research

Reduced diversity and altered composition of the gut microbiome in individuals with myalgic encephalomyelitis/chronic fatigue syndrome Abstract Background Gastrointestinal disturbances are among symptoms commonly reported by individuals diagnosed with myalgic encephalomyelitis/chronic fatigue...

Developing, optimising and implementing a blended digital self-management tReatmEnt for FatigUe in multiplE scLerosis (REFUEL-MS) https://fundingawards.nihr.ac.uk/award/NIHR203290 https://www.refuel-ms.com/ Chief Investigator(s): Professor Rona Moss-Morris Co-investigators Start Date...

A thread to collate studies and reports on the historical (or current) level of ME/CFS research funding in the UK. I'm primarily interested in public funding, but reports and studies on charity funding can also be included here. I'll start with the UberResearch/Action for ME report from 2016.

Long COVID: The impact on language and cognition Louise Cummings Abstract COVID-19 continues to have profound health and economic consequences around the world. Aside from the large number of deaths from this viral infection, there is a growing population of individuals who have not made a good...

Paywalled Financial Times link Source blogs (first 2 published entries of 4) — [109] Data Falsificada (Part 1): "Clusterfake" [110] Data Falsificada (Part 2): "My Class Year Is Harvard"

New thread created by collecting posts from a number of other threads If someone's in a listening mood, there's no transcript. 30 minutes with the NIH Recover initiative lead: Direct link: https://www.nejm.org/action/showMediaPlayer?doi=10.1056/NEJMdo006435&aid=10.1056/NEJMe2201619&area=.

"Our foundation supports nationally and internationally recognized research projects, non-profit organizations to support those affected and charity projects to combat diseases such as myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS) and related diseases. "We can build on a network...

This is a House of Commons Committee report, with recommendations to government. The Government has two months to respond. Reproducibility and Research Integrity - Science, Innovation and Technology Committee (parliament.uk) full report and related info Reproducibility and Research Integrity -...

EU ready to back immediate open access without author fees https://www.researchprofessionalnews.com/rr-news-europe-infrastructure-2023-5-eu-ready-to-back-immediate-open-access-without-author-fees/ Note: I saw this link on Mastodon so I'm sharing it here. I'm not familiar with "Research...

[I think this is the right forum for this study but please move if it's in the wrong place] Cerebellar Excitability Regulates Physical Fatigue Perception https://www.jneurosci.org/content/43/17/3094 The Washington Post has an article discussing this study which is how I found it: Rethinking...

I’m getting quite obsessed with the AI Revolution stuff and thought it could be worth starting a thread to share resources which could be applied to ME in some way. I know some of the ME researchers do keep up with the forum. It might be that some others on the forum have skills to use existing...

In counties with more Black doctors, Black people live longer, ‘astonishing’ study finds https://www.statnews.com/2023/04/14/black-doctors-primary-care-life-expectancy-mortality/

Hi, I’m trying to find relevant information for a friend who is writing a book and would like to provide a list of research that has been stopped due to lack of funding. Does such a list exist? I need references as it’s an academic book. thanks, Richard

Interesting video with lots of overlap with us, although some of it is the exact opposite. I have been noticing that, generally speaking, things are just as dysfunctional in autism research in terms of conflict between perception and reality. It's the exact same story of not listening to...

The MEA shared this UK Parliamentary petition on their Facebook page recently, it may have been shared elsewhere, so sorry if this is a duplicate Urgent funding for research into Long Covid and ME/CFS treatments and cures “Around a quarter of a million people are suffering with ME/CFS in the...

Don't fully know what to make of this. I think it's a sensationalist mess of an article. What leaped out at me was the first line 'Public healthcare systems form a vital part of the welfare state.' 'COVID-19 and the Political Economy of Mass Hysteria' Abstract 'In this article, we aim...

https://cms.nova.edu/nim/research-studies/research-studies-pages/INIM-studies/FAQs-COVID-19-post-viral.html

Press release: EU supports research on poorly understood diseases Thanks to the dedicated work of Belgian Member of the European Parliament (MEP) Pascal Arimont and colleagues, Horizon Europe will provide new funding opportunities for research on high-burden, under-researched diseases. While...

Groundbreaking research into ME/CFS a pandemic ‘silver lining’ https://healthydebate.ca/2022/12/topic/research-mecfs-pandemic-silver-lining/

This paper is from 1995 Chronic fatigue syndrome and the athlete Abstract Chronic fatigue syndrome (CFS), previously known as myalgic encephalomyelitis, causes an athlete who was once energetic, competitive, and resourceful to become chronically exhausted, weak, and debilitated. The illness...