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  1. Sly Saint
    Thread

    UK RCPCH: Myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome (ME/CFS) - Member briefing on new NICE guideline

    The RCPCH raised a number of issues in the consultation on the draft guideline (RCPCH’s response is on pages 742-775), including safeguarding of...
    Thread by: Sly Saint, Nov 17, 2021, 3 replies, in forum: 2020 UK NICE ME/CFS Guideline
  2. Hutan
    Thread

    The trial endpoint issue (135 weeks)

    I thought it might be useful for us to get to grips with this issue. The GET defenders have said that NICE chose the trial endpoints it looked at...
    Thread by: Hutan, Nov 2, 2021, 12 replies, in forum: 2020 UK NICE ME/CFS Guideline
  3. Science For ME
    Thread

    NICE ME/CFS guideline - Stakeholder submissions to the draft and NICE responses - published 29th October 2021 - discussion thread

    Stakeholder submissions and NICE responses This thread is for discussion of the published tables of stakeholders submissions to the NICE ME/CFS...
    Thread by: Science For ME, Oct 28, 2021, 232 replies, in forum: 2020 UK NICE ME/CFS Guideline
  4. Science For ME
    Thread

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    This public thread is for general discussion of the much anticipated NICE 2021 ME/CFS Guideline including media and social media responses and...
    Thread by: Science For ME, Oct 28, 2021, 822 replies, in forum: 2020 UK NICE ME/CFS Guideline
  5. Sly Saint
    Thread

    NICE calls for healthcare professionals to use shared decision making best practice to highlight the risks of medicines associated with dependence

    NICE is advising doctors, nurses and pharmacists to discuss with patients the risks of prescribing them medicines including opioids, sleeping...
    Thread by: Sly Saint, Oct 25, 2021, 1 replies, in forum: Other guidelines with public consultation process
  6. Sly Saint
    Thread

    House of Lords: Govt discussions with NICE on ME/CFS (Main Chamber) Tuesday, 12 October 2021

    "Government discussions with the National Institute for Health and Care Excellence about myalgic encephalomyelitis and chronic fatigue syndrome –...
    Thread by: Sly Saint, Sep 15, 2021, 45 replies, in forum: 2020 UK NICE ME/CFS Guideline
  7. Sly Saint
    Thread

    NICE and Cochrane sign collaborative agreement to deliver ‘living’ guideline recommendations

    NICE and Cochrane have today (01st September 2021) signed a collaborative agreement which will help to deliver ‘living’ recommendations across the...
    Thread by: Sly Saint, Sep 1, 2021, 99 replies, in forum: Other Health News and Research
  8. Science For ME
    Thread

    2021: Communications between NICE and the S4ME management committee about the paused NICE ME/CFS guideline

    The following letter was sent by email by the S4ME management committee to NICE to express our concerns and ask for clarifications about the...
    Thread by: Science For ME, Aug 31, 2021, 46 replies, in forum: 2020 UK NICE ME/CFS Guideline
  9. Jonathan Edwards
    Thread

    Guardian Article on NICE pause

    https://www.theguardian.com/society/2021/aug/30/withdrawal-planned-guidance-me-leaves-patients-distraught Natalie Grover seems to be getting...
    Thread by: Jonathan Edwards, Aug 30, 2021, 126 replies, in forum: 2020 UK NICE ME/CFS Guideline
  10. Sly Saint
    Thread

    Survey:Improving NICE guidance

    "Introduction Please complete this short survey to help us improve how we write and present our guidance. Your feedback is key to help us...
    Thread by: Sly Saint, Aug 21, 2021, 16 replies, in forum: Other Health News and Research
  11. Andy
    Thread

    Petition: #MEAction: Publish the NICE ME/CFS Guideline Now

    "We call on the National Institute for Health and Care Excellence (NICE) to publish the finalised ME/CFS guideline in its current form. People...
    Thread by: Andy, Aug 19, 2021, 87 replies, in forum: Petitions
  12. MSEsperanza
    Thread

    The new NICE Guideline for ME/CFS: Ten Questions Answered (Brian Hughes)

    https://thesciencebit.net/2021/08/15/the-new-nice-guideline-for-me-cfs-ten-questions-answered/ This has been posted already, but I thought...
    Thread by: MSEsperanza, Aug 18, 2021, 1 replies, in forum: 2020 UK NICE ME/CFS Guideline
  13. Sly Saint
    Thread

    WORLD EVIDENCE-BASED HEALTHCARE DAY 20 October 2021

    2021 CAMPAIGN: THE ROLE OF EVIDENCE IN AN INFODEMIC Building on the collective wisdom of using evidence to generate impact in 2020, the campaign...
    Thread by: Sly Saint, Aug 12, 2021, 4 replies, in forum: Other Health News and Research
  14. Andy
    Thread

    UK: NICE Guideline: Shared decision making, published June 2021

    "This guideline covers how to make shared decision making part of everyday care in all healthcare settings. It promotes ways for healthcare...
    Thread by: Andy, Jun 18, 2021, 18 replies, in forum: Other guidelines with public consultation process
  15. Suffolkres
    Thread

    NICE Health topics: Tiredness/Fatigue in adults (includes CFS).

    Moved from this thread It was suggested yesterday that this Member of the House of Lords local to me is joining Forward ME? She has been...
    Thread by: Suffolkres, Apr 7, 2021, 90 replies, in forum: 2020 UK NICE ME/CFS Guideline
  16. rvallee
    Thread

    BMJ: Rapid response to 'Updated NICE guidance on CFS', 2021, Jason Busse et al, Co-chair and members of the GRADE working group

    I imagine there is supposed to be a point somewhere in there but all I read is people saying if they had been tasked with it they would have done...
    Thread by: rvallee, Feb 25, 2021, 286 replies, in forum: 2020 UK NICE ME/CFS Guideline
  17. Andy
    Thread

    United Kingdom: NICE National Institute for Health and Care Excellence

    Join us for the launch of our bold and ambitious new strategy. At the event, you'll hear directly from our leadership team. They'll be discussing...
    Thread by: Andy, Feb 15, 2021, 11 replies, in forum: News from Organisations
  18. Andy
    Thread

    UK: NICE Guideline: Rehabilitation for Chronic Neurological Disorders Including Traumatic Brain Injury

    An email from NICE has highlighted that they are developing a guideline on Rehabilitation for Chronic Neurological Disorders Including Traumatic...
    Thread by: Andy, Jan 5, 2021, 7 replies, in forum: Other guidelines with public consultation process
  19. John Mac
    Thread

    BMJ editorial: Updated NICE Guideline on chronic fatigue syndrome, 2020, Stokes and Wade

    Split from: NICE ME/CFS guideline - draft published for consultation - 10th November 2020 Updated NICE guidance on chronic fatigue syndrome...
    Thread by: John Mac, Dec 16, 2020, 139 replies, in forum: 2020 UK NICE ME/CFS Guideline
  20. Andy
    Thread

    NICE ME/CFS guideline - submissions to the draft guideline consultation, December 2020

    Moved from this thread: NICE ME/CFS guideline - draft published for consultation - 10th November 2020 Physios for ME View on NICE Guidelines...
    Thread by: Andy, Dec 16, 2020, 15 replies, in forum: 2020 UK NICE ME/CFS Guideline
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