mrc

There have been numerous discussions recently regarding research funding, with particular emphasis on the MRC. We know almost nothing in this space is being funded, but the exact reasons why are unknown. One major unknown is the number ME/CFS research proposals submitted to MRC each year (and...

A year ago, @Arvo made this interesting post on the Research Funding thread. There is the question of why there is an MRC file on ME that is redacted until 2071. Is this accurate? Is there any mechanism to find out why the file is not available? And also the question of MRC Board members. Is...

A thread to collate studies and reports on the historical (or current) level of ME/CFS research funding in the UK. I'm primarily interested in public funding, but reports and studies on charity funding can also be included here. I'll start with the UberResearch/Action for ME report from 2016.

UKRI budget allocation confirmed - details in pdf: https://www.ukri.org/wp-content/uploads/2022/05/UKRI-Budget-Allocations-2022-25_FINAL2.pdf figures given in Table 3 for Medical Research Council (MRC) core funding: 21/22 = £563mn, 22/23 =£548mn, 23/24 = £587mn...

MRC is now part of UKRI. On UKRI website: https://www.ukri.org/news/ukri-issues-statement-on-bullying-complaint/ News article (paywalled): https://www.thetimes.co.uk/article/scientist-who-took-on-bullies-says-shes-sorry-for-bullying-7pstqn0qr Watt, for those who had forgotten, has been a...

A person has contacted me to see if I could assist in finding the source/complete document of the application to MRC for the PACE trial. First page of the relevant document is in the picture. I can be contacted via DM or tomkindlon{a}hotmail.com

https://www.compass-southwark.co.uk/evidence RE-EDITT and Compass https://www.kingshealthpartners.org/our-work/mind-and-body/our-projects/reeditt-compass Ok Computer by Dr Joanna Hudson – 19th March, 2020 https://digitalhealth.london/ok-computer/#.XntkAq8n530.twitter (ME/CFS not...

An ME/CFS workshop has been announced by the MRC and NIHR. https://mrc.ukri.org/funding/science-areas/population-systems-medicine/our-science-and-contacts-psmb/cfsme/#workshop Statement from Stephen Holgate on behalf of the CMRC Statement from CureME Biobank Team FAQ from the ME/CFS...

Before the approval of the PACE trial there were several similar failed submissions to the MRC - only when they added "Specialist" Medical Care and I think the involvement of Action for ME was the trial approved. Can someone point me to the rejected / failed trial applications? I *think* I...

Professor Edwards' Letter to MRC's Fiona Watt Professor Edwards signed the open letter to The Lancet. He originally wrote his own letter to Professor Watt in confidence. Since she has now strongly endorsed PACE in her letter to The Times, he has given me permission to post what he wrote.

Published this morning: CHRONIC FATIGUE Sir, Further to your report “Call for review of ‘flawed’ ME research”(Aug 21), as funders of the Pace trial we reject the view that the scientific evidence provided by the trial for using cognitive behavioural theory and managed exercise in the...

Hello, First post, here goes... I recently placed a number of Freedom of Information requests with the funders of the PACE trial, named on the QMUL website. All the funders replied to my requests. All four named funders are below, with the donations they disclosed to me: The Department...

I asked the MRC for the application form. I received a heavily redacted version and asked them to review. I have now received a somewhat less redacted version. I note Wessely named as collaborator and that AfME sent a letter in support of the trial (redacted). Any thoughts on whether it's...

20/08/2017 "The Medical Research Council invites proposals under its cross-board highlight notice in the area of Chronic Fatigue Syndrome and Myalgic Encephalomyelitis. Proposals should address the mechanisms underlying chronic changes related to CFS and ME in one or more of the theme areas...