ireland

"What about M.E.? - Four Short Plays About Myalgic Encephalomyelitis (Culture Night 2026)" Performed at the O'Donoghue Centre for Drama, Theatre and Performance (about one hour long) From the YouTube summary:

Characterizing Host Inflammatory Bioprofiles in People With Postacute Sequelae SARS‐CoV‐2 Infection (PASC) Abstract Postacute sequelae of COVID‐19 or “PASC” is a common but heterogeneous condition associated with significant morbidity. Although its pathogenesis remains poorly understood...

Drummartin Functional Medicine Clinic in Dublin, https://drummartinclinic.ie/tired-all-the-time/

Abstract Objectives To examine the effectiveness of exercise interventions to improve long COVID symptoms and the tolerance of exercise interventions among people with long COVID. Design Systematic review. Data sources Medline via EBSCOhost, Embase via OVID and CENTRAL via the Cochrane Library...

I thought it could be worth setting up a separate thread on this. These guidelines are separate to the NICE guidelines.

Opinion piece by George Winter The time has come to confront the damage caused by flawed science and give ME the recognition it deserves Writing in The Guardian in July, Dr Alastair Miller – who has “… been involved in the diagnosis and management of this condition since the mid-1980s…” –...

Free fulltext: https://journals.sagepub.com/doi/full/10.1177/17423953241282246 Doris O, Morrissey EC. Experiences of students with chronic illness in university education in Ireland. Chronic Illness. 2024;0(0). doi:10.1177/17423953241282246 One of the participants has ME/CFS. Abstract...

An investigation into General Practitioners’ experience with Long Covid Farrell, Aisling; O’Flynn, James; Jennings, Aisling BACKGROUND Long Covid (LC) is the continuation or development of new symptoms after initial COVID-19 infection. Little is known about General Practitioners’ (GP)...

https://invisible.international/the-tick-borne-disease-epidemic-in-ireland-a-call-for-more-research/ Notes under-counting in UK and Canada as well.

This research has got some coverage in the Irish media Free: https://hrbopenresearch.org/articles/5-16/v1 Research Article Mental health and alcohol use among patients attending a post-COVID-19 follow-up clinic: a cohort study [version 1; peer review: 1 approved] John Broughan...

Abstract Adults with long COVID often report intolerance to exercise. Cardiopulmonary exercise testing (CPET) has been used in many settings to measure exercise ability but has been conducted in a few long COVID cohorts. We conducted CPET in a sample of adults reporting long COVID symptoms...

we don't seem to have a thread for Ireland Irish ME patients hope HSE will follow UK and scrap exercise therapy guidance https://www.thejournal.ie/me-exercise-5590653-Nov2021/ @Tom Kindlon @Brian Hughes

New wide-ranging article on the RTE website. Note that most of it isn't about what is in the title. https://www.rte.ie/brainstorm/2021/0503/1213462-similarities-long-covid-chronic-fatigue-syndrome/ RTE is the national broadcaster in Ireland. It would be great if the article got lots of clicks...

Don't think this has been posted here yet? Hanne Thürmer is a Norwegian cardiologist and one of the researchers of the RituxME-trial. Haven't seen the talk yet, but she's very knowledgeable about ME and sympathetic, so this should be good!

@Tom Kindlon is one of the authors. Open access, https://hrbopenresearch.org/articles/3-88/v1

Good intentions regularly lead to terrible outcomes. While researchers’ hearts may be pure, that fact alone does not guarantee that their works will be blessed. In psychology, we sometimes talk about the “just-world fallacy”, the belief that in the end our collective actions will average out...

"Most of the parents I speak to going through this, say one of the hardest parts has been the constant fights with the doctors to get a diagnosis, to get help managing the symptoms but also just the isolation from family and friends not really getting it", Sarah admits. "You’re constantly...

NUI Galway This seems to be a survey; haven't looked at it in detail but is in dept Psychology @Tom Kindlon PARTICIPANT INFORMATION SHEET https://nuig-psychology.ie/index.php/555976?lang=en

full article here https://www.rsvplive.ie/life/living-with-woman-shares-fears-21787908

I've heard of postinfectious (fatigue) syndromes after a lot of infectious conditions, but I don't recall hearing of Legionnaires' disease. Unfortunately this article does not give much information on symptoms and impairments now, but perhaps more information will come out in the coming days...