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A Girl Behind Dark Glasses - Jessica Taylor-Bearman

Discussion in 'General ME/CFS news' started by Indigophoton, Jun 23, 2018.

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  1. Indigophoton

    Indigophoton Senior Member (Voting Rights)

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    Last edited: Jun 23, 2018
    Indigophoton, Jun 23, 2018
    #1
    Forestvon, ladycatlover, Invisible Woman and 18 others like this.
  2. Dolphin

    Dolphin Senior Member (Voting Rights)

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    I hope it’s good. Has the potential to be but I have a slight concern it might focus on her rehabilitation and claim it made a huge difference when to me she still seems very ill. Nothing personal, I just don’t like the impression going out that our disabilities are due to a lack of rehab.
     
    Dolphin, Jun 23, 2018
    #2
    Alton, Mithriel, ladycatlover and 13 others like this.
  3. Diwi9

    Diwi9 Senior Member (Voting Rights)

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    I'm interested if she documents any mistreatment.
     
    Diwi9, Jun 23, 2018
    #3
    ladycatlover, Invisible Woman, MSEsperanza and 9 others like this.
  4. jayletay

    jayletay New Member

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    Hi, it does focus on the honest approach of having very severe M.E. and not the quick recovery that is expected of M.E Units like the one I was taken to. There is also bits of mistreatment too. It’s from the approach of the voiceless. I hope you will find it of interest.
     
    jayletay, Jun 28, 2018
    #4
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  5. TiredSam

    TiredSam Committee Member

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    TiredSam, Jun 28, 2018
    #5
    ladycatlover, Invisible Woman, MSEsperanza and 13 others like this.
  6. Trish

    Trish Moderator Staff Member

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    Welcome, @jayletay, I'm looking forward to reading your book. Well done for writing it. A fantastic achievement.
     
    Trish, Jun 28, 2018
    #6
    ladycatlover, Invisible Woman, Annamaria and 13 others like this.
  7. Diwi9

    Diwi9 Senior Member (Voting Rights)

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    I hope your publication helps inform NICE and future Parliamentary actions. Thank you sharing here at S4ME, @jayletay! I will be purchasing your book.
     
    Diwi9, Jun 28, 2018
    #7
    ladycatlover, Annamaria, MSEsperanza and 8 others like this.
  8. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    10 Things About Living With M.E. That You Want People To Know By Jessica Taylor-Bearman

    "I have been suffering with a chronic neuro immune disease for over twelve years called M.E. It stands for Myalgic Encephalomyelitis and remains very misunderstood in all aspects. You may have heard of it called by a multitude of different names including Chronic Fatigue Syndrome and sadly still, Yuppie Flu."

    "I’m bedridden activist, which means I do most of my advocacy from my bed. It makes a difference to know you’ve helped someone or by writing a book like A Girl Behind Dark Glasses, I can change someone’s perspective on M.E. We all need to live in hope, that’s really important."

    https://www.femalefirst.co.uk/books/jessica-taylor-bearman-a-girl-behind-dark-glasses-1147162.html
     
    Sly Saint, Jul 6, 2018
    #8
    ladycatlover, Annamaria, MSEsperanza and 9 others like this.
  9. Dolphin

    Dolphin Senior Member (Voting Rights)

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    Dolphin, Jul 7, 2018
    #9
    ladycatlover, Squeezy, Barry and 7 others like this.
  10. Dolphin

    Dolphin Senior Member (Voting Rights)

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    Dolphin, Jul 7, 2018
    #10
    Invisible Woman, Squeezy, Barry and 6 others like this.
  11. Dolphin

    Dolphin Senior Member (Voting Rights)

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    Dolphin, Jul 9, 2018
    #11
    Squeezy, Barry, MEMarge and 3 others like this.
  12. Andy

    Andy Committee Member

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    https://www.thecanary.co/reviews/20...at-millions-of-missing-people-will-recognise/
     
    Andy, Jul 21, 2018
    #12
    sebaaa, Invisible Woman, Annamaria and 11 others like this.
  13. NelliePledge

    NelliePledge Moderator Staff Member

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    NelliePledge, Jul 21, 2018
    #13
    Invisible Woman, Annamaria, Squeezy and 9 others like this.
  14. Trish

    Trish Moderator Staff Member

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    I have just finished reading 'A Girl Behind Dark Glasses'.

    @jayletay congratulations, it's a very good book. You write clearly and well and don't hold back anything. Thank you.

    For those unable to read it, Steve Topple does it justice in his review.

    I think it is a very important book that should be read by everyone who treats people with ME, especially those with very severe ME - therapists, nurses, doctors, carers, physiotherapists etc.

    I would not recommend it for pwME who are in a vulnerable state - it is pretty horrific in places and some people will find it too distressing.
     
    Trish, Jul 24, 2018
    #14
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  15. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    Sly Saint, Aug 5, 2018
    #15
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  16. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    Author Interview - Jessica Taylor-Bearman
    Dec 7, 12:57 PM

    Interview on RNIB radio
     
    Sly Saint, Dec 16, 2018
    #16
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  17. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    Sly Saint, Jul 2, 2019
    #17
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  18. rvallee

    rvallee Senior Member (Voting Rights)

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    rvallee, Jul 2, 2019
    #18
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  19. Barry

    Barry Senior Member (Voting Rights)

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    Done.
     
    Barry, Jul 2, 2019
    #19
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  20. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    Sly Saint, Feb 24, 2020
    #20
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