norway

This is a presentation by Karl Johan Tronstad from the ME Research Group at University of Bergen and Haukeland University Hospital.

The newspaper Morgenbladet has a paywalled article today about a recent ME seminar in Oslo. The title is: Seminar for ME researchers required security and police on standby: - They are trying to get us The article begins with psychology professor and the organiser for the seminar Silje Endresen...

Split from the "News from Scandinavia" thread pwME were made fun of in a recent podcast by two well known media profiles in Norway (who have ties to Vogt and Kennair, both proponents of the Lightning Process study), among other things comparing talking an ME patient advocate to talking to ISIS...

Source: Inland Norway University Date: September 20, 2022 URL: https://brage.inn.no/inn-xmlui/handle/11250/3019314 Understanding the experiences of caring for a partner with myalgic encephalopathy: a qualitative study of men in Norway ----------------------------------------------- Elise...

Activity monitoring and patient-reported outcome measures in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome patients Rekeland IG, Sørland K, Bruland O, Risa K, Alme K, Dahl O, Tronstad KJ, Mella O, Fluge Ø Introduction: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a...

https://reutersinstitute.politics.ox.ac.uk/sites/default/files/2022-07/RISJ%20Paper_HanneO_Final.pdf?utm_campaign=Future%20of%20Journalism&utm_medium=email&utm_source=Revue%20newsletter This is listed as a 'Journalist Fellowship Paper', and I don't know if it's something likely to be read by...

Full title: No replication of previously reported association with genetic variants in the T cell receptor alpha (TRA) locus for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) Abstract Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a disease with a variety of...

Abstract BACKGROUND & AIMS The long-term efficacy and possible adverse events of fecal microbiota transplantation (FMT) for IBS are unknown. This study performed a 3-year follow-up of the patients in our previous clinical trial to clarify these aspects. METHODS This study included 125 patients...

Fluge et al are recruiting six moderate to severe ME patients for a pilot trial on Daratumumab. Participants need to be able to travel to Haukeland University Hospital in Bergen and been diagnosed according to the Canadian criteria from 2003. They need to be between 18 and 65 years old and...

Largest ME/CFS genetic study to date. Three different cohorts totaling more than 2500 patients. First Immunochip study in ME/CFS. Possible implication of TPPP genetic region https://www.sciencedirect.com/science/article/pii/S0889159122000782 TPPP plays a key role in myelination of nerve cells...

Now published. https://www.s4me.info/threads/assessing-functional-capacity-in-me-cfs-a-patient-informed-questionnaire-funcap-2024-sommerfelt-et-al.35464/page-3#post-538060 The discussion thread before the preprint was published and the preprint thread have been merged. Discussion of the...

A new website was launched today in Norway; LP-fortellinger (LP-stories). For now it has 32 stories about ME patients' negative experiences with Lightning Process. It also has some information about ME, LP, Recovery Norge and a collection of resources. The people behind the website are...

Moved post Excess risk and clusters of symptoms after COVID-19 in a large Norwegian cohort https://www.medrxiv.org/content/10.1101/2021.10.15.21265038v1 (Paragraphs mine for legibility) We aimed to calculate the excess risk and identify patterns of 22 symptoms up to 12 months after COVID-19...

Abstract Objectives To explore factors perceived as positive or negative among young people with chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) in relation to school and everyday life. Design A qualitative study with semistructured individual interviews performed at the local...

Introduction: Chronic fatigue syndrome (CFS/ME) is a disabling disease severely impacting school attendance, education, and social life in young students. Uncertainties surrounding CFS/ME etiology may impact the interpretation of CFS/ME in schools. Thus, school personnel need information from...

Abstract Objectives To investigate whether acute infection with Giardia lamblia is associated with fibromyalgia 10 years after infection and whether fibromyalgia is associated with irritable bowel syndrome (IBS) and chronic fatigue (CF) in this setting. Methods A cohort study was established...

Full title: Evaluation of Novel Concentrated Interdisciplinary Group Rehabilitation for Patients With Chronic Illnesses: Protocol for a Nonrandomized Clinical Intervention Study Abstract Background:An aging population with a growing burden of chronic complex illnesses will seriously challenge...

Abstract Long-COVID-19 is a proposed syndrome negatively affecting the health of COVID-19 patients. We present data on self-rated health three to eight months after laboratory confirmed COVID-19 disease compared to a control group of SARS-CoV-2 negative patients. We followed a cohort of 8786...

Full title: Fine mapping of the major histocompatibility complex (MHC) in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) suggests involvement of both HLA class I and class II loci Abstract The etiology of myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is unknown, but...

Does the Lightning Process Training Programme Reduce Chronic Fatigue in Adolescent and Young Adult Cancer Survivors? A Mixed-Methods Pilot Study Abstract Background: We report on a pilot intervention study exploring the efficacy of the Lightning Process® training programme for reducing chronic...