Developing and pretesting a new patient reported outcome measure for paediatric Chronic Fatigue Syndrome/ Myalgic Encephalopathy (CFS/ME):...
A GUIDE to assessing and managing patients under the age of 18 who are referred to secondary care This Guide is endorsed by the Royal College of...
Hello, Dr Elisha Josev is clinician-researcher at the Murdoch Children’s Research Institute, Royal Children’s Hospital, studying investigating...
Has anyone done /reviewed the online program from the Northeastern University School of Nursing? Wondering if we can recommend it (in NZ). (and...
A young woman with ME has started UK Parliamentary petition seeking training in relation to ME for teachers: Staff training and mandatory support...
Tea and cake: an opportunity for young people and their parents/guardians to eat cake and share ideas Abstract Background The Treatment and...
Prognosis for childhood CFS is excellent Abstract Aims Services for childhood Chronic Fatigue Syndrome (CFS) are variable across the UK. We...
A young woman with very severe ME contacted me to help tell her story. Over the past couple of months she’s told her harrowing story of...
Pretty good article from Vice about the reality of social services in the UK threatening sanctions against the parents of children with ME....
Can't actually find this paper, but the abstract has been posted at Bath and I thought it might be of interest, even though they don't really say...
Introduction Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a disabling, chronic disease characterized by the body's inability to...
I thought I would also post this here. A freelance journalist contacted my mum, Clare Norton, about her experiences with the NHS and How they...
Abstract BACKGROUND:: What adolescents think about symptoms and what they do in response could contribute to fatigue maintenance. We compared the...
Abstract PURPOSE: There is no known biological marker or physical assessment to diagnose chronic fatigue syndrome (CFS), leaving physicians to...
I just came across this this morning and it fills me with what I can only describe as the collywobbles. Firstly how many children with severe ME...
Aim: To determine the reported duration of illness, the functional and educational long-term outcomes, predictive factors for recovery and seek...
MYRIAD is a research project. We are interested in how schools promote young people’s wellbeing and resilience (the ability to adapt in the face...
Abstract Hypermobile Ehlers‐Danlos syndrome (hEDS) is a hereditary disorder of connective tissue, often presenting with complex symptoms can...
An alarming-sounding study ("Fearful beliefs about activity could be targeted using cognitive-behavioural interventions.")! Source: Journal of...
In brief Cai Onraet's onset of ME was sudden when his legs went beneath him He suffered fatigue, headaches, muscle pain, and flu-like symptoms...
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