terminology

  1. Sly Saint

    USA: “Movie About M.E." and "Banner for Awareness" (formerly "One Name Campaign")

    Date & Time : Fri, Jun 16 5:00 PM - 7:00 PM **Events may have been canceled or postponed. Please contact the venue to confirm the event. https://www.independent.com/events/movie-screening-movie-about-m-e-long-covid-event/
  2. C

    Disorder or difference? Autism researchers face off over field’s terminology, 2023, Rachel Zamzow

    Science.org Disorder or difference? Autism researchers face off over field’s terminology Rachel Zamzow Excerpt A long-smoldering debate among scientists studying autism has erupted. At issue is language—for example, whether researchers should describe autism as a “disorder,” “disability,”...
  3. Arvo

    Coining a term for being limited in your interrelated energy and time.

    Just one of these things I have tumbling around in the back of my head for a while now, and I was curious about your opinion. One of the key characteristics of ME/CFS is that you are limited in what you can do, there is an "energy envelope" that is markedly smaller than pre-illness. You can...
  4. Sly Saint

    Reclaiming terminology for ME/CFS

    Brain fog, and now post exertional malaise, terms that were until fairly recently only used to describe ME/CFS symptoms have been hijacked and become generic terms. Maybe we should learn from the Fibromyalgia community? They use fibro fog, there are many article on this (even the NHS recognise...
  5. Dx Revision Watch

    The WHO has approved my proposal for removal of "Benign" from "Benign myalgic encephalomyelitis" for ICD-11

    Yesterday, the WHO approved my February 2020 proposal for removal of "Benign" from "Benign myalgic encephalomyelitis" for ICD-11. See thread: Updates on status of ICD-11 and changes to other classification and terminology systems Post #443...
  6. Sly Saint

    Is the 'fatigue'/'tiredness' experienced by pwME a form of Dynapenia?

    I was playing around with a medical dictionary to try and come up with an alternative for 'fatigue' which is more or less the common denominator in all ME/CFS diagnostic criteria. Note: I was not trying to invent a new name for the illness! Anyway, having come up with a couple I thought I'd...
  7. Dx Revision Watch

    Updates on status of ICD-11 and changes to other classification and terminology systems

    Updates on status of ICD-11 and changes to other classification and terminology systems I've created this thread specifically for reporting on the status of ICD-11 and for updates on changes to other classification and terminology systems. An initial version of ICD-11 is scheduled for release...
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