studies that have found this?

details here http://sacfs.asn.au/news/2020/07/07_02_survey_making_the_invisible_visible.htm @Penelope McMillan

While doing some research on the Interwebz on how to limit the ill-effects of being bedbound, I came across this article for nurses on a site called Nurselabs on how to approach patients who have limited mobility, particularly those who are bedridden. There were two things I found interesting...

I am looking for the paper that shows that 25% ofME patients are housebound or bed bound. Thanks!

https://www.meaction.net/2018/05/21/just-invisible-medical-access-issues-for-homebound-bedridden-people/

I recently re-read this piece and thought it was worth sharing based on the person’s experience of the effects of bed rest. The key line, for me: I suppose GET should be a miracle cure for those of us in bed rest then? Oh, wait. :unsure...