Consumer-Contested Evidence: Why the ME/CFS Exercise Dispute Matters So Much
A biopsychosocial camp has contended since the 1990s that regardless of how it starts, people with ME/CFS dig themselves into a hole with their attitudes and behaviors, leading to physical deconditioning (sort of the...
Relationship Between Exercise-induced Oxidative Stress Changes and Parasympathetic Activity in Chronic Fatigue Syndrome: An Observational Study and in Patients and Healthy Subjects
Email the author MSc Andrea Polli,Jessica Van Oosterwijck, PhD,Jo Nijs, PhD,
Uros Marusic, PhD,Inge De Wandele...
As this came up in a different thread, I thought it would be worth creating a separate thread for it.
Open access at https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3946674/
Ten Ways To Prove That Exercising Will Not Cure ME/CFS
https://www.healthrising.org/blog/2018/12/28/ten-ways-prove-exercising-not-cure-chronic-fatigue-syndrome/
by Cort Johnson
Your family, friends and even your doctor may, probably will at some point, prod you to get moving. They think that...
This thread is intended for collecting evidence of harms from GET and other therapies that involve increasing activity and/or exercise.
Particularly useful would be any research demonstrating either that GET has directly caused harm, or that research on GET that claims no harm has not properly...
Of all the confusing places to find this information, I found it on another exercise -is-medicine industry, CrossFit. (though they want to add diet to exercise, but still are excluding/ignoring actual medications, the need for continuing medical research, and public health efforts like housing...
It looks to me like this has actually happened- not sure if I can quite believe it.
Link:
https://www.cochranelibrary.com/cdsr/doi/10.1002/14651858.CD011040.pub2/full
Caroline Struthers' letter to Cochrane Governing Board
I noticed on Anil about ME's Facebook page the following link:
https://healthycontrolblog.wordpress.com/2018/11/29/my-complaint-to-the-cochrane-governing-board-about-the-cochrane-review-of-exercise-for-chronic-fatigue-syndrome/
Caroline...
They obviously know nothing about ME
https://gizmodo.com/no-such-thing-as-too-much-exercise-study-finds-1829874676
I only skimmed the first couple paragraphs
https://www.nhs.uk/video/Pages/ms-cfs-chronicpain-fibromyalgia.aspx
Found this on the NHS website. I wondered whether anyone knew how this can be justified and where it came from?
I also think there should be some lobbying as part of the NICE guideline review to raise this as an issue along...
I was surprised to find this article posted on the ME/CFS Australia (SA) Inc site:
http://www.sacfs.asn.au/
Sep 18, 2018 by Ernie Schramayr Hamilton Spectator
"
Exercise leads to a release of “feel good” hormones that makes most people feel energized, clear headed, invigorated. ............"...
A few years ago I had the idea of starting up a website in which hospitals, institutions or individual psychiatrists and psychologists who coerce exercise therapy upon unwilling ME/CFS patients could be named and shamed.
I was just recently reminded of the idea after reading this thread of an...
The full text of this is now available: https://www.frontiersin.org/articles/10.3389/fpsyg.2018.01246/full
I'll leave it to others to decide whether there is anything of use in this or alternatively, if there is anything particularly problematic.
Note from the moderators:
The discussion in this thread is focussed on the BPS theory of deconditioning. There is another thread for discussing the issue raised in this post: Muscle atrophy
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Hi Everyone
My recent muscle biopsy of my thigh has led to what seems...
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