report

Contributor(s): National Academies of Sciences, Engineering, and Medicine; Health and Medicine Division; Board on Health Care Services; Laura Aiuppa Denning and Erin Hammers Forstag, Rapporteurs -- 'Long COVID' refers to the wide range of long-lasting symptoms experienced by some patients...

Split from NICE ME/CFS guideline - draft published for consultation - 10th November 2020 MEpedia states this on the page about the York Centre for Reviews and Dissemination - looks like Wessely had his sticky fingers all over this, which really shouldn’t surprise us at all... “Professor...

The Role of Prevention in Reducing the Economic Impact of ME/CFS in Europe: A Report from the Socioeconomics Working Group of the European Network on ME/CFS (EUROMENE) Derek F. H. Pheby 1,*, Diana Araja 2, Uldis Berkis 3, Elenka Brenna 4, John Cullinan 5, Jean‐Dominique de Korwin 6,7, Lara...

M.E. In BC [British Columbia]: How the healthcare system for M.E. impacts clinicians and patients This is a preliminary study assessing the unmet needs of patients living with ME; 25 patients were either interviewed or participated in a focus group. Over 170 health care professionals/...

https://bmcpsychiatry.biomedcentral.com/articles/10.1186/s12888-019-2235-z Naomi Petra Moller, Gemma Ryan, Jasmine Rollings & Michael Barkham Abstract This commentary examines publicly available information on 2017–2018 outcomes in the UK government’s Improving Access to Psychological...

https://www.centreforwelfarereform.org/uploads/attachment/681/energy-impairment-and-disability-inclusion.pdf?utm_source=Chronic+Illness+Inclusion+Project&utm_campaign=3f6549f63d-EMAIL_CAMPAIGN_2019_12_10_04_51&utm_medium=email&utm_term=0_7303002384-3f6549f63d-78135457 This has just been...

Deadline of November 10th 2017 to submit your input to the parliamentary inquiry on PIP and ESA http://www.parliament.uk/business/committees/committees-a-z/commons-select/work-and-pensions-committee/inquiries/parliament-2017/pip-esa-assessments-17-19/

The National Clinical Audit of Anxiety and Depression (NCAAD) has published a new report following an audit of psychological therapies provided in secondary mental health care settings...

Your experience of ME services - Survey report by #MEAction UK Article: https://www.meaction.net/2019/10/17/me-services-in-the-uk-not-fit-for-purpose/ Full report: https://www.meaction.net/wp-content/uploads/2019/10/Your-experience-of-ME-services-Survey-report-by-MEAction-UK.pdf Results...

Does anyone have a digital copy of "National Task Force on Chronic Fatigue Syndrome, Post Viral Fatigue Syndrome, Myalgic Encephalomyelitis. Bristol:Westcare: 1994." https://books.google.be/books/about/Report_from_the_National_Task_Force_on_C.html?id=dfb7uAAACAAJ&redir_esc=y

I've only read the summary so far, but it looks amazing. Here are a few Google translated quotes from the summary: "A key message in the report is: The most ill ME patients are an extremely vulnerable group with minimal or no margins, where even small mistakes can lead to prolonged and severe...

Yesterday the Belgium assessment report from the ME/CFS centre in Leuven came out. There are a lot of bad things in this report. CBT was for example said to be successful when the improvements were probably no larger than natural progression of the disease (discussion of the report here). But...

https://www.thetimes.co.uk/edition/news/pick-up-thy-bed-and-work-out-gps-give-rest-cure-its-marching-orders-792w52z38 Under the NHS-wide Moving Medicine project, due to begin on September 10, GPs, nurses and other health professional will be given scripts to help them persuade patients to...

Oxfordshire ME Group for Action (OMEGA) Experiences of Children with ME July 2018 Main Report http://www.trevwilliams.co.uk/OMEGA%20Report%20Children's%20Experiences%20of%20ME.pdf Executive Summary...

I thought that in response to the Ministers statement at the debate on PACE yesterday that a break down of funding for research between psychological 'treatment' and actual biomedical research would also clearly show how skewed the research into ME is. The only figures that have been collated...

I found this report from 2013 which I think is pretty good and accurate (I'm only skimmed thro it though). It is more than the title would suggest. It's a shame that it would seem nothing resulted from it...