sweden

  1. mango

    Sweden: termination of the contract for specialist medical care for ME in Stockholm, including the Bragée ME Center, 2023

    Posts moved from News from Scandinavia Local news from Stockholm, Sweden. According to a news article today, the politicians of Region Stockholm (the local government responsible for healthcare among other things) have decided to terminate the contract for Exhaustion Disorder and Chronic Pain...
  2. Wyva

    The Significance of Pain Drawing as a Screening Tool for Cervicogenic Headache and Associated Symptoms in Chronic Fatigue, 2022, Bernhoff et al

    Purpose: Patients with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) present with a broad spectrum of symptoms, including headache. A simple, yet powerful tool – the pain drawing identifies essential aspects such as pain distribution. The aim with this study was to 1) evaluate the...
  3. mango

    Dr Björn Bragée and the Bragée ME-center in Stockholm, Sweden

    Moved from the News from Scandinavia thread (This isn't news, but I wasn't sure where else to put it. Sorry. Felt important to document.) This is from a post by Dr Björn Bragée of Bragée ME-center in Stockholm, Sweden. It was published in March 2021, in a public Facebook group on precision...
  4. mango

    Sweden: Free webinar on long covid, 6 May 2022

    There will be a webinar on post covid, in Swedish, Friday 6 May, 10.00-12.00. Free of charge, open to anyone. Registration is required. Program and registration: https://www.hjart-lungfonden.se/postcovid/ Organizers: the Swedish Heart Lung Foundation in collaboration with the Royal Swedish...
  5. SNT Gatchaman

    Evaluation of science advice during the COVID-19 pandemic in Sweden, Brusselaers et al, 2022

    Evaluation of science advice during the COVID-19 pandemic in Sweden Nele Brusselaers, David Steadson, Kelly Bjorklund, Sofia Breland, Jens Stilhoff Sörensen, Andrew Ewing, Sigurd Bergmann & Gunnar Steineck Abstract Sweden was well equipped to prevent the pandemic of COVID-19 from becoming...
  6. mango

    In Swedish: Useful resources about ME/CFS and associated conditions

    1177.se Vårdguiden: ME/CFS https://www.1177.se/sjukdomar--besvar/hjarna-och-nerver/langvarig-trotthet-och-narkolepsi/mecfs/ Viss.nu: ME/CFS https://viss.nu/kunskapsstod/vardprogram/me-cfs Riksförbundet för ME-patienter https://rme.nu
  7. mango

    Characterization and Intervention Studies in Patients with POTS and IST Associated with PACS (planned study) Ståhlberg et al

    Characterization and Intervention Studies in Patients with Postural Orthostatic Tachycardia Syndrome and Inappropriate Sinus Tachycardia Associated with Post-Acute COVID-19 Syndrome Principal Investigator: Dr. Marcus Stahlberg [Ståhlberg], Karolinska University, Sweden "The overall purpose of...
  8. Andy

    Is Cognitive Change Necessary to Alleviate Symptoms in Patients With Functional Somatic Syndrome?, 2021, Maroti and Johansson

    Introduction What has been included under the umbrella term “Functional somatic syndromes” (FSS) has varied over the years. Diagnoses such as “somatoform” and “somatic symptom disorders,” as well as “medically unexplained symptoms,” have been included in FSS (1). Although there is no complete...
  9. Sly Saint

    Limbic Perfusion Is Reduced in Patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), 2021, Xia Li et al

    Abstract Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is an illness characterized by a diverse range of debilitating symptoms including autonomic, immunologic, and cognitive dysfunction. Although neurological and cognitive aberrations have been consistently reported, relatively...
  10. Kalliope

    "Can someone as Young as You Really Feel That Much Pain?" - A survey on How People With Fibromyalgia Experience Healthcare in Sweden, 2021, Hasselroth

