A list of people who applied for the NICE ME/CFS guideline group but who were not accepted

T

Tom Kindlon

Senior Member (Voting Rights)
I thought it might be useful to collate this information in a thread.

Perhaps keep the discussion of the guideline group in general to another thread, such as
https://www.s4me.info/threads/nice-...ideline-committee-has-now-been-published.6197

If people can link to where individuals said they were not accepted or other people posted information, it would give people more confidence in the information. But it's not compulsory.
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It was suggested to me to add the names to the first post so I will do this now, but make no promises to keep it up-to-date:
Abhijit Chaudhuri
Joan Crawford
Malcolm Hooper
Caroline Kingdon
Nina Muirhead
Charles Shepherd
Nigel Speight
Sue Waddle
Willie Weir
Paul Worthley


A co-opted member of the full guideline group (i.e. doesn't have voting rights):
Dr Charles Shepherd

Applied; not on the main guideline group but an expert witness for the committee:
Jonathan Edwards
Greg Crowhurst


Update on November 8:
Dr William Weir has now been added to the main guideline development group
 
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Joan Crawford has told me I can post that she applied but was not accepted. Here is a description for her:

Was working as a chartered Chemical Engineer managing high risk process operations when she became too ill to work. Was misdiagnosed with ME in 2004. Re-diagnosed with Lyme disease in 2005 along with multiple immune deficiencies around 2011. Has largely recovered via biomedical means and during this long, long slog has retrained as a counselling psychologist. Doctoral research covered the neuropsychological deficits found in patients with ME and Gulf War Illness (GWI). Currently working in NHS and private practice – largely healthcare based. Highly critical of MUS and Wessely school psycho-social approach. Has been Chair of the Chester MESH (ME self-help) for 9 years.
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Jonathan Edwards said:
Things are actually more complicated Tom. I think it is worth waiting to see how things actually pan out.
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Is it incorrect to say that you applied? Happy to delete your name if so.

I haven't been following the discussions on the threads, but I think it's interesting to collate who applied and was not accepted to help inform actions. I did read somewhere that although Dr Shepherd was turned down, there is still a chance he might be accepted.

Edited to add: if you agree with the reasoning given to exclude you and/or somebody else, that may be interesting, but it's not grounds to correct the post. Similarly if you think people shouldn't be complaining about who is or isn't on the panel at this time, that's interesting, but it's not grounds to correct the post.
 
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Tom Kindlon said:
Somebody had told me that @Jonathan Edwards had been turned down. So I took that at face value. As there seems to be some doubt, I have deleted the name to maintain the integrity of the list.
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I think what happened with Jonathan Edwards is that it was known he applied. And then when it was announced there were only 3 positions left and he would not satisfy the specific criteria mentioned for any of these [community paediatric nurse, specialist adult nurse and dietician], so it was interpreted as being turned down while unlike with some cases, a specific letter turning application down hadn't been received.

Anyway as I mentioned above I would encourage people to ideally link to any sources they have of any names they mention.
 
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