fii

Moved from the NICE Guidelines thread Locally, we are tracking NICE NG206 for Children & Young People/adults up to age 25. Tilly and I are chasing the tail (tale?) surrounding suspected Fii and NICE Guidelines. Especially in respect of how one guideline interfaces with another- or not!- or...

Given the recent admission Andrew Goddard: "There is reasonable evidence, for example, that graded exercise therapy helps a group of patients with ME/CFS and, while not without risk, our experts strongly support its ongoing use as an option in this condition". from NHS website " Overview -...

Sign-up/Paywall, https://www.thetimes.co.uk/article/chronic-fatigue-syndrome-me-families-accused-of-child-abuse-np968v9dt Mod note: See post #13 for the full page of articles

ME is the biggest cause of long term sickness absence in schools [1]. 1 in 5 parents face child protection proceedings [2]. ME is not taught in medical schools and 80% of doctors think its psychosomatic [3]. Because healthcare professionals don't understand ME they start blaming the parents. ME...

Programme on fabricated or induced illness (FII) on at 11:00 am UK time. Will be on website and app after broadcast. Trailer suggests includes reference to children with ME. https://www.bbc.co.uk/programmes/m00050jw

Pretty good article from Vice about the reality of social services in the UK threatening sanctions against the parents of children with ME. People think such barbaric nonsense is in the past. Not so much...

A few minutes ago, Carol Monaghan asked a question in the House about children ( with ME) being removed from loving families . I didn’t get the whole of her question - sound was off and I had to quickly turn it up- but Prime Minister answered something to the effect that she wasn’t aware of...

https://www.bbc.co.uk/sounds/play/live:bbc_radio_five_live Some of our children have hyper mobility. On BBC Morning there was a mum and daughter talking about FII and mixups that happened. They are doing an interview 5 minutes in. Today on BBC Radio 5 live, every parent's worst...

A journalist is looking for a case study of parents of a child with ME who have had social services become involved inappropriately. I googled and she’s written about ME before: https://www.thesun.co.uk/fabulous/6235179/chronic-fatigue-syndrome-me-and-me/

https://www.fiightback.co.uk/ Only seen this organisation on Twitter so don't know anything more about them but it certainly shows that concerns exist about FII outside our community.

https://ethos.bl.uk/OrderDetails.do?did=1&uin=uk.bl.ethos.760921

Agenda: Safeguarding children with CFS, Pervasive refusal syndrome, Gathering evidence – the police experience

The whole concept of pervasive refusal syndrome scares me. It sounds exactly like severe ME, but where the patients refuse treatment. How can we challenge this diagnosis? It's about time a paper was published to dissect and demolish it, as it's a danger when it comes to people getting sectioned...

The Norwegian Broadcasting Corporation (NRK) with article on ME and child welfare authorities. One of four parents with children with ME say they have been threatened of child welfare authorities from school, health personell or others. A father with two children under assessment for ME tells...

From earlier this year Matthew Hill reports for BBC's File on Four program "Children with ME"; Parents of children diagnosed with Myalgic Encephalomyelitis (ME) reveal how they have been investigated and referred for child protection measures on suspicion of a rare form of child abuse known as...

https://twitter.com/_NathalieWright/status/928658062684106754 She says stories can be anonymised where necessary. Nathalie Wright has ME herself: http://www.meassociation.org.uk/2015/11/nathalie-wright-talks-about-the-misery-of-living-with-me-huddersfield-examiner-26-november-2015/