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Action for ME GP webinars

Discussion in 'General ME/CFS news' started by Amw66, Jul 12, 2018.

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  1. Trish

    Trish Moderator Staff Member

    Messages:
    53,399
    Location:
    UK
    I think there's a lot of truth in that. After all, they supported the PACE trial that used the Oxford definition of 6 months fatigue.

    Perhaps we should ask Action for M.E. to change its name to action for chronic fatigue. I have no idea why the acronym AfCF suddenly made me think 'covfefe'
     
    Trish, Jul 16, 2018
    #41
    Annamaria, MEMarge, Snowdrop and 8 others like this.
  2. Alvin

    Alvin Senior Member (Voting Rights)

    Messages:
    3,309
    Action for Covfefe or Covfefe Action seems like a good name for them...
    How about the Association of semi Alternative Facts
     
    Last edited: Aug 1, 2018
    Alvin, Jul 17, 2018
    #42
    Annamaria, alktipping, ladycatlover and 1 other person like this.
  3. Alison Orr

    Alison Orr Established Member

    Messages:
    14
    :laugh::rofl::laugh::rofl::laugh::rofl::laugh::rofl: Thank you for the laugh! I hadn’t heard of this and followed your link. Teehee!
     
    Alison Orr, Jul 19, 2018
    #43
    Annamaria, alktipping, ladycatlover and 3 others like this.
  4. Amw66

    Amw66 Senior Member (Voting Rights)

    Messages:
    6,515
    @Action for M.E. can we have some feedback on this please - this is causing concern and risks harm.
     
    Amw66, Aug 1, 2018
    #44
    Sarah94, Annamaria, MEMarge and 5 others like this.
  5. Amw66

    Amw66 Senior Member (Voting Rights)

    Messages:
    6,515
    Bump - no response still
    Slide with GET recommendation still in place on dropbox link
     
    Amw66, Oct 30, 2018
    #45
    Sarah94, Annamaria, MEMarge and 3 others like this.
  6. Amw66

    Amw66 Senior Member (Voting Rights)

    Messages:
    6,515
    Bump - still no change
    @phil_in_bristol , can you advise if anything is happening with this?
    ETA tagged Phil
     
    Last edited: Oct 9, 2019
    Amw66, Oct 8, 2019
    #46
    Sarah94, Annamaria, rvallee and 1 other person like this.
  7. TiredSam

    TiredSam Committee Member

    Messages:
    10,505
    Location:
    Germany
    I think I remember that if you edit a post to add a tag, the tag doesn't work.

    @phil_in_bristol
     
    TiredSam, Oct 9, 2019
    #47
    MEMarge, Annamaria, Trish and 1 other person like this.
  8. Suffolkres

    Suffolkres Senior Member (Voting Rights)

    Messages:
    1,532
    Emily also has 'Sharpee Syndrome'....prone to block unwelcome tweets and cannot discuss genuine concerns raised....
     
    Suffolkres, Oct 10, 2019
    #48
    alktipping, ladycatlover and MEMarge like this.
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