2024: USA NIH NINDS ME/CFS Research Roadmap - now published

This looks like a positive step forward. In the neurological disorders section too.

Does anyone know if it has teeth and likely to be supported, committed with funding and decent scientific leadership?

 

Summary of Report of the [NANDS] ME/CFS Research Roadmap Working Group of Council – May 2024

https://www.meresearch.org.uk/repor...ch-roadmap-working-group-of-council-may-2024/

 

ME Action is circulating around an open letter to try and get funding for the roadmap. Anyone can sign (including people outside US I think, and orgs)

https://bit.ly/MEcfsRoadmap

Edit (my comment): don’t necessarily feel very impressed by the roadmap upon a quick skim. Mentioning things like chronic inflammation as if true and overly focusing on chronic infection theories. But probably still worth supporting. Solid biomedical data is useful in any case. And I feel finding the abnormality in ME is very possibly something that just has to be brute forced.