young people

Free full text: https://bmjpaedsopen.bmj.com/content/4/1/e000620.abstract

https://www.sciencedirect.com/science/article/pii/S1319562X20300887 (is this the study that Karl Morten refers to?)

https://bmjpaedsopen.bmj.com/content/4/1/e000617 full paper pdf: https://bmjpaedsopen.bmj.com/content/bmjpo/4/1/e000617.full.pdf "However, patients who recover appear to have less pain than those who do not recover." :cookie:

https://www.researchsquare.com/article/2cbbe49c-bacd-499d-9b58-711c37b05aea/v1

Leonard Jason research finds that many young people have ME/CFS A new study finds that 0.75%, or 1 in 130 young people, have ME.CFS. That's a lot of people living with the illness. Only 5% of those diagnosed with the illness already had a diagnosis. Prevalence increased rapidly as children...

full article here https://www.independent.co.uk/life-style/health-and-families/young-carers-charity-support-mental-health-disability-awareness-carers-week-2019-university-a8946801.html

Posted by Dr. Marc-Alexander Fluks to various fora. Can't find it online, only similar ones including 'thousands' instead of 'hundreds' of patients. Source: ME Association Winter magazine Ref: http://www.measussex.org.uk Thirty years of seeing patients with ME/CFS...

The team of Leonard Jason have performed a prevalence study in Chicago on children and adolescents with ME/CFS. Because this was a community-based study with clinician confirmed diagnosis, this is probably one of the best studies on the prevalence of pediatric ME/CFS thus far...

Eligibility https://www.lincolnshire.gov.uk/special-educational-needs-disabilities-send/childrens-social-care-1/2

full paper here https://bmjpaedsopen.bmj.com/content/3/1/e000543

https://solvecfs.org/wp-content/uploads/2019/12/20191211-CFS-Ped-Flyer.pdf

Open access, https://onlinelibrary.wiley.com/doi/full/10.1111/apa.15054

https://onlinelibrary.wiley.com/doi/abs/10.1002/cpp.2417?af=R eta: full paper now available https://sci-hub.tw/10.1002/cpp.2417

https://adc.bmj.com/content/early/2019/11/28/archdischild-2019-317843?rss=1

Developing and pretesting a new patient reported outcome measure for paediatric Chronic Fatigue Syndrome/ Myalgic Encephalopathy (CFS/ME): cognitive interviews with children full paper https://jpro.springeropen.com/articles/10.1186/s41687-019-0156-8 eta:

Document attached to this post. Source: https://paedmhassoc.files.wordpress.com/2018/11/mus-guide-with-leaflet-nov-2018.pdf, which is a 'behind the scenes" link for this webpage, https://pmha-uk.org/ Internet archive link...

Hello, Dr Elisha Josev is clinician-researcher at the Murdoch Children’s Research Institute, Royal Children’s Hospital, studying investigating short-term and long-term effects of paediatric ME and CFS (Jason et al definition) on brain structure and function...

Has anyone done /reviewed the online program from the Northeastern University School of Nursing? Wondering if we can recommend it (in NZ). (and presuming it can be accessed outside the US) Title: Online Program Why Can't This Child Get to Class? Learn how ME/CFS keeps youth from attending...

A young woman with ME has started UK Parliamentary petition seeking training in relation to ME for teachers: https://petition.parliament.uk/petitions/266152 It can be signed by any UK resident or UK citizens including those living overseas.

Tea and cake: an opportunity for young people and their parents/guardians to eat cake and share ideas For more on the conference see this thread: https://www.s4me.info/threads/me-cfs-contributions-at-royal-college-of-paediatrics-and-child-health-conference-may-2019.9555/