questionnaire

Abstract Objective To describe the development and validation of a novel patient reported outcome measure for symptom burden from long covid, the symptom burden questionnaire for long covid (SBQ-LC). Design Multiphase, prospective mixed methods study. Setting Remote data collection and social...

Posts have been copied from this thread about a study that used the MFI. The intro to the linked MFI questionnaire says Does anyone know what validation study they refer to? Because, applied to ME, some of the MFI questions are extremely open to different interpretations. Not to mention...

Now published. https://www.s4me.info/threads/assessing-functional-capacity-in-me-cfs-a-patient-informed-questionnaire-funcap-2024-sommerfelt-et-al.35464/page-3#post-538060 The discussion thread before the preprint was published and the preprint thread have been merged. Discussion of the...

I am raising this topic for discussion because I think there are fundamental problems with the design and use of questionnaires in ME/CFS and other medical research. Questions for consideration: 1. Should questionnaires ever be used to draw conclusions about psychological factors affecting...

Abstract Central Sensitization (CS) has been proposed as a common pathophysiological mechanism to explain related syndromes for which no specific organic cause can be found. The term Central Sensitivity Syndrome (CSS) has been proposed to describe these poorly understood disorders related to...

https://link.springer.com/article/10.1186/s12991-020-00311-5 Primary research Open Access Published: 09 October 2020 Norwegian reference data on the Fatigue Questionnaire and the Patient Health Questionnaire-9 and their interrelationship Alv A. Dahl1,2* , Kjersti Støen Grotmol3, Marianne...

I thought that this was of some interest as it has Wessely seeming to be unusually open about the limitations of questionnaires for assessing symptoms/disorders. Though this time that's seemingly partly because it goes against the 'work is good for you' creed used by the UK government (Waddell &...

I am a bit skeptical about this. https://publichealth.berkeley.edu/news-media/research-highlights/new-screening-tool-may-predict-chronic-pain-before-it-starts/

This seems to be an important article, hits many points and arguments that have been made repeatedly on this forum, namely that there is a problem with the content validity of questionnaires that measure catastrophizing. Here the Belgian authors looked at the validity of six pain...

I’m after some information about scales which measure severity of disease in ME/CFS, in terms of functional impairment (mild vs severe). There seem to be several which measure symptom severity and, whilst there will likely be a correlation between symptom and disease severity, they’re not the...

Elbers, R.G., Rietberg, M.B., van Wegen, E.E.H. et al. (2012), Self-report fatigue questionnaires in multiple sclerosis, Parkinson’s disease and stroke: a systematic review of measurement properties, Qual Life Res (2012) 21: 925. https://doi.org/10.1007/s11136-011-0009-2 Abstract: Chalder...

New study on PEM by the research team of Leonard Jason. I'm sure many on this forum will have filled in the online questionnaire:

Full paper (PDF file), https://link.springer.com/epdf/10.1007/s10286-018-00586-5?shared_access_token=STPXS4PtJZOInVSXh8x-Mfe4RwlQNchNByi7wbcMAY660rig95e8st82z-CMxT4KiCk81BpD7DOoNq3KMVlYwM6FCVf_FXKtfFM1z-YvJJbjMgP9QCLqADOEFlJpB88Elu-TN36S3zHCJJbtNRbx7FEiObmkUmlXDKOql6z1yPE%3D also paywalled at...

Open access at https://www.frontiersin.org/articles/10.3389/fped.2018.00330/full

http://journals.sagepub.com/doi/abs/10.1177/1359105318805819?journalCode=hpqa

https://uhdspace.uhasselt.be/dspace/handle/1942/26531

Does anyone have this questionnaire? I'm trying but failing to find it.

All, As some of you know i've been trying to identify whether there are conditions other than Infections such as EBV that may be setting the stage for ME/CFS or co-exist with ME/CFS. Machine Learning suggests that Liver-related conditions may be of particular interest. I created a...

I don't remember seeing anything about this previously: http://www.bristol.ac.uk/ccah/research/childdevelopmentdisability/chronic-fatigue/ The above page also includes this: I wonder if they'll try to justify a definition of recovery which just means 'filling in a few forms a bit more...

by James C Coyne November 15, 2017 https://www.coyneoftherealm.com/blogs/mind-the-brain/stop-using-the-adverse-childhood-experiences-checklist-to-make-claims-about-trauma-causing-physical-and-mental-health-problems