1st ME/CFS Canadian Collaborative Conference

https://twitter.com/user/status/992016291182579712

https://twitter.com/user/status/992019847927291905

https://twitter.com/user/status/992024712728535040

https://twitter.com/user/status/992033033892098048

https://twitter.com/user/status/992035625351241728

 

https://twitter.com/user/status/992057386125987840

https://twitter.com/user/status/992060901221195778

https://twitter.com/user/status/992062759138406400

https://twitter.com/user/status/992065878480031744

 

Have been tweeting on this as well, MEAction's twitterfeed should have it -- https://twitter.com/MEActNet

 

From the minimal twitter scan I've done so far, there's a lot to like about this conference.

 

Today was dedicated in priming physicians new to the field in understanding the illness. It was basically ME101. Tomorrow there will be a deep dive into the research. Most of the research presentations will be reserved to physicians and researchers. There will be a separate agenda for patients- and this will be webcast.

 

Does anybody know if recordings will be available?

 

Ron on now... talking about pathogens:

https://twitter.com/user/status/992393028097794049

 

My arm is getting worn out from hitting refresh on Twitter, so much promising info Can't wait for the summaries and hopefully more actual publications soon. Packed audiences in the doctor/researcher section is maybe the best thing about the entire conference.

 

Yesterday I was getting up and moving around a lot... this time I am totally captivated. I still WANT coffee and to stretch my legs but rn I'm consumed by the flow cytometry diagrams!

 

This conference is good (for being the first). Thanks for tweeting.

 

https://twitter.com/user/status/992488749413142529


https://twitter.com/user/status/992488752336506881


https://twitter.com/user/status/992488753607462912

 

Nacul now, but Cort and I had to flee around about the same time... we ran out of energy. He was leaving as I was coming back inside...

 

Looks like there are lots of interesting findings being shared.

 

I also found this interesting

https://twitter.com/user/status/992434540588273664


Are we dealing with multiple illnesses that share the same metabolic response? @alex3619

That is a genetically defined metabolic survival strategy.

 

Wow, so much going on here..in a very good and positive way!

 

I look forward to having these various findings explained in more detail.

 

The conference has wrapped up, there is this tweet from the institute that takes care of ME at the Canadian institutes for health research. Please like and retweet. This person may well be an agent of change for all of us.

https://twitter.com/user/status/992833405254488065

 

Done.

I'm curious though. I had thought there were a few suspect people (central sensitisation theorists) who were to present their ideas. Haven't heard anything but reports of real science so far. Which is very good. I am relieved.

 

Ron Davis said at some point, I saw on a tweet earlier, we don't want to just treat this disease, we want to cure it. That statement used to fill me with hope in the past, not so much now.......it just seems a bit unrealistic.