me/cfs

https://www.medrxiv.org/content/10.1101/2024.05.16.24307437v1 Epidemiology of Myalgic Encephalomyelitis among individuals with self-reported Chronic Fatigue Syndrome in British Columbia, Canada, and their health-related quality of life Enkhzaya Chuluunbaatar-Lussier, Melody Tsai, Travis...

Link Medford MA, February 22, 2024 – PolyBio Research Foundation, a global collaboration convening the world’s leading chronic disease scientists, today announced the second phase of its LongCovid Research Consortium (LCRC), including the distribution of $15M to fund scientific research...

As the title suggests I’m looking for resources on why the Name “CFS” is problematic and “ME” or “ME/CFS” is recommended. Specifically I’m in contact with multiple people and communities that use the terminology “CFS” or “CFS/ME” and I would like to share with them a convincing document or...

Hello, I am part of a team of researchers at Newcastle University – funded by the ME Association, interested in finding out more about family planning, pregnancy, and raising children for people with ME/CFS. The overall aim of this exploratory study is to highlight research priorities, and...

Investigating the impact of ME/CFS and Long COVID on visual perception and sustained attention using Pupil Frequency Tagging and EEG (Leicester, UK) Individuals with Myalgic Encephalomyelitis / Chronic fatigue syndrome (ME/CFS) often report visual overload, difficulties filtering relevant from...

Hi everybody, I finally have the ethics in place to begin recruiting for our recently funded Mason Foundation study. ICC criteria. Healthy controls and pwME in VIC, Australia. Involves some questionaires and a blood and feces collection. We will home visit severely affected people. Primary...

https://journals.physiology.org/doi/abs/10.1152/ajpregu.00071.2024 Research Article Phenylephrine Alters Phase Synchronization between Cerebral Blood Velocity and Blood Pressure in Chronic Fatigue Syndrome with Orthostatic Intolerance Marvin S. Medow* and Julian M. Stewart 29 APR...

Not a recommendation :banghead: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a complex clinical condition characterized by overwhelming fatigue and associated symptoms like pain lasting greater than 6 months. ME/CFS is often initiated after an illness, exacerbated by stress...

Full title: Personalized Management of Fatigue in Individuals With Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Long COVID Using a Smart Digital mHealth Solution: Protocol for a Participatory Design Approach Abstract Background:Fatigue is the most common symptom in myalgic...

https://www.explorationpub.com/uploads/Article/A1001215/1001215.pdf Abstract Aim: It is unclear if individuals with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) with family histories of ME/CFS differ from those with ME/CFS without this family history. To explore this issue...

Full title: Impaired Hand Grip Strength Correlates with Greater Disability and Symptom Severity in Post-COVID Myalgic Encephalomyelitis/Chronic Fatigue Syndrome https://www.mdpi.com/2077-0383/13/7/2153 Abstract Post-COVID syndrome (PCS) encompasses a diverse array of symptoms persisting beyond...

Edit: This thread includes several other threads merged with it. Some earlier threads on this team's work: The Courier Mail: Australian scientists prove CFS is real and have discovered a test for it Dec 2017 to Jan 2018 Don Staines and Griffith Aug 2018 Australia - Parliamentarians learn...

Copied from this thread The British ME Association are requesting people to send them accounts of their experiences of health and social care as part of a planned campaign looking at good practice and the new NICE guidelines to roll out in ME Awareness Week in May and beyond. See...

Abstract Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a heterogeneous disorder with elusive causes, but most likely because of clinical and other biological factors. As a vital environmental factor, the gut microbiome is increasingly emphasized in various refractory diseases...

https://www.sciencedirect.com/science/article/pii/S2405844024030627 Identifying the mental health burden in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) patients in Switzerland: A pilot study Rahel Susanne König, Daniel Henry Paris, Marc Sollberger, Rea Tschopp PII...

https://www.tandfonline.com/doi/full/10.1080/21641846.2024.2314409 Research Article Can a consensus occur on a research case definition for ME/CFS? Leonard A. Jason, Suvetha Ravichandran & Aiden Rathmann Received 05 Dec 2023, Accepted 11 Jan 2024, Published online: 13 Feb 2024...

Hi, my name is Ben Westwood and I'm an undergraduate psychology student at The University of Worcester in the UK. This is the link to my final year research project: https://ucw.onlinesurveys.ac.uk/8svdjgru5x-11 Having spent most of my twenties living with ME/CFS and subsequently developing...

(From 2020) Sheffield ME and fibromyalgia group webinar ME/CFS in children and young people - Dr Nigel Speight Dr Nigel Speight, foremost UK expert in ME in children and young people, talking about 'ME in children and young people, an ideal approach compared with less than ideal approaches'...

Patrycja Kamila Przybylowicz, Katarzyna Ewa Sokolowska, Hubert Rola, Tomasz Kazimierz Wojdacz Independent Clinical Epigenetics Laboratory, Pomeranian Medical University, Szczecin, Poland Correspondence: Tomasz Kazimierz Wojdacz, Independent Clinical Epigenetics Laboratory, Pomeranian Medical...

(originally published in Aug 2023) Abstract Objectives To explore myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) patients' experiences of a health psychological group intervention and its usefulness, non-usefulness or harmfulness for illness management and adjustment. Design A...