young people

  1. Dolphin

    Adolescents and their parents’ experiences of internet delivered home treatment for chronic fatigue syndrome/me (fitnet-NHS trial),2020, Parslow et al

    https://adc.bmj.com/content/105/Suppl_1/A56.1
  2. John Mac

    Do treatments for paediatric chronic fatigue syndrome improve pain? a systematic review, Ascough et al, 2020 G535(P)

    https://adc.bmj.com/content/105/Suppl_1/A189.2
  3. Andy

    Chronic fatigue syndrome/myalgic encephalomyelitis in children aged 5 to 11 years: A qualitative study, 2020, Bridgen, Crawley et al

    Open access, https://journals.sagepub.com/doi/10.1177/1359104520964528
  4. Dolphin

    ME / CFS in Adolescents - Research Review, 2020, Szrajda

    Free full text: http://www.jnnn.pl/index.php/neurological-and-neurosurgical/article/view/261/269 The Journal of Neurological and Neurosurgical Nursing Pielęgniarstwo Neurologiczne i Neurochirurgiczne THE JOURNAL OF NEUROLOGICAL AND NEUROSURGICAL NURSING eISSN 2299-0321 ISSN 2084-8021...
    • Dolphin
    • Thread
    • cochrane review cochrane review withdrawal me/cfs poland review szrajda young people
    • Replies: 3
    • Forum: ME/CFS research
  5. Dolphin

    Going to See the Paediatrician, 2020, Kozlowska et al

    Free full text: https://link.springer.com/chapter/10.1007/978-3-030-46184-3_2 Looks like it could be quite annoying
  6. Dolphin

    Chronic Fatigue Syndrome in children population – current knowledge summary , 2020, Prylińska et al

    Free full text...
    • Dolphin
    • Thread
    • 2020 kwiatkowska me/cfs paper poland prylinska review young people
    • Replies: 3
    • Forum: General ME/CFS news
  7. Dolphin

    How common are depression and anxiety in adolescents with CFS and how should we screen for these mental health co-morbidities, 2020, Loades et al

    Free full text: https://link.springer.com/article/10.1007/s00787-020-01646-w
  8. Gecko

    United Kingdom: Sheffield ME & Fibromyalgia Group News

    The below is from Sheffield ME & Fibromyalgia Group. Would be grateful if people could distribute around any Sheffield related networks and/or share with people who may be interested in applying. I'll attach as a word doc too in case you want to download and send that way. Thanks! Job Vacancies...
    • Gecko
    • Thread
    • agm carding charity cort johnson gut gut microbiome jen brea job me & fibro group nigel speight pip quadram institute ron davis sheffield tymes trust uk me/cfs biobank united kingdom unrest video young people
    • Replies: 76
    • Forum: News from organisations
  9. Andy

    Review: How has cognitive behaviour therapy been adapted for adolescents with comorbid depression and chronic illness? A scoping review, 2020, Loades

    Open access, https://acamh.onlinelibrary.wiley.com/doi/10.1111/camh.12421
  10. Andy

    Pain in adolescent chronic fatigue following Epstein-Barr virus infection, 2020, Wyller et al

    Paywall, http://dx.doi.org/10.1515/sjpain-2020-0031 Sci hub, unable to access paper at time of posting.
  11. T

    Investigating subjective experiences of cognitive difficulties and objective measures of cognitive functioning in adolescents who had EBV, 2020, Rødø

    via Dr. Marc-Alexander Fluks
  12. Andy

    Activity measurement in pediatric chronic fatigue syndrome, 2020, Jason et al

    Paywall, https://journals.sagepub.com/doi/10.1177/1742395320949613 Sci hub, https://sci-hub.tw/10.1177/1742395320949613
    • Andy
    • Thread
    • 2020 actigraphy leonard jason me/cfs paediatric paper young people
    • Replies: 13
    • Forum: ME/CFS research
  13. Andy

    Recruiting Adolescents With [CFS/ME] to Internet-Delivered Therapy: Internal Pilot Within a Randomized Controlled Trial, 2020, Knoop, Crawley et al

    Full title: Recruiting Adolescents With Chronic Fatigue Syndrome/Myalgic Encephalomyelitis to Internet-Delivered Therapy: Internal Pilot Within a Randomized Controlled Trial Open access, https://www.jmir.org/2020/8/e17768/
  14. Andy

    Digital Behavior Change Interventions for Younger Children With Chronic Health Conditions: Systematic Review, 2020, Crawley, Loades et al

    Open access, https://www.jmir.org/2020/7/e16924/ My bolding.
  15. Sly Saint

    UK Royal College of Psychiatrists

    RC Psych (Royal College of Psychiatrists) Chronic fatigue syndrome: helping your child to get better (note: Disclaimer This is information, not advice. Please read our disclaimer.)...
    • Sly Saint
    • Thread
    • children guidelines me/cfs mus royal college of psychiatrists united kingdom young people
    • Replies: 21
    • Forum: General ME/CFS news
  16. Sly Saint

    Article MDPI: Severe ME in Children - Nigel Speight July 2020

    https://www.mdpi.com/2227-9032/8/3/211 (This article belongs to the Special Issue ME/CFS – the Severely and Very Severely Affected)
  17. Sly Saint

    Medically Unexplained Symptoms and PEM (Paediatric Emergency Medicine) presentations - Dr Armstrong - 11 Jun 2020

    London School of Paediatrics - HEE NHS UK (I skipped the case examples) youtube generated transcript: pt1
  18. Sly Saint

    EXPLORER study: Exploring treatments for younger children with CFS/ME - Amberly Brigden, Esther Crawley

    https://www.bristol.ac.uk/academic-child-health/research/research/cfsme/explorer/ project 3 thread: https://www.s4me.info/threads/the-care-of-younger-children-5–11-years-with-cfs-me-a-qualitative-study-comparing-families’-teachers’-and-clinicians’-perspectives’-2020-crawley.15475/ eta...
  19. Andy

    The care of younger children (5–11 years) with CFS/ME. A qualitative study comparing families’, teachers’ and clinicians’ perspectives’, 2020, Crawley

    Title including weird quote, “The child’s got a complete circle around him ”. The care of younger children (5–11 years) with CFS/ME. A qualitative study comparing families’, teachers’ and clinicians’ perspectives’ Open access, https://onlinelibrary.wiley.com/doi/full/10.1111/hsc.13029
  20. Sly Saint

    'Children and ME' - Zoom meeting with guest speaker Dr Nigel Speight July 7th 2020

    Hope 4 ME & Fibro NI " The charity is replacing monthly meetings in Newry by providing specialist speakers online by Zoom, until Covid - 19 social distancing rules are lifted. Our Zoom meeting this month will be dedicated to the needs of children with ME, presented by the charity’s Paediatric...
    • Sly Saint
    • Thread
    • 2020 children hope 4 me & fibro me/cfs meeting nigel speight northern ireland presentation video young people
    • Replies: 4
    • Forum: General ME/CFS news
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