rvallee
Senior Member (Voting Rights)
I love when charlatans use narratives to present their belief system, it shows how utterly clueless they are. Wessely did that a few times and everything he described is just laughably wrong (about me anyway). This actually manages to describe literally the exact opposite of who I am and, frankly, that's almost impressive.Another one who seems to have no proper understanding of the condition he is an 'expert' in.
Sensory sensitivity in ME has nothing whatever to do with SNS activation. At least not in whatever is wrong with me.
The reason i am so certain of this is that i have had PTSD. I am intimately acquainted with what fight of flight feels like, and it's nothing like the sensory processing difficulties experienced in ME, at least in whatever I am suffering from that has been dx as ME. If ME is as he describes then I don't have it.
Indeed when I am actually in fight or flight my sensory difficulties diminish... DIMINISH... drastically. At moments of peak anxiety/danger it is a physical relief, because I can tolerate 5-10 times the sensory input as I can when relaxed. I can also do more, and my thinking is MORE alert, sharper & the fog disappears. I have told that to umpteen doctors over the years, they seem incapable of hearing it.
What I find most frustrating is that Doctors, researchers & the like, they cant seem to recognise that ME needs a category of it's own, a new pigeon hole. Pattern recognition seems to override their ability to actually hear what's being said - so strong that they just have to fit what we describe into things they already know about.
If this kind of survival instinct, which was normal for most of our species' existence, did lead to psychogenic illness with profound disability, our entire species would have simply gone instinct before even getting around to banging rocks onto other rocks. It's a parody description of human nature. Rather we are extremely resilient and capable of overcoming incredible psychological suffering and still manage to prioritize our survival and that of our family.
Quacks. Quack quacks quacks, the whole lot of them. Every last one of them quacks describing the thoughts in their heads and firmly asserting they are describing reality, which is just about the very definition of being delusional. Quacks quacks quacks.