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  1. Sly Saint
    Thread

    Severe myalgic encephalomyelitis/chronic fatigue syndrome in children and young people: a British Paediatric Surveillance Unit study 2022 Crawley et a

    Abstract Objectives Primary objective: to determine the point prevalence and incidence rate of severe myalgic encephalomyelitis/chronic fatigue...
    Thread by: Sly Saint, Dec 2, 2022, 23 replies, in forum: ME/CFS research
  2. Sly Saint
    Thread

    Ensuring the Voice of the Very Severely Affected Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Patient Is Heard in Research—A Model, 2022,Baxter

    Ensuring the Voice of the Very Severely Affected Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Patient Is Heard in Research—A Research Model...
    Thread by: Sly Saint, Jul 10, 2022, 5 replies, in forum: ME/CFS research news
  3. Sly Saint
    Thread

    Caring for the Patient with Severe or Very Severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2021, Montoya,Chu, Dimmock,Mooney, Dowell

    Abstract Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) can cause a wide range of severity and functional impairment, leaving some...
    Thread by: Sly Saint, Oct 6, 2021, 0 replies, in forum: ME/CFS research
  4. Sly Saint
    Thread

    A Comprehensive Examination of Severely Ill ME/CFS Patients, 2021, Chang et al

    Abstract One in four myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) patients are estimated to be severely affected by the disease,...
    Thread by: Sly Saint, Sep 29, 2021, 25 replies, in forum: ME/CFS research
  5. Andy
    Thread

    The Impact of Severe ME/CFS on Student Learning and K–12 Educational Limitations, 2021, Newton

    Faith Newton Abstract Children with ME/CFS who are severely ill are bedbound and homebound, and oftentimes also wheelchair-dependent. Very...
    Thread by: Andy, Jun 1, 2021, 0 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  6. Andy
    Thread

    Elements of Suffering in [ME/CFS]: The Experience of Loss, Grief, Stigma, and Trauma in the Severely and Very Severely Affected, 2021, Fennell et al

    Full title: Elements of Suffering in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: The Experience of Loss, Grief, Stigma, and Trauma in the...
    Thread by: Andy, Jun 1, 2021, 14 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  7. Sly Saint
    Thread

    Identification of differential genetic profiles in severe forms of fibromyalgia and CFS/ME, 2008, Garcia-Fructuoso et al

    Identification of differential genetic profiles in severe forms of fibromyalgia and chronic fatigue syndrome/myalgic encephalomyelitis: A...
    Thread by: Sly Saint, May 13, 2021, 0 replies, in forum: ME/CFS research
  8. Three Chord Monty
    Thread

    Life-Threatening Malnutrition in Very Severe ME/CFS, 2021, Baxter, Speight, Weir

    Life-Threatening Malnutrition in Very Severe ME/CFS Helen Baxter, Nigel Speight, William Weir Healthcare (MDPI), Open access Abstract Very...
    Thread by: Three Chord Monty, Apr 14, 2021, 9 replies, in forum: ME/CFS research
  9. ahimsa
    Thread

    Essay in Hippocampus Magazine: "Salisbury Steak Day"

    I'm a bit late sharing this, since it was published on March 8, and I keep forgetting to post! But I really enjoyed this essay written by...
    Thread by: ahimsa, Apr 5, 2021, 8 replies, in forum: General ME/CFS news
  10. John Mac
    Thread

    Experiences of Living with Severe Chronic Fatigue Syndrome/Myalgic Encephalomyelitis, 2021, Strassheim et al

    Abstract Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) is a rare disease with no known etiology. It affects 0.4% of the population,...
    Thread by: John Mac, Feb 5, 2021, 13 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  11. Trish
    Thread

    Book - 'Severe ME: More Notes for Carers' by Greg Crowhurst, 2021

    Severe ME: More Notes for Carers by Greg Crowhurst https://www.stonebird.co.uk/
    Thread by: Trish, Feb 2, 2021, 0 replies, in forum: General ME/CFS news
  12. Sly Saint
    Thread

    IiMER : Caring for Someone with Severe ME

    It is difficult to convey fully the overwhelming effects of severe ME – on the patient or on carers. We can only allude to the horrendous course...
    Thread by: Sly Saint, Dec 8, 2020, 0 replies, in forum: General ME/CFS news
  13. Sly Saint
    Thread

    Reductions in Cerebral Blood Flow Can Be Provoked by Sitting in Severe ME/CFS patients, 2020, Van Campen, Rowe, Visser

    Reductions in Cerebral Blood Flow Can Be Provoked by Sitting in Severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Patients Abstract...
    Thread by: Sly Saint, Oct 11, 2020, 4 replies, in forum: ME/CFS research
  14. Sly Saint
    Thread

    Preprint: Dental Care of the Homebound Patient with Myalgic Encephalomyelitis/cfs - Spivack July 2020

    not peer reviewed Abstract Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a disabling condition affecting millions of adults...
    Thread by: Sly Saint, Aug 5, 2020, 8 replies, in forum: ME/CFS research
  15. Sly Saint
    Thread

    Article MDPI: Severe ME in Children - Nigel Speight July 2020

    Abstract A current problem regarding Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is the large proportion of doctors that are...
    Thread by: Sly Saint, Jul 14, 2020, 2 replies, in forum: General ME/CFS news
  16. Sly Saint
    Thread

    Severe M.E Day - 8th of August 2020

    " A day to remember everyone who is suffering or who has ever suffered from Severe and Very Severe Myalgic Encephalomyelitis. Severe ME...
    Thread by: Sly Saint, Jul 7, 2020, 12 replies, in forum: General ME/CFS news
  17. Sly Saint
    Thread

    Health Care Responsibility and Compassion-Visiting the Housebound Patient Severely Affected by ME/CFS: Kingdon et al 2020

    Abstract Many people with severe Myalgic Encephalopathy/Chronic Fatigue Syndrome (ME/CFS) commonly receive no care from healthcare professionals,...
    Thread by: Sly Saint, Jul 4, 2020, 1 replies, in forum: General ME/CFS news
  18. John Mac
    Thread

    Cerebral Blood Flow Is Reduced in Severe ME/CFS Patients During Mild Orthostatic Stress Testing. van Campen et al. 2020

    Introduction: In a study of 429 adults with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), we demonstrated that 86% had symptoms of...
    Thread by: John Mac, Jun 13, 2020, 27 replies, in forum: ME/CFS research
  19. mango
    Thread

    ‘Help Holger now’ video about a Swedish man with very severe ME

    Moderator note posts below have been moved from: https://www.s4me.info/threads/news-from-scandinavia.647/ "Help Holger now!" 13 minutes long...
    Thread by: mango, Jun 8, 2020, 86 replies, in forum: General ME/CFS news
  20. Andy
    Thread

    The experience of living with severe ME/CFS, Newton et al, study starts July 2020

    The plight of patients with severe ME/CFS has been the subject of a series of studies funded by ME Research UK over the last few years, and...
    Thread by: Andy, Jun 5, 2020, 0 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
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