questionnaire

Sensibility of the Episodic Disability Questionnaire among adults living with Long COVID in Canada, Ireland, the United Kingdom, and the United States Abstract Background: Persons living with Long COVID experience a range of health-related challenges that may fluctuate over time, known as...

Development and initial content validation of the Vienna Post-Exertional Malaise Questionnaire: an iterative mixed-methods study Abstract Objectives Post-exertional malaise (PEM) is increasingly understood not as a singular symptom but as a multidimensional exertion-response pattern involving...

Novel activity and participation scales for children, adolescents, and young adults with postacute infection and vaccination syndromes and/or ME/CFS Children, adolescents, and young adults (CYP) with postacute infection and vaccination syndromes (PAIVS), and/or myalgic...

Disentangling Fatigue from Depression among Survivors of Severe COVID-19 PURPOSE Survivors of severe COVID-19 commonly experience post-intensive care syndrome (PICS), which includes depression and fatigue. Fatigue is far more common and may inflate depression severity given overlapping...

Psychometric evaluation of The Index of Myalgic Encephalomyelitis Symptoms TIMES. Part II: Criterion-related and discriminant validity, test-retest reliability and minimal detectable difference. OBJECTIVE To evaluate the criterion-related and discriminant validity, test-retest reliability and...

Development and psychometric evaluation of The Index of Myalgic Encephalomyelitis Symptoms TIMES Part I: Rasch Analysis and Content Validity OBJECTIVE To develop and psychometrically evaluate an assessment of symptoms in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) METHODS An...

Abstract Objective: The Chalder Fatigue Scale (CFQ) is a widely used instrument to assess fatigue in both clinical and nonclinical settings. Psychometric properties of the scale and discriminative abilities were examined. Methods: A total of 361 patients with CFS and 1615 individuals in the...

Establishing Clinically Relevant Severity Levels for the Central Sensitization Inventory OBJECTIVES The aim of this study was to create and validate severity levels for the central sensitization inventory (CSI), a valid and reliable patient-reported outcome instrument designed to identify...

Rethinking measurement of health outcomes in Long COVID: complexities, challenges and considerations The reality of Long COVID emerged soon after the beginning of the COVID-19 pandemic. More than five years later, thousands of articles have been published with multiple case definitions...

Construct validity of self-reported and interview-guided administration methods of the Danish version of the post-COVID−19 functional Status scale INTRODUCTION The Post-COVID-19 Functional Status (PCFS) scale was quickly adopted into COVID-19 research and clinical practice worldwide to monitor...

https://xcancel.com/robwust/status/1991503273484841039?s=12 Rob Wüst @RobWust ME/CFS & Long COVID patients: we need your help! We’re validating a new tool to measure post-exertional malaise (PEM). Current questionnaires don’t capture its severity or impact. Your input changes that! English...

Development and content validity of the Clinal Needs Assessment for Myalgic Encephalomyelitis (CNAME) Sarah F Tyson, Russell Fleming, Keith Geraghty, Peter Gladwell doi: https://doi.org/10.1101/2025.10.27.25338891 Abstract Purpose: To co-produce the Clinical Needs Assessment for Myalgic...

Psychometric evaluation of the PROMIS® physical function short form 12a for use by adults with myalgic encephalomyelitis/chronic fatigue syndrome BACKGROUND Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a debilitating, long-term illness that significantly impairs physical...

I thought it would be helpful to post a link to the DePaul University web page with their symptom questionnaires: https://csh.depaul.edu/about/centers-and-institutes/ccr/myalgic-encephalomyelitis-cfs/Pages/measures.aspx

Large-scale psychometric assessment and validation of the Modified COVID-19 Yorkshire Rehabilitation Scale C19-YRSm patient-reported outcome measure for Long COVID or Post-COVID syndrome Mike Horton; Adam Smith; Stephen Halpin; Ruairidh Milne; Darren Winch; Clare Rayner; Roman Rocha Lawrence...

The psychological and physiological effects of a virtual reality-based treatment program in female patients with fibromyalgia syndrome: A randomized controlled trial. Sari et al, 2025 Abstract The study aims to evaluate the effects of virtual reality (VR) programs on disease activity, central...

Abstract Debilitating symptoms of fatigue and accompanying “brain fog” are observed among patients with various chronic health conditions. Unfortunately, an efficient and psychometrically sound instrument to assess these co-occurring symptoms is unavailable. Here, we report the development and...

Study Overview Brief Summary Psychological distress (anxiety and depression) is common in and experienced differently by people living with long-term health conditions (LTCs). Being able to measure whether psychological distress is related to living with a LTC would allow researchers and...

Now published - link here Preprint Pediatric and Adult Patients with ME/CFS following COVID-19: A Structured Approach to Diagnosis Using the Munich Berlin Symptom Questionnaire MBSQ Laura C. Peo; Katharina Wiehler; Johannes Paulick; Katrin Gerrer; Ariane Leone; Anja Viereck; Matthias Haegele...

Many questionnaires used to measure depression ask about general symptoms such as fatigue, sleep, appetite, concentration etc. People with a chronic illness such as ME/CFS already have those symptoms and are thus more likely to score high on these depression questionnaires, even if they are not...