Action for ME on ME-pedia

[Sly Saint]

If anyone would like to add the following to the ME-pedia AfME pages:
potted history:
http://web.archive.org/web/20130917...nts/get-informed/history-of-action-for-me.pdf

merger with Westcare in 2002:
https://www.thirdsector.co.uk/two-charities-merge-form-largest-group/article/612394

 

[Andy]

The MEpedia page for AfME is here, https://www.me-pedia.org/wiki/Action_for_ME

As the banner on the page says

To offer suggestions for improvement, click "Discussion."

Discussion is one of two tabs at the top of the main panel of the page

and text can be added almost as simply as it can be here on the forums - no account is needed.

Alternatively, if anyone is actually up for adding content to the page, edits can be made by clicking on either Edit or Edit source

Edit source is the more technical way of editing the page content via formatting codes for example, Edit uses a more refined user interface, again similar to the one here and, again, no account is required.

 

[Alvin]

That page has good information but is very out of date, it has nothing about AFME's current actions including their recent bothsiderism handbook.

 

[Sly Saint]

something else to add (not checked so sorry if its already there)

CCRNC Conferences
Collaborative Conference was developed in collaboration with the UK ME/CFS charities AfME (Action for ME) and AYME (Association of Young People with ME).
The 2007 Conference presenters had included Vincent Deary (formerly King’s College London CFS Unit), Trudie Chalder (Professor of Cognitive Behavioural Psychotherapy, Department of Psychological Medicine, King’s College London and colleague of Professor Simon Wessely) and Dr Mary Burgess (Chronic Fatigue Syndrome Research and Treatment Unit, KCL), author of Physiological Aspects of Chronic Fatigue Syndrome

Members of UK ME patient organisations, non members and the international ME community were outraged, in 2007, by the endorsement of this conference by our patient organisations AfME and AYME.

This year’s Keynote Speakers will be Professor Mansel Aylward, Director of Unum Centre for Psychosocial and Disability Research (CPDR), University of Cardiff on “Pathways to work (exact title tbc)“ and Professor Christine Heim, Department of Psychiatry and Behavioral Sciences, Emory University School of Medicine, USA who will address the conference on “Early Adverse Experience as a Risk factor for CFS: A Psychobiological Perspective”.

https://meagenda.wordpress.com/2009...-network-collaborative-ccrnc-2009-conference/