norway

The draft has now been published online. https://www.helsedirektoratet.no/retningslinjer/utmattelse-langvarig-utmattelse-inkl.me-cfs-horingsutkast For comment on the development of the guidelines, see Norway: 2025-2026 Chronic Fatigue and ME/CFS Guidelines - Development

A brief summary of the ongoing court case about disability benefits for a patient with ME/CFS that has been ill since the age of 4. NAV (the welfare authorities), claims that one should read about recovery stories and that recovery is about beliefs. Flottorp was on their side, an gave an...

The ME/CFS research team at Haukeland University Hospital in Bergen, Norway (Fluge, Mella, Rekeland, Sørland etc) is recruiting 66 participants for a new placebo-controlled trial on Daratumumab as a potential treatment for ME/CFS. The duration for participants is 72 weeks. The participants will...

Abstract Background: Patient participation can contribute to establishing high-quality, sustainable health services. This study explored patient representatives’ perceptions of developing primary healthcare services to identify contextual factors that matter to their participation. Methods...

What is this study about? This clinical trial is focused on studying the effects of a medication called daratumumab on patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). ME/CFS is a condition characterized by extreme fatigue that doesn’t improve with rest and can worsen...

Abstract Importance Post–COVID-19 condition (PCC) is emerging as a common and debilitating condition with few treatment options. Objective To assess the effectiveness of a brief outpatient rehabilitation program based on a cognitive and behavioral approach for patients with PCC. Design...

Abstract: Prognoses for persons affected by myalgic encephalomyelitis (ME) are rarely studied systematically. Existing studies are often based on smaller samples with unclear inclusion and subjective outcome criteria, and few look at wages as indicators of illness trajectories. This article...

Aberrations in medically certified sick leave and primary healthcare consultations in Norway in 2023 compared to pre-COVID-19-pandemic trends Abstract Background Since 2022, Norway has employed a vaccine-only COVID-19 strategy. Primary healthcare in Norway uses International Classification of...

Their website: https://www.oslonetwork.no/about-us

Some details are now know. I'm not happy about Chalder fatigue scale being used as primary outcome. https://clinicaltrials.gov/ct2/show/NCT03691987

February 2026: Publication of draft - see post #72 This thread has now been closed. The thread on the published guideline is here: Norway: 2026 Guidelines for chronic fatigue and ME/CFS ********************************** What a great forum this is! This is my very first post here and a...

https://bora.uib.no/bora-xmlui/handle/11250/3127770 Source: University of Bergen Date: May 2, 2024 Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): Clinical trials, medical treatment and pathomechanisms ------------------------------------------------------------ Ingrid Gurvin...

Background: Post-Exertional Malaise (PEM) is considered a hallmark characteristic of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). This may also apply to subgroups of patients with long COVID induced ME/CFS. However, it is uncertain to what extent PEM is acknowledged in routine...

Full title: ‘We have no services for you… so you have to make the best out of it’: A qualitative study of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome patients’ dissatisfaction with healthcare services Introduction People should have access to healthcare services that are effective, safe...

This thread is for a list of sub-national Norway ME/CFS and Long Covid organisations. National organisations are listed in ME/CFS and Long Covid charities/ organisations - International and National. Norwegian ME-association Austagder -- aust-agder@me-foreningen.no Norwegian ME-association...

"Journalisten" is a professional journal for Norwegian journalists, covering among other work conditions for journalists. They have had a series with articles about covering ME. Article 1: It started with an interview with the journalist Amanda Schei who wrote some articles on ME (with a BPS...

Psychological Adaptiveness to Critical Events: an introduction to the PACE study Psychological Adaptiveness to Critical Events: an introduction to the PACE study — Department of Psychiatry (ox.ac.uk) (I wonder if anyone has told him..........? although I know there is currently yet another...

Link to post with link to published paper ******************** Preprint: https://assets.researchsquare.com/files/rs-2021203/v1/5b03bf74-4a36-49f7-9a59-b63be81a30c2.pdf?c=1663177822 Prevalence and predictors of long COVID among non-hospitalised adolescents and young adults: a prospective...

Abstract The SARS-CoV-2 Omicron (B.1.1.529) variant has been associated with less severe acute disease, however, concerns remain as to whether long-term complaints persist to a similar extent as for earlier variants. Studying 1 323 145 persons aged 18-70 years living in Norway with and...

Subtitle: "A register study" Abstract (translated by me): Chronic fatigue syndrome/myalgic encephalopathy (ME/CFS) is a complex and chronic illness that is associated with a considerable reduction in quality of life for patients. In this study we estimate the incidence rate of ME/CFS in the...