family

  1. Dolphin

    Trial Report Navigating an unfamiliar world – Parents' experiences of having a child with post COVID-19, 2024, Angelhoff

    Charlotte Angelhoff, Karel Duchen, Per Ertzgaard, Patrik Rytterström, Navigating an unfamiliar world – Parents' experiences of having a child with post COVID-19, Journal of Pediatric Nursing, 2024, ISSN 0882-5963, https://doi.org/10.1016/j.pedn.2024.05.023...
  2. ahimsa

    Blog post by Galen Warden: For Family and Friends

    Blog post from Galen Warden about how family and friends can support ME patients. Includes links to research and medical descriptions of ME. https://www.galenwarden.com/post/for-family-and-friends
  3. LarsSG

    Increased risks of cancer and autoimmune disease among the first-degree relatives of patients with ME/CFS, 2022, Moslehi et al

    Abstract Background: Myalgic encephalomyelitis (ME)/chronic fatigue syndrome (CFS) is a disabling multi-system complex disorder with prevalence of 875 per 100,000 (up to 3.4 million people) in the United States. There are no known etiologic or risk factors and no approved treatments for ME/CFS...
    • LarsSG
    • Thread
    • autoimmunity cancer family genetic me/cfs
    • Replies: 28
    • Forum: ME/CFS research
  4. John Mac

    Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): Major Impact on Lives of Both Patients and Family Members, Brittain et al, 2021

    https://www.mdpi.com/1010-660X/57/1/43/htm
  5. Andy

    Inclusion of family members without ME/CFS in research studies promotes discovery of biomarkers specific for ME/CFS, 2020, Tokunaga et al

    Paywall, https://content.iospress.com/articles/work/wor203177 Sci hub, https://sci-hub.tw/10.3233/WOR-203177
  6. Andy

    The care of younger children (5–11 years) with CFS/ME. A qualitative study comparing families’, teachers’ and clinicians’ perspectives’, 2020, Crawley

    Title including weird quote, “The child’s got a complete circle around him ”. The care of younger children (5–11 years) with CFS/ME. A qualitative study comparing families’, teachers’ and clinicians’ perspectives’ Open access, https://onlinelibrary.wiley.com/doi/full/10.1111/hsc.13029
  7. Sly Saint

    Still to open University of Cincinatti - Department of Psychiatry and Behavioral Neuroscience

    " Women's Health Clinical Trials We are currently recruiting women and men for all of the following studies in the Greater Cincinnati (Ohio) area: Fibromyalgia Studies In these studies, we are testing new medications for the treatment of fibromyalgia symptoms in adolescents and adults...
  8. rvallee

    Social Services Can Threaten Families of Children with Chronic Fatigue

    Pretty good article from Vice about the reality of social services in the UK threatening sanctions against the parents of children with ME. People think such barbaric nonsense is in the past. Not so much...
  9. MeSci

    Acceptance and identity change: An interpretative phenomenological analysis of carers' experiences in ME/CFS (2018) Sarah Catchpole

    Source: Journal of Health Psychology Preprint Date: March 21, 2019 URL: https://journals.sagepub.com/doi/full/10.1177/1359105319834678 Acceptance and identity change: An interpretative phenomenological analysis of carers' experiences in myalgic encephalopathy/chronic fatigue syndrome...
  10. Sly Saint

    Open Impact of ME/CFS on patients & their family

    a clinical research study by a third-year medical student at Cardiff University http://wames.org.uk/cms-english/2019/03/impact-of-me-cfs-on-patients-their-family-volunteers-needed/
  11. Andy

    Home-based family focused rehabilitation for adolescents with severe Chronic Fatigue Syndrome, 2018, Burgess et al (inc Chalder)

    Paywalled at http://journals.sagepub.com/doi/abs/10.1177/1359104518794764?journalCode=ccpa
  12. A

    Resources for Parents with ME - helping children come to terms with chronic illness

    I've recently had to do a few internet searches looking for some helpful information. My son has been having difficulties as he realises that dad is ill and may not get better. This is quite a normal reaction apparently for a child of his age (9). It is manifesting itself mainly as...
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