The erasure of infection-associated chronic conditions: Critical interpretive synthesis of literature on healthcare for long COVID and related conditions in Brazil
Flora Cornish; Brenda Sabaine; Letícia Soares; Barbara Caldas; Margareth Crisóstomo Portela; Aylene Bousquat; Emma-Louise Aveling...
#MEAction has started planning for Millions Missing campaign (May 12) in the USA.
Why We’re Sending out an SOS this #MillionsMissing
If you go to that link you'll see there's a lot of information including this US toolkit
(separate plans are in the works for the UK and other locations --...
Full title: Barriers and facilitators of healthcare access for long COVID-19 patients in a universal healthcare system: qualitative evidence from Austria
Peter Gamillscheg, Agata Łaszewska, Stefanie Kirchner, Kathryn Hoffmann, Judit Simon & Susanne Mayer
Abstract
Background
Long COVID-19...
From the #MEAction website:
Questions to Ask Prospective MPs About ME/CFS
https://www.meaction.net/2024/06/04/questions-to-ask-prospective-mps-about-me-cfs/
In communities of color, long-covid patients are tired of being sick and neglected
Regular link: https://www.washingtonpost.com/health/2024/05/28/long-covid-patients-of-color-black-latino/
Gift link (no paywall for 2 weeks): https://wapo.st/3wSGcYO
Further down in the article there's a quote...
“They seemed to be like cogs working in different directions”: a longitudinal qualitative study on Long COVID healthcare services in the United Kingdom from a person-centred lens
Fang, Chao; Baz, Sarah Akhtar; Sheard, Laura; Carpentieri, J. D.
The COVID-19 pandemic has presented significant...
Abstract
Background: Myalgic encephalomyelitis (ME, also known as chronic fatigue syndrome or ME/CFS) is a debilitating, complex, multi-system illness. Developing a comprehensive understanding of the multiple and interconnected barriers to optimal care will help advance strategies and care...
This: The gathering storm: The transformative impact of inflation on the healthcare sector is one of a series of reports by management consultants McKinsey on the US health system - clearly it has a 'particular' perspective but in a reflection of the situation in the UK, MCKinsey are predicting...
Britons now have the worst access to healthcare in Europe, and it shows
"For the past few months, a fierce debate has been raging over the question of what exactly is behind the sudden, sharp exodus of older British workers into economic inactivity. Is it driven by rapidly worsening health or...
I haven't fill this in myself so far.
https://www.surveymonkey.com/r/8NWFDC2
COVID-19 impact on healthcare management of people with chronic diseases
Questionnaire for individual patients
What is the survey about?
This survey seeks to map the impact that COVID-19 has had on diagnosis...
Dear All,
I am very happy to say that i successfully filed for a US patent for a methodology that uses Artificial Intelligence, Network Analysis and Text Analysis algorithms to generate hypotheses for any disease, group of symptoms or syndromes.
The patent application can be found here in...
full text download
https://www.mdpi.com/2227-9032/8/3/197
eta:
(This article belongs to the Special Issue ME/CFS – the Severely and Very Severely Affected)
Submissions are now sought for a special journal edition, "ME/CFS - The Severely & Very Severely Affected"
Guest Editors:
Dr. Kenneth Friedman
Laboratory Corporation of America Holdings, Burlington, United States
Dr. Lucinda Bateman
Bateman Horne Center, Salt Lake City, United States
Prof...
Speech she gave on May 12, 2018, at the Washington, DC Millions Missing Rally, with a few details added.
".......Prior to my ME diagnosis, I worked in healthcare for a decade as a healthcare social worker. I was a hospital trauma social worker, a case manager at a clinic for people with...
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