Thought it could be helpful to have a thread on Jonathan's expert testimony for any further use and citation. Edwards, Jonathan CW (2020), The...
The Finnish Medical Society Duodecim recently published their ME/CFS draft guideline ("Good Practice Consensus Recommendation"). Comments can be...
Here's the link to the draft guideline and associated documents: Draft guideline document...
https://www.meaction.net/wp-content/uploads/2020/10/Pacing-and-Management-Guide-for-ME_CFS-8.pdf
Abstract Exercise is an important component of the management of PoTS especially where deconditioning is present. In particular the long term...
ME/CFS is a serious and complex chronic multi system illness that can profoundly affect the lives of people who develop it. BACME fully supports...
I'm not sure where to post this but want to highlight for those giving input/feedback on NICE guidelines a discussion in a BMJ Live LongCovid...
Abstract In 2012 the multidisciplinary guideline Q fever fatigue syndrome was developed for the Netherlands. The availability of new research data...
Moved from this thread: Possibility of ME or PVFS after COVID-19, Long Covid _________________...
Not sure which forum this should go in. How to cite: Nacul, L.; Authier, J.; Scheibenbogen, C.; Lorusso, L.; Helland, I.; Alegre Martin, J.;...
https://www.ruh.nhs.uk/patients/services/clinical_depts/paediatric_cfs_me/documents/Resources_for_Clinicians_and_Healthcare_Professionals/CBT_for_C...
not peer reviewed Abstract Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a disabling condition affecting millions of adults...
http://www.pulsetoday.co.uk/news/gps-should-not-prescribe-opioids-for-chronic-pain-says-nice/20041262.article The first-ever NICE guideline on...
RC Psych (Royal College of Psychiatrists) Chronic fatigue syndrome: helping your child to get better (note: Disclaimer This is information, not...
So much I want to write yet can't now. Living in a dangerous situation, guidelines for COVID that exist are making it worst and there are...
So frustrated! Can't go into more now though want to. Years of CDC's ME/CFS site frustrations and now COVID guideline frustrations. So...
http://cepuk.org/2020/02/08/guest-blog-nice-depression-guideline-cautious-optimism/?fbclid=IwAR1c2BN81TyQ79EjH8IYSjTeztHESk1i7rP3-GmiJJDLLH3HDrNlax...
"Join the Medically Unexplained Symptoms Reference Group Date published: Feb 6, 2020, 18:45 PM Summary Contribute to producing a set of guiding...
#MEAction UK has a new project called "Take ME Seriously" Update: Anyone can join in this advocacy action. It is not just for UK residents. They...
https://www.meassociation.org.uk/2020/02/new-mea-guide-me-cfs-the-ten-key-aspects-of-management-05-february-2020/?fbclid=IwAR3R0s1AF3v1ZqGutZFVipo1...
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