A general thread on the PACE trial!

Discussion in 'Psychosomatic research - ME/CFS and Long Covid' started by Esther12, Nov 7, 2017.

  1. Amw66

    Amw66 Senior Member (Voting Rights)

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    Except for paediatrics?
     
    bobbler, Ash, alktipping and 2 others like this.
  2. Dolphin

    Dolphin Senior Member (Voting Rights)

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    The FINE Trial wasn’t published till 2010: https://www.bmj.com/content/340/bmj.c1777
     
  3. Maat

    Maat Senior Member (Voting Rights)

  4. DigitalDrifter

    DigitalDrifter Senior Member (Voting Rights)

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    Just looked at that paper and they're using the 2007 NICE guidelines criteria, so anybody with 6 months of chronic fatigue could be included.
     
    Ash, MEMarge, Lou B Lou and 4 others like this.
  5. NelliePledge

    NelliePledge Moderator Staff Member

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    Bumping this again as some may have missed @Adam pwme request for help tracking down an item from ME Assn magazine.
     
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  6. Kitty

    Kitty Senior Member (Voting Rights)

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    I found the following via Wayback Machine, which may be the thing @Adam pwme is looking for:

    https://web.archive.org/web/20040805094145/http://www.meassociation.org.uk/fcampaign.htm

     
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  7. Adam pwme

    Adam pwme Senior Member (Voting Rights)

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    Ash, bobbler, MEMarge and 6 others like this.
  8. JohnTheJack

    JohnTheJack Moderator Staff Member

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    I'm not sure if this has been posted somewhere already, but if not I suppose this could count as 'PACE trial - Where are they now?'

    Emeritus Professor of Psychological Medicine at the University of Oxford Michael Sharpe has now started a consultancy making available to others (for a fee, of course) his expertise, including 'design and implementation of integrated services and large scale research evaluations of them' using his 'extensive experience of leading and advising local, national and international organisations at Board level'.

    The link is on his Twitter home page which boasts his support for 'freedom of enquiry' (sic).
     
  9. Lou B Lou

    Lou B Lou Senior Member (Voting Rights)

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    A great many of us cannot read that on Twitter, because Michael Sharpe is so confident in himself and his work that he has blocked most of us on Twitter, thus avoiding being challenged with the *Evidence that he is wrong

    .
     
    MSEsperanza, Sean, alktipping and 8 others like this.
  10. JohnTheJack

    JohnTheJack Moderator Staff Member

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    I have a second account in another browser. It's sort of 'clean' as I don't follow anyone and don't post anything with it.
     
  11. DigitalDrifter

    DigitalDrifter Senior Member (Voting Rights)

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    If he is claiming that the London criteria is properly defined ME, why did the ME Association keep using a pre-covid prevalence figures of 250,000 (nearly 0.4%)?

    According to the 2014 London criteria (Co-Written by Charles Shepherd) ME affects 1 per 1000
    (0.1%). which equates to 67,000 people in the UK. http://web.archive.org/web/20150923181011/http://www.axfordsabode.org.uk/me/mecrit2014.htm
     
  12. JellyBabyKid

    JellyBabyKid Senior Member (Voting Rights)

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    ...And this post is how I found out that I am blocked by Michael Sharpe. Who I have never interacted with.

    Excellent "support for 'freedom of enquiry" :rolleyes:
     
    MSEsperanza, Yann04, EzzieD and 10 others like this.
  13. Dolphin

    Dolphin Senior Member (Voting Rights)

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  14. Dolphin

    Dolphin Senior Member (Voting Rights)

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    I was one of the subjects of this study. I was on the "Adaptive Pacing" pathway. My memory isn't great but i'm sure i was told not to speak to others with the condition. Maybe neccessary for the trial, but also meant i was isolated for a long time and suffered as a result.

    https://bsky.app/profile/rbmdm.bsky.social/post/3lakeen34fk2o

    It's probably possible to find me in the results as the walking test, both before and after i walked loads, as i was relatively fit, with my health up and down and so i rested up before appointments. It didn't take into account me falling asleep on the trains home or the days that followed.

    https://bsky.app/profile/rbmdm.bsky.social/post/3lakei673bc2o
     
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  15. Kitty

    Kitty Senior Member (Voting Rights)

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    From @MSEsperanza:

    The Plos One cost-effectiveness study on PACE recently got referenced by Nick Brown:

    Posted on Bluesky:

    https://bsky.app/profile/did:plc:ofwg64mbej5dbdwxlrzfksxp/post/3lbeoiyqe7k2e
     

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