children

  1. Sly Saint

    ExFACTR Study: Exploring the Feasibility of ACT for Children and young people with CFS/ME ... in prep. for an RCT. Crawley et al. Recruiting Jan 2021

    https://www.bristol.ac.uk/academic-child-health/research/research/cfsme/exfactr-study/ ACT, 'new' replacement for CBT. A favourite of Trudie Chalder. @dave30th
  2. Dolphin

    Telepresence Robot Use for Children with Chronic Illness in Australian Schools: A Scoping Review and Thematic Analysis, 2020, Page et al

    https://link.springer.com/article/10.1007/s12369-020-00714-0 Published: 06 November 2020 Telepresence Robot Use for Children with Chronic Illness in Australian Schools: A Scoping Review and Thematic Analysis International Journal of Social Robotics (2020)Cite this article 9 Accesses...
  3. John Mac

    Do treatments for paediatric chronic fatigue syndrome improve pain? a systematic review, Ascough et al, 2020 G535(P)

    https://adc.bmj.com/content/105/Suppl_1/A189.2
  4. Andy

    Chronic fatigue syndrome/myalgic encephalomyelitis in children aged 5 to 11 years: A qualitative study, 2020, Bridgen, Crawley et al

    Open access, https://journals.sagepub.com/doi/10.1177/1359104520964528
  5. Kalliope

    RSVP Live - "Dublin mum shares warning signs of ME in children after daughter's diagnosis aged just 7"

    "Most of the parents I speak to going through this, say one of the hardest parts has been the constant fights with the doctors to get a diagnosis, to get help managing the symptoms but also just the isolation from family and friends not really getting it", Sarah admits. "You’re constantly...
  6. Andy

    Fatigue-Related Cognitive-Behavioral Factors in Survivors of Childhood Cancer, 2020, Knoop et al

    Full title: Fatigue-Related Cognitive-Behavioral Factors in Survivors of Childhood Cancer: Comparison with Chronic Fatigue Syndrome and Survivors of Adult-Onset Cancer Paywall, https://www.liebertpub.com/doi/10.1089/jayao.2020.0094 Sci hub, https://sci-hub.tw/10.1089/jayao.2020.0094
  7. Andy

    Health Care Use and Costs of Children, Adolescents, and Young Adults With Somatic Symptom and Related Disorders, 2020, Saunders et al

    Open access, https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2768569
  8. Sly Saint

    UK Royal College of Psychiatrists

    RC Psych (Royal College of Psychiatrists) Chronic fatigue syndrome: helping your child to get better (note: Disclaimer This is information, not advice. Please read our disclaimer.)...
    • Sly Saint
    • Thread
    • children guidelines me/cfs mus royal college of psychiatrists united kingdom young people
    • Replies: 21
    • Forum: General ME/CFS news
  9. Dolphin

    An automated system for body temperature monitoring of children, people with disabilities and bedridden people using a continuous analysis, 2020

    Free full text: http://www.diagnostyka.net.pl/An-automated-system-for-body-temperature-monitoring-of-children-people-with-disabilities,125314,0,2.html Mainly posting this paper because of this: I wonder on what basis they made this claim? Are there published studies that have found this?
  10. Andy

    The Times: Chronic fatigue syndrome: ME families accused of child abuse

    Sign-up/Paywall, https://www.thetimes.co.uk/article/chronic-fatigue-syndrome-me-families-accused-of-child-abuse-np968v9dt Mod note: See post #13 for the full page of articles
  11. Andy

    Editorial: Research, recommendations & lived/personal experience with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), 2020, Mooney

    Open access, https://content.iospress.com/articles/work/wor203179
    • Andy
    • Thread
    • 2020 amy mooney carers children occupational therapy
    • Replies: 0
    • Forum: General ME/CFS news
  12. Dolphin

    The Relationship Between Childhood Trauma and the Response to Group CBT for CFS, 2020, De Venter et al

    Free full text: https://www.frontiersin.org/articles/10.3389/fpsyt.2020.00536/full
  13. Sly Saint

    EXPLORER study: Exploring treatments for younger children with CFS/ME - Amberly Brigden, Esther Crawley

    https://www.bristol.ac.uk/academic-child-health/research/research/cfsme/explorer/ project 3 thread: https://www.s4me.info/threads/the-care-of-younger-children-5–11-years-with-cfs-me-a-qualitative-study-comparing-families’-teachers’-and-clinicians’-perspectives’-2020-crawley.15475/ eta...
  14. Andy

    The care of younger children (5–11 years) with CFS/ME. A qualitative study comparing families’, teachers’ and clinicians’ perspectives’, 2020, Crawley

    Title including weird quote, “The child’s got a complete circle around him ”. The care of younger children (5–11 years) with CFS/ME. A qualitative study comparing families’, teachers’ and clinicians’ perspectives’ Open access, https://onlinelibrary.wiley.com/doi/full/10.1111/hsc.13029
  15. Sly Saint

    'Children and ME' - Zoom meeting with guest speaker Dr Nigel Speight July 7th 2020

    Hope 4 ME & Fibro NI " The charity is replacing monthly meetings in Newry by providing specialist speakers online by Zoom, until Covid - 19 social distancing rules are lifted. Our Zoom meeting this month will be dedicated to the needs of children with ME, presented by the charity’s Paediatric...
    • Sly Saint
    • Thread
    • 2020 children hope 4 me & fibro me/cfs meeting nigel speight northern ireland presentation video young people
    • Replies: 4
    • Forum: General ME/CFS news
  16. Sly Saint

    Wider collateral damage to children in the UK because of the social distancing [...] COVID-19, 2020, Crawley et al. And other papers by Crawley et al

    Wider collateral damage to children in the UK because of the social distancing measures designed to reduce the impact of COVID-19 in adults Esther Crawley1, Maria Loades1,2, Gene Feder3, Stuart Logan4, Sabi Redwood5, John Macleod2 https://bmjpaedsopen.bmj.com/content/4/1/e000701 Hmm...
  17. Sly Saint

    Lincolnshire County Council; Children's social care 2020

    Eligibility https://www.lincolnshire.gov.uk/special-educational-needs-disabilities-send/childrens-social-care-1/2
  18. Sly Saint

    How are behavioural interventions delivered to children (5–11 years old): a systematic mapping review - Brigden, Crawley et al Dec 2019

    full paper here https://bmjpaedsopen.bmj.com/content/3/1/e000543
  19. Dolphin

    Open (California, USA) CDC-funded study on children aged 10-17 with ME/CFS

    https://solvecfs.org/wp-content/uploads/2019/12/20191211-CFS-Ped-Flyer.pdf
  20. Sly Saint

    Telford woman releases book to help children understand adult illness, 2019

    The book is set for release in spring 2020 full article here https://www.shropshirestar.com/entertainment/telford-entertainment/2019/11/25/telford-woman-releases-book-to-help-children-understand-adult-illness/
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