Dear friends and family members. Research is moving forward in the field of ME/CFS and although much has been accomplished, it is only a fragment of what can be achieved. Many of us are eager to know more. Therefore, acceleration of researches is vital. Now, financing studies and researches...
https://web.archive.org/web/20140811161130/http://www.fine-trial.net/downloads/Patient PR Manual ver9 Apr05.pdf
I saw that this was off-line, but found an archived version so thought I'd post it here for anyone googling for it. It's a pretty annoying document, and those new to looking at CFS...
An old study but, as shown in this thread, https://s4me.info/threads/top-10-sc...f-citations-tweet-by-dr-mark-gutheridge.7461/, one of the most cited ME/CFS papers in the past 10 years, so thought it might be useful to have here.
Open access at...
Didn't know where to post this or if it has been posted before;
https://www.qmul.ac.uk/wolfson/media/wolfson/ref-2014-results/UoA2-chronic_fatigue_syndrome.pdf
We have so much to thank QMUL for
Source: The British Journal of General Practice
Vol 68, #677, p 586
Date: December 2018
URL: https://bjgp.org/content/68/677/586.1
Ref: https://www.bloomsbury.com/uk/get-well-soon-9781472950482/
https://www.bloomsbury.com/uk/get-well-soon-9781472950475/
Books: Get Well Soon: Adventures in...
This wasn't too bad until they started trying to explain the symptoms:
"
If you have CFS, you may have:
Sore throat
Fatigue
Memory or concentration loss (which may come from a lack of true rest)
Headaches
Unrefreshing or lack of productive sleep (you get plenty of sleep but you're still...
"
A quarter of the population claim to suffer from fatigue.
But sometimes extreme tiredness can be hiding a more serious illness.
It is easy to blame exhaustion on the stresses of an increasingly demanding lifestyle or work.
But if after six months those feelings of exhaustion haven't gone...
I don't know any more about this - just copied from an incoming post:
Title: The American Psychiatric Association Publishing Textbook of Psychosomatic Medicine and Consultation-Liaison Psychiatry, Third Edition
Chapter: 25. Chronic Fatigue and Fibromyalgia Syndromes
Authors: Michael C. Sharpe...
https://coach.nine.com.au/2018/07/03/18/52/chronic-fatigue-syndrome-myalgic-encephalomyelitis
The article is very good. Dr. Mark Guthridge is inerviewed about ME/CFS and the patient experience is well written. An accurate easy read.
Good to see mainstream media no longer pushing graded exercise, and even pointing out harms. Nice jab at the CDC's decades of negligence. Now if they would just stop calling it "chronic fatigue syndrome". :emoji_bicyclist::emoji_cartwheel::emoji_lifter::emoji_skier::dead:
50 Fitness Myths That...
The LaPorte County Herald-Argus reports:
Mobile Health Unit to provide screenings
"The Mobile Health Unit of La Porte Hospital will be out in the community throughout May to provide bone density screenings and to educate on Chronic Fatigue Syndrome and Alzheimer’s Disease.
Chronic fatigue...
"I must caution against the over-aggressive use of exercise programs, which can worsen symptoms."
"It’s very frustrating, since it implies that a person’s physical symptoms are due to some weakness in his or her character."
To Your Good Health: Chronic Fatigue Syndrome Has a New Name...
This is an opinion piece opposed to the recent Dutch Health Council changes. Apparently the physiology of ME/CFS has a lot in common with leprechauns.
Google translated article here, original (in Dutch), https://www.medischcontact.nl/opinie/blogs-columns/column/cvs-of-waar-is-mijn-kous.htm
"Fibromyalgia/CFS patients fighting for awareness of career-ending illness
For years medical profession has questioned if fibromyalgia or chronic fatigue syndrome are real
Peter Dawe says fibromyalgia and chronic fatigue syndrome — diseases that can cause debilitating exhaustion, joint and...
"The problem may well be that some of our [CBT] treatments are too evidence based." :rofl: Of course, that's obviously it.
In part, this article seems to be some sob story about how CBT practitioners are misunderstood and maligned by ungrateful patients.
"It would seem that for some sufferers...
Unrest Film by Jen Brea will be broadcast Monday, January 8th on PBS’s ‘Independent Lens’ at 10 PM EST/9 PM CNT. This film is about Myalgic Encephalomyelitis (Chronic Fatigue Syndrome).
Don't forget to let friends and family know Wednesday or Thursday prior to the Monday broadcast. I am going...
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