chronic illness inclusion project

"A major survey has shown the significant – and often unique – barriers faced by people with energy-limiting conditions (ELC). Nearly every survey respondent (98 per cent) said that lack of understanding of ELC was a barrier to inclusion. The second biggest barrier revealed by the survey was...

This survey is part of a collaboration between Disability Rights UK and Chronic Illness Inclusion. The aim of this survey is to explore 1) Whether people with different energy-limiting health conditions and impairments are interested in working together on issues of social justice and...

Launch of a report on the exclusion of disabled people with energy limiting chronic illness (ELCI) and strategies for inclusion and support. About this Event I already have a job...just getting through the day: energy limiting chronic illness, social inclusion, employment and social security...

What is the chronic illness community, and why is there no reference to chronic illness in the framework of impairment and disability that shapes social and public policy for disabled people in the UK? Authors of Energy impairment and disability inclusion, Catherine Hale and Dr Anna Ruddock...

Quote: "Catherine Hale spoke at It’s Our Community, a conference on social care reform. Catherine explained the high prevalence of energy limiting conditions and the psychological impact of not being believed. I was a social care user back in the 1990s. I’ve had my chronic illness for over...

https://docs.google.com/forms/d/e/1FAIpQLSexp7bezuRSh7PW8UcX-h8_zZuQrJVi_N0SsDi6wDTl4h2vdA/viewform

https://docs.google.com/forms/d/e/1FAIpQLScJ5IipE8NAu5OvIjiqD75a-YE_YTnqVJnDriHadOi10MyY6A/viewform

Blog by Fran Halsall who has fibromyalgia and MS diagnoses. Mentions the difference in how the two are dealt with. https://inclusionproject.org.uk/the-uncertainty-principle/

http://www.catherinehale.net/2019/01/new-years-resolutions.html

Quoted the whole newsletter in order to reach more people. We have updated our website! Check it out here. Thank you to Fran Halsall for all her hard work on it. We hope you can find out about our aims and activities more easily via the website. Tell us if there are ways we could make it more...

https://stumblingintonormality574663971.wordpress.com/2018/11/20/the-chronic-illness-inclusion-project-and-a-focus-group-response/

https://inclusionproject.org.uk/guest-post/changing-the-system-so-that-more-chronically-ill-people-can-work/

https://inclusionproject.org.uk/guest-post/mo-stewart-responds-to-reclaiming-chronic-illness/

My good friend Catherine Hale who is lead researcher with Chronic Illness Inclusion Project has alerted me to this survey if anyone wishes to take part: https://mailchi.mp/c4d5906abe71/take-our-survey-on-chronic-illness-and-disability Ps. I have not yet taken the survey myself so can’t...

To check the project out visit http://inclusionproject.org.uk/

http://www.centreforwelfarereform.org/uploads/attachment/617/reclaiming-chronic-illness.pdf I havent read all this yet Summary This discussion paper presents the ideas and assumptions behind the Chronic Illness Inclusion Project (CIIP), part of the DRILL programme of disability research. 1 My...

http://inclusionproject.org.uk/social-model/ill-versus-disabled-is-there-a-distinction-between-the-two/

http://inclusionproject.org.uk/guest-post/department-for-snakes-and-ladders/

From an email The Chronic Illness Inclusion Project can also be found at http://inclusionproject.org.uk/ and https://www.facebook.com/ChronicInclude/