norway

The ME/CFS research team at Haukeland University Hospital in Bergen, Norway (Fluge, Mella, Rekeland, Sørland etc) is recruiting 66 participants for a new placebo-controlled trial on Daratumumab as a potential treatment for ME/CFS. The duration for participants is 72 weeks. The participants will...

Abstract Background: Patient participation can contribute to establishing high-quality, sustainable health services. This study explored patient representatives’ perceptions of developing primary healthcare services to identify contextual factors that matter to their participation. Methods...

What is this study about? This clinical trial is focused on studying the effects of a medication called daratumumab on patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). ME/CFS is a condition characterized by extreme fatigue that doesn’t improve with rest and can worsen...

Abstract: Prognoses for persons affected by myalgic encephalomyelitis (ME) are rarely studied systematically. Existing studies are often based on smaller samples with unclear inclusion and subjective outcome criteria, and few look at wages as indicators of illness trajectories. This article...

Aberrations in medically certified sick leave and primary healthcare consultations in Norway in 2023 compared to pre-COVID-19-pandemic trends Abstract Background Since 2022, Norway has employed a vaccine-only COVID-19 strategy. Primary healthcare in Norway uses International Classification of...

Their website: https://www.oslonetwork.no/about-us

Some details are now know. I'm not happy about Chalder fatigue scale being used as primary outcome. https://clinicaltrials.gov/ct2/show/NCT03691987

What a great forum this is! This is my very first post here and a bit scary, but I have a question for you: The Norwegian health authorities are in the process of making brand new guidelines for ME/CFS and chronic fatigue with unexplained background. They will soon start a literature search...

https://bora.uib.no/bora-xmlui/handle/11250/3127770 Source: University of Bergen Date: May 2, 2024 Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): Clinical trials, medical treatment and pathomechanisms ------------------------------------------------------------ Ingrid Gurvin...

Background: Post-Exertional Malaise (PEM) is considered a hallmark characteristic of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). This may also apply to subgroups of patients with long COVID induced ME/CFS. However, it is uncertain to what extent PEM is acknowledged in routine...

Full title: ‘We have no services for you… so you have to make the best out of it’: A qualitative study of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome patients’ dissatisfaction with healthcare services Introduction People should have access to healthcare services that are effective, safe...

This thread is for a list of sub-national Norway ME/CFS and Long Covid organisations. National organisations are listed in ME/CFS and Long Covid charities/ organisations - International and National. Norwegian ME-association Austagder -- aust-agder@me-foreningen.no Norwegian ME-association...

"Journalisten" is a professional journal for Norwegian journalists, covering among other work conditions for journalists. They have had a series with articles about covering ME. Article 1: It started with an interview with the journalist Amanda Schei who wrote some articles on ME (with a BPS...

Psychological Adaptiveness to Critical Events: an introduction to the PACE study Psychological Adaptiveness to Critical Events: an introduction to the PACE study — Department of Psychiatry (ox.ac.uk) (I wonder if anyone has told him..........? although I know there is currently yet another...

Link to post with link to published paper ******************** Preprint: https://assets.researchsquare.com/files/rs-2021203/v1/5b03bf74-4a36-49f7-9a59-b63be81a30c2.pdf?c=1663177822 Prevalence and predictors of long COVID among non-hospitalised adolescents and young adults: a prospective...

Abstract The SARS-CoV-2 Omicron (B.1.1.529) variant has been associated with less severe acute disease, however, concerns remain as to whether long-term complaints persist to a similar extent as for earlier variants. Studying 1 323 145 persons aged 18-70 years living in Norway with and...

Subtitle: "A register study" Abstract (translated by me): Chronic fatigue syndrome/myalgic encephalopathy (ME/CFS) is a complex and chronic illness that is associated with a considerable reduction in quality of life for patients. In this study we estimate the incidence rate of ME/CFS in the...

Copied post A master thesis on ME from 2021 at NTNU, I think the patients are from Coperio rehab centre: Translation of the text in the image (reformatted by me): The patients are separated into four subgroups, based on a screening of individual needs and goals. These subgroups are as...

Purpose To explore the recovery narratives of 13 young women who had fallen ill with severe Myalgic Encephalomyelitis (ME), also known as Chronic Fatigue Syndrome (CFS), during childhood and adolescence, with the focus on what they had to say about their past experiences from the perspective of...

Norwegian: Fakta og myter om ME Google Translate: Facts and myths about ME It's the old arguments about how ME can be cured with cognitive therapy, that there's no scientific basis for harm from cognitive or graded exercise therapy and that IOM and NICE are not research do not represent...