young people

  1. Sly Saint

    Wider collateral damage to children in the UK because of the social distancing [...] COVID-19, 2020, Crawley et al. And other papers by Crawley et al

    Wider collateral damage to children in the UK because of the social distancing measures designed to reduce the impact of COVID-19 in adults Esther Crawley1, Maria Loades1,2, Gene Feder3, Stuart Logan4, Sabi Redwood5, John Macleod2 https://bmjpaedsopen.bmj.com/content/4/1/e000701 Hmm...
  2. Dolphin

    CBT combined with music therapy for chronic fatigue following Epstein-Barr virus infection in adolescents: a feasibility study, 2020, Wyller et al

    Free full text: https://bmjpaedsopen.bmj.com/content/4/1/e000620.abstract
  3. Sly Saint

    Isolation of ultrasmall (filterable) bacteria from patients suffering from ME, and patients and staff of a paediatric hospital- Alharbi - Mar 2020

    https://www.sciencedirect.com/science/article/pii/S1319562X20300887 (is this the study that Karl Morten refers to?)
  4. Sly Saint

    Interventions to treat pain in paediatric CFS/ME: a systematic review - Crawley et al Jan 2020

    https://bmjpaedsopen.bmj.com/content/4/1/e000617 full paper pdf: https://bmjpaedsopen.bmj.com/content/bmjpo/4/1/e000617.full.pdf "However, patients who recover appear to have less pain than those who do not recover." :cookie:
  5. Sly Saint

    Health-related quality of life in adolescents with CFS/ME, a cross-sectional population based Norwegian study-Simila,Halsteinli,Helland et al Feb 2020

    https://www.researchsquare.com/article/2cbbe49c-bacd-499d-9b58-711c37b05aea/v1
  6. Simon M

    Leonard Jason research finds that many young people have ME/CFS (Simon M blog)

    Leonard Jason research finds that many young people have ME/CFS A new study finds that 0.75%, or 1 in 130 young people, have ME.CFS. That's a lot of people living with the illness. Only 5% of those diagnosed with the illness already had a diagnosis. Prevalence increased rapidly as children...
  7. Sly Saint

    Young carers awareness day Jan 30th : article- 'One day it just got too much': The hidden lives of young carers

    full article here https://www.independent.co.uk/life-style/health-and-families/young-carers-charity-support-mental-health-disability-awareness-carers-week-2019-university-a8946801.html
  8. MeSci

    United Kingdom: Sussex & Kent ME/CFS Society News

    Posted by Dr. Marc-Alexander Fluks to various fora. Can't find it online, only similar ones including 'thousands' instead of 'hundreds' of patients. Source: ME Association Winter magazine Ref: http://www.measussex.org.uk Thirty years of seeing patients with ME/CFS...
  9. ME/CFS Science Blog

    The Prevalence of Pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in a Community-Based Sample (2020) Jason et al.

    The team of Leonard Jason have performed a prevalence study in Chicago on children and adolescents with ME/CFS. Because this was a community-based study with clinician confirmed diagnosis, this is probably one of the best studies on the prevalence of pediatric ME/CFS thus far...
  10. Sly Saint

    Lincolnshire County Council; Children's social care 2020

    Eligibility https://www.lincolnshire.gov.uk/special-educational-needs-disabilities-send/childrens-social-care-1/2
  11. Sly Saint

    How are behavioural interventions delivered to children (5–11 years old): a systematic mapping review - Brigden, Crawley et al Dec 2019

    full paper here https://bmjpaedsopen.bmj.com/content/3/1/e000543
  12. Dolphin

    Open (California, USA) CDC-funded study on children aged 10-17 with ME/CFS

    https://solvecfs.org/wp-content/uploads/2019/12/20191211-CFS-Ped-Flyer.pdf
  13. Andy

    Paediatric patients with [ME/CFS] value understanding and help to move on with their lives, 2019, Katherine Rowe

    Open access, https://onlinelibrary.wiley.com/doi/full/10.1111/apa.15054
  14. Sly Saint

    CAN LINGUISTIC ANALYSIS BE USED TO IDENTIFY WHETHER ADOLESCENTS WITH A CHRONIC ILLNESS ARE DEPRESSED? - Jones, Loades, Crawley et al Dec 15 2019

    https://onlinelibrary.wiley.com/doi/abs/10.1002/cpp.2417?af=R eta: full paper now available https://sci-hub.tw/10.1002/cpp.2417
  15. Sly Saint

    Body mass in adolescents with chronic pain: observational study - Gauntlett-Gilbert, Bhat,Clinch 2019

    https://adc.bmj.com/content/early/2019/11/28/archdischild-2019-317843?rss=1
  16. Sly Saint

    Developing and pretesting a new patient reported outcome measure for paediatric CFS/ME: cognitive interviews with children, 2019, Crawley et al

    Developing and pretesting a new patient reported outcome measure for paediatric Chronic Fatigue Syndrome/ Myalgic Encephalopathy (CFS/ME): cognitive interviews with children full paper https://jpro.springeropen.com/articles/10.1186/s41687-019-0156-8 eta:
  17. Andy

    UK: Document: MEDICALLY UNEXPLAINED SYMPTOMS (MUS) IN CHILDREN AND YOUNG PEOPLE, 2018

    Document attached to this post. Source: https://paedmhassoc.files.wordpress.com/2018/11/mus-guide-with-leaflet-nov-2018.pdf, which is a 'behind the scenes" link for this webpage, https://pmha-uk.org/ Internet archive link...
  18. MyalgicE

    Meet the Scientists: Dr Elisha Josev

    Hello, Dr Elisha Josev is clinician-researcher at the Murdoch Children’s Research Institute, Royal Children’s Hospital, studying investigating short-term and long-term effects of paediatric ME and CFS (Jason et al definition) on brain structure and function...
  19. R

    Online Program for School Nurses - Learn how ME/CFS keeps youth from attending school

    Has anyone done /reviewed the online program from the Northeastern University School of Nursing? Wondering if we can recommend it (in NZ). (and presuming it can be accessed outside the US) Title: Online Program Why Can't This Child Get to Class? Learn how ME/CFS keeps youth from attending...
  20. Peter T

    UK petition for teacher education

    A young woman with ME has started UK Parliamentary petition seeking training in relation to ME for teachers: https://petition.parliament.uk/petitions/266152 It can be signed by any UK resident or UK citizens including those living overseas.
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