icc

In the thread about translating the ICC into Hindi, there was this claim: "International consensus criteria (ICC) originally published in English (ICC-E) is a valid and reliable tool for identifying cases of ME." How are they validating that claim? There is no clinical test for ME to verify...

Full title: The Hindi Version of International Consensus Criteria: A Cross-cultural Adaptation and Validation Study for Myalgic Encephalomyelitis in Post-COVID Patients Abstract Context: Fatigue is the most prominent feature of long COVID. With the increasing burden of long COVID cases...

Since the publication of the International Consensus Criteria: I have seen a number of people criticise the use of terms such as “ME/CFS” and "CFS" by individuals, researchers and organisations, including pieces aimed at professionals. I have wondered whether all of these people knew how the...

On Wed 4th December 2019 members of ME Advocates Ireland (MEAI) met with Minister for Health, Simon Harris TD. By Joan Byrne full blog here https://meadvocatesireland.blogspot.com/2019/12/positive-preliminary-meeting-with.html

From Clinicalguidelines.gov.au: Myalgic Encephalomyelitis - Adult & Paediatric: International Consensus Primer for Medical Practitioners 2012 Why are you developing this guideline?: The International guidelines are being reviewed to modify the content to suit the Australian medical context...

Getting my information for this solely from this tweet, as I can't get Google to translate the website. Copy and paste link https://twitter.com/MECentraal/status/1183809872028209152?s=20 Can any German speaker confirm the info above? @TiredSam @Joh

I hope I’m not duplicating a thread - I’ve searched but can’t find anything on this subject. “On April 9, 2019, ME advocates Eileen Holderman and Gabby Klein sent an open letter to the Secretary of the U.S. Department of Health and Human Services (HHS), Alex M. Azar II. “The letter urges...

"bad definitions have made this diagnosis heterogenous beyond recognition and how many doctors still diagnose people they don’t know what to do with with “chronic fatigue syndrome” by exclusion rather than after thorough investigation and the use of more accurate criteria." full blog here...

Abstract published today: Abstract Myalgic encephalomyelitis (ME) is a neuromuscular disease with two distinctive types of symptoms (muscle fatigability or prolonged muscle weakness after minor exertion and symptoms related to neurological disturbance, especially of sensory, cognitive, and...

I have signed. https://www.change.org/p/the-us-department-of-health-and-human-services-cdc-adopt-the-distinct-disease-myalgic-encephalomyelitis-me-as-defined-by-icc-now?recruiter=2417656&utm_source=share_petition&utm_medium=facebook_link&utm_campaign=share_petition