facebook

  1. M

    "My Fibro Family!" A qualitative analysis of facebook fibromyalgia support groups' discussion content (2022) Crump and LaChapelle

    ABSTRACT Background Fibromyalgia (FM) is a diagnostically controversial syndrome characterized by chronic widespread pain, fatigue, sleep difficulties, cognitive dysfunction, and mental health symptoms. Though online peer support groups (OPSGs) may help persons with FM access support and...
  2. InfiniteRubix

    Explosion of Facebook adverts for pain apps

    One of these is Curable https://www.facebook.com/curablehealth/ "Pain causes fatigue, etc., etc." There were two other apps being pushed in my Facebook timeline, but I can't remember what they were. Just a placeholder thread for such apps, as they seem to be being pushed harder commercially...
  3. Kalliope

    Nature: How Facebook and Twitter could be the next disruptive force in clinical trials

    Interesting feature on a topical issue. It's getting easier for patients that participates in clinical trials to connect online and share experiences and information. But what if that leads to unblinding a trial? Also discusses how difficulties in recruiting patients for clinical trials has led...
  4. Kalliope

    Fast Company: Facebook deletes alternative health pages as the war on fake news escalates

    My immediate thought is good riddance, how about you? Facebook deletes alternative health pages as the war on fake news escalates The purge reportedly began in June, several months after Facebook founder Mark Zuckerberg publicly vowed to crack down on fake news. While that term is typically...
  5. Trish

    #MEAction - New Facebook group for seniors (age 55+) with ME

    From #MEAction today: ''Amplifying the voices of seniors with ME - join the group.'' A Facebook group for pwME aged over 55 years called MESeniors Connect has been set up and already has over 500 global members.
  6. Indigophoton

    Predatory behavior runs rampant in Facebook’s addiction support groups

    Something to be aware of for anyone who makes use of support groups on Facebook:
  7. J

    MEpedia Facebook Group

    Hi all. I just wanted to let everyone here know about the new MEpedia Facebook group. I know one piece of feedback for sometime was that MEpedia should be more social. I'm hoping for those on Facebook, this can help! https://www.facebook.com/groups/218347055598647/ For those not on Facebook, I...
  8. Arnie Pye

    Article : Facebook halts medical data sharing plan

    Is anyone who uses Facebook aware this was even being considered? I bet you weren't! Link for rest of article : http://www.bbc.co.uk/news/technology-43668607 Once Fb has managed to sweep its privacy issues under the carpet I'm sure they will get right back to this idea.
  9. Rick Sanchez

    ME/CFS Facebook group for Young Adults

    Hey everyone! The Facebook group can be found Hope to see some of you there :)!
  10. Andy

    The missing link: why disabled people can’t afford to #DeleteFacebook

    https://www.theguardian.com/media/2018/apr/04/missing-link-why-disabled-people-cant-afford-delete-facebook-social-media
  11. Kalliope

    Facebookpage: True Stories About Lightning Process (Critical)

    A facebookpage has just been created called True Stories About Lightning Process This is a place where ME-patients can share the other side of LP, what turned out to be the grim reality for many. Have an experience with LP you think others should know about? Here is a platform where you can...
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