    SAGE Open Nursing "Can Someone as Young as You Really Feel That Much Pain?" - A Survey on How People With Fibromyalgia Experience Healthcare in Sweden - Hasselroth et al - 2021 Research show that fibromyalgia has low credibility in healthcare, leading to poor treatment, lack of knowledge and...
  11. mango

    Sweden: ME clinic and Masano Health digital rehab for ME/CFS

    Masano Health AB is a privately owned digital rehab company in Sweden. It's a quite new company, started in November-December 2020 according to information on their website. They updated their website yesterday to add information about their digital rehab for ME/CFS...
  12. mango

    Care for people with ME/CFS - Swedish parliament/Sveriges Riksdag 26.05.2021

    A member of the Swedish Riksdag ("the Parliament") has asked the Minister for Health and Social Affairs a formal question about ME/CFS. The question will be answered in writing. Vård för personer med ME/CFS...
  13. mango

    Sweden: Open hearing on ME/CFS in the Riksdag 27 May 2021

    Copied post from News from Scandinavia There will be an open hearing on ME/CFS and infection triggered fatigue syndrome in the Swedish Riksdag on 27 May, hosted by the Social Affairs Committee. It will be available to watch online. The Riksdag is the highest decision-making assembly in Sweden...
  14. mango

    The Royal Swedish Academy of Sciences' report on long covid

    The Royal Swedish Academy of Sciences (Kungliga Vetenskapsakademin) published a report on long covid today. The portrayal of ME in the report is very problematic, and I feel it needs to be challenged. Postakut Covid-19-syndrom – långtidskomplikationer av Covid-19...
  15. Kalliope

    Book in Sweden by professor emeritus Kjell Asplund on research misconduct and narcissism

    Kjell Asplund, MD and professor emeritus at Department of Public Health and Clinical Medicine has published the book Fuskarna - (My translation of title: The cheaters. On Macchiarini and other's betrayal of science) It's about several research misconducts, both in Sweden and internationally. He...
  16. mango

    Sweden: Webinar: Gunnar Olsson on ACT for ME, hosted by Bragée ME Center

    Gunnar Olsson Fatigue, exhaustion, ME and ACT About psychology, energy and mitochondria - a new holistic view This webinar (in Swedish) took place on 14 April 2021, and the recording has now been published. It's part of a series of free so called educational seminars presented by Bragée...
  17. Sly Saint

    ME researcher Jonas Bergquist - interviews, talks

    Graeme Jones and Annie Pettersson at Nordic Clinic Stockholm has interviewed Jonas about ME/CFS and his unique research. You can view or listen to the full interview below. https://nordicclinic.se/interview-with-me-researcher-jonas-bergquist/ also on youtube eta: in english
  18. M

    A comprehensive clinical and laboratory evaluation of 224 patients with persistent symptoms attributed to presumed tick-bite exposure (2021) Nilsson

    A comprehensive clinical and laboratory evaluation of 224 patients with persistent symptoms attributed to presumed tick-bite exposure Abstract Background: Persistent symptoms attributed to presumed tick-bite exposure constitute an unresolved medical controversy. We evaluated whether Swedish...
  19. Wyva

    Long-Haul Post–COVID-19 Symptoms Presenting as a Variant of Postural Orthostatic Tachycardia Syndrome: The Swedish Experience, 2021, Johansson et al

    Abstract Major clinical centers in Sweden have witnessed an inflow of patients with chronic symptoms following initial outpatient care for coronavirus disease-2019 (COVID-19) infection, suggestive of postural orthostatic tachycardia syndrome. This report presents the first case series of 3...
  20. Anna H

    Open Cervicocranial dysfunction, neuroinflammation and infection in ME/CFS compared to healthy subjects, Bragée & Bertilson [MEPRO study]

    Bragée Clinic in Sweden is planning a study looking at 'Craniocervical dysfunction, neuroinflammation and infection in ME/CFS ws healthy controls' Jonas Bergquist from OMF's research center in Uppsala, among others. ETA: The study will include 80 patients from the Bragée clinic with an...
